I had half removed due to cancer and I’m on Levothyroxine now. I wouldn’t say it affected my weight in terms of made me put on any, but I do think I have to work harder now to keep the weight gain from happening
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Weight gain has been my main issue, alongside extreme tiredness, hair loss and terrible leg aches and pains and heavy periods.
I used to be a size 12, now I’m a 16-18, really struggle to shift it no matter how hard I try.
I’ve only had half of mine removed for the same reason as you, but it turned out to be harmless and the removal of the second half wasn’t needed! I know it’s worrying @ChampagneBox but try to think positive
had more bloods on thursday but really struggling with symptoms these past few weeks. if they come back clear then i'm stuck again bc i have no idea what else could be making me feel like this tbh!
My hair had stopped falling out so bad, but now its coming out in clumps again 
ive requested more bloods.
ive requested more bloods.Has anyone found a remedy for dry scalp? I’ve tried a host of shampoos but nothing has cured it. I was looking at The Inkey List Glycolic Scalp Treatment - anyone tried it?
Which ones have you tried?
I used to suffer from dry scalp too but haven't in a while. My favourites for hair are Maui (the hydrating range), or the garnier hair food shampoo and conditioner in banana. I also like pureology conditioner but it is a bit more pricey.
So my doctor doesn’t seem to think that having half a thyroid, you’d need to take anymore than 50mcg of levothyroxine daily, as she said the thyroid that’s remaining will still produce the hormone naturally.
I’d just like to ask those who have had a partial thyroid removal and are taking levothyroxine what are your doses?
They’ve agreed to up mine to 75mcg from 50mcg, on a three month trial. But she does seem to think it’s too much.
I’d just like to ask those who have had a partial thyroid removal and are taking levothyroxine what are your doses?
They’ve agreed to up mine to 75mcg from 50mcg, on a three month trial. But she does seem to think it’s too much.
I have half and I’m on 125mcg
Have they increased it gradually over time for you? My doctors are so reluctant to increase mine, it’s so frustrating
It's such a minefield isn't it. I still have symptoms of an underactive Thyroid, I am on 100mg... sick to death of asking for bloods to be rechecked only for them to tell me that its borderline and to stick with the 100mg.
So sick of feeling low and tired and dry skin etc etc. Eating healthy and not losing weight either. It's so stressful. I feel totally fobbed off. I am so close to going to the Endocrine clinic at the hospital and bypassing my doctors. I am struggling to concieve and I'm sure my thyroid is the reason. I never had any issue last time when I was on 125mg but the docs wont listen and wont up it for me, even for a trial period.
So sick of feeling low and tired and dry skin etc etc. Eating healthy and not losing weight either. It's so stressful. I feel totally fobbed off. I am so close to going to the Endocrine clinic at the hospital and bypassing my doctors. I am struggling to concieve and I'm sure my thyroid is the reason. I never had any issue last time when I was on 125mg but the docs wont listen and wont up it for me, even for a trial period.
Yeah, so I started off on 50mcg and they increased by 25mcg every few months until I ended up at the level they were happy with. I fluctuate between 125-150mcg now. How long as it been since you had half removed?
It will be 4 years in September, they wouldn’t start me on levothyroxine until summer 2020 even though my symptoms had been setting in slowly since I had the op in 2018.
They agreed to start me off on 25mcg which helped initially but I soon started to fall back, so they upped it to 50mcg summer last year. My TSH level is currently 2.2 but my symptoms are as bad as they’ve ever been, it was 20 degrees here in the last week and I was absolutely freezing cold, it’s bizarre.
I suppose finding a good doctor that will listen is half the battle won isnt it.
I’ve even thought about going privately to see a specialist doctor, how long has it been since you had yours removed? Do you feel better since being on a higher dose?
Getting the doctors to listen is the biggest battle, I’ve also thought about going straight to them, but the doctor who removed my right side thyroid told me I’d never need levo! He was an endocrine specialist so I don’t have much faith in them either
I had exactly the same when I was on too low of a dose, so cold all of the time and I was extremely tired even if I’d slept well. I don’t have any symptoms at all now and haven’t for years. I can’t remember how long I’ve been on the higher dose but my op was 8 years ago and I’d guess within a year or two of it I was on 100mcg. Are you still under the hospital? I go once a year to see the consultant and I see my GP in-between, so I have my bloods checked every 6 months
It will be 4 years in September, they wouldn’t start me on levothyroxine until summer 2020 even though my symptoms had been setting in slowly since I had the op in 2018.
They agreed to start me off on 25mcg which helped initially but I soon started to fall back, so they upped it to 50mcg summer last year. My TSH level is currently 2.2 but my symptoms are as bad as they’ve ever been, it was 20 degrees here in the last week and I was absolutely freezing cold, it’s bizarre.
I suppose finding a good doctor that will listen is half the battle won isnt it.
I’ve even thought about going privately to see a specialist doctor, how long has it been since you had yours removed? Do you feel better since being on a higher dose?
Getting the doctors to listen is the biggest battle, I’ve also thought about going straight to them, but the doctor who removed my right side thyroid told me I’d never need levo! He was an endocrine specialist so I don’t have much faith in them either
TSH 2.2 is pretty good. I havent had mine removed but I take 75mcg a day and my TSH was 5 last time I got it tested. Dr says with no very obvious other symptoms he doesnt want to tweak my meds.
No I’m not, they haven’t seen me in endocrinology since I went back for the results post op. I have an annual blood check with my GP but they will check them sooner if I call. The coldness is such an issue, my partner laughs when I’ve got a blanket on and it’s warm. I’d have the central heating on 24/7 if I could afford too!
I read that if a thyroid condition is detected then TSH levels should be kept between 0.5-2, although I’m not sure how reliable that source was. My levels were at 4 before I began on Levo and I was barely functioning.
I think too much levothyroxine can cause more issues than not enough from what I’ve heard, it’s so hard to find the middle ground isn’t it.
How do you feel with your TSH level being so high?
I’ve been told 2.5 is my maximum. I went to 2.4 once and my dose went to 150, but now back to 125 as then it went overNo I’m not, they haven’t seen me in endocrinology since I went back for the results post op. I have an annual blood check with my GP but they will check them sooner if I call. The coldness is such an issue, my partner laughs when I’ve got a blanket on and it’s warm. I’d have the central heating on 24/7 if I could afford too!
I read that if a thyroid condition is detected then TSH levels should be kept between 0.5-2, although I’m not sure how reliable that source was. My levels were at 4 before I began on Levo and I was barely functioning.
I think too much levothyroxine can cause more issues than not enough from what I’ve heard, it’s so hard to find the middle ground isn’t it.
How do you feel with your TSH level being so high?
I meant to ask you about your levels, so me being 2.2 on the ‘normal scale’ is ok, but on the ‘under-active scale’ I’m coming to the limit.. My symptoms are always the same when my meds need increasing so my body sort of tells meI’ve been told 2.5 is my maximum. I went to 2.4 once and my dose went to 150, but now back to 125 as then it went over
Did your doctor tell you to keep your level below 2.5?
I‘d never actually known my levels up until about a year ago when a different consultant told me, but yeah he said ideally below 2.5. I don’t get cold or tired any where near like I used to (when I was on around 75mcg) Obviously it all affects us differently but you sound very similar to me. I hope you manage to get it sorted!
Thank you and thanks for replying to me, I don’t feel like I’m going so crazy now 
. Maybe I will ask to be referred back to endo to see someone regularly like you are, GPs don’t seem to be very sympathetic with thyroid issues and blood results x
. Maybe I will ask to be referred back to endo to see someone regularly like you are, GPs don’t seem to be very sympathetic with thyroid issues and blood results x
I got my surgery results today, unfortunately it’s minimally invasive follicular thyroid cancer 
does anyone have any experience of this?
does anyone have any experience of this?