I do disagree with this, just because someone has family doesn’t mean family members do actively want to be involved. My mum passed way two months ago nearly and I was sole carer, and I refused help from other services or her going into a hospice for respite.
sooz is there as well for pain management and additional medical needs. Emma probably wouldn’t be able to cope with the demand of it, and as well she’d need proper medical training in order to do some of the things. I personally think that if sooz went home, she would deteriorate a lot more quicker than she would in the hospice. This is pure palliative care for her, I guess to ensure she has a comfortable ending and that wouldn’t for an option if she went home.
I’m assuming you’re from Australia as you mentioned it in your comment.
Someone wouldn’t be placed into a hospice if they didn’t need it or if there wasn’t a particular reason for that placement. I’m sure Emma’s house would have been assessed or something would have gone into the background for the decision to be made for sooz to be put there.
as much as adaptations could be made to Emma’s property, the council would look as it as this person is dying and those adaptations would be useless after she dies, and a waste of our funding and resources. Sounds awful, but it’s true. It took over two years for my mums wet room to be done, and she only got use out of it for 8 months before she passed but her death was unexpected. Before that she was having bowl washes. Occupational health probably would have assessed sooz as well based on her abilities. As much as community nursing is an option they’re not widely available anymore! My mum would have nurses come to do her bloods at she had a clotting condition, and there would be weeks where they wouldn’t turn up due to short staffing, she was difficult to get blood out of and not many nurses would be able to take her bloods.
after being a carer pretty much my whole life for my mum, it’s not easy task whether you choose to do it full time like I did or your loved one is in a care home, hospice or hospital. I’d still go and visit my mum in hospital, and I would help wash her, change her, go to the toilet, bring her food to help with the demands that the nurses already had going on. It’s very easy when you’re not in the situation to say that this person should be here or there, but what matters is that the person is having a good quality of life that they have left, and ultimately a good death. I just hope that Sooz can find peace with the remainder of her journey.
Community nurses are not widely available anymore? This is not my experience and I am UK. I have had relatives and friends at end of life rec'ing care in the community. Nurses have always arrived within the 2 hour timeframe which is the gold standard. They had shringe drivers which needed meds refilling every 24 hours and a battery change, not once did nurses not arrive late to refill medication and change battery on the syringe driver. Palliative care nurses work around the clock in my experience. Where are you based in the UK not to have palliative care in the community available?
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knees … money is the root of all evil and Emma is just another of the new age go getters driven by money!
and as always, thanks for the relevant, reliable and pertinent insight that you afford us! 
