So I thought that might be the case, however when I go to their Facebook page these videos are being posted as though they’re current events when in fact it’s all stuff that happened a year ago.It looks like S and G pay for Facebook and other social media advertisements for their Youtube channel to randomly display in people's social media accounts. I'm not sure how internet ads work, but it looks like people don't even have to be subscribers of S and G to receive the ads. The video they sent you in an ad is definitely a year or so ago. Welcome to the forum !
New “room mates”
New house
Shane’s “oral surgery” formerly known as a tooth extraction.
Anyway, on another note. I refuse to believe that their house doesn’t look like a damn medical supply store “behind the scenes”. In my job I have looked after a lot of young people with SMA and other degenerative muscular conditions of varying severity.
Now I know not everyone with the same condition will follow the same course of illness but even into late teens these kids are starting to struggle and it’s not uncommon for things like tube feeds, cough assist & suction machines, CPAP or another type of non-invasive ventilation to start making an appearance in one’s life.
I really struggle to believe that he isn’t having any sort of respiratory physio on a regular basis. His inability to effectively cough combined with significantly restricted movement means he’ll be a pneumonia waiting to happen. Someone has to be helping him clear all that gunk.
Not to mention his breathing. We’ve all seen how much of an effort it is for him when he’s talking etc. That situation worsens when people with these conditions are sleeping, which is why a lot of them commonly first start off using NIV at night. It encourages proper expansion of the lungs which helps prevent a build of carbon dioxide. If that isn’t happening for someone they start to retain co2 which leads to migraines, fatigue and a generally feeling of crappiness.
He also can’t eat effectively, he’s admitted that himself in the past. He will be getting to a stage where he can’t swallow safely either (he may already be, and just massively in denial - from what we’ve all seen, that’s not outside the realms of possibility). So not only does eating not adequately sustain the body’s requirements, but it also becomes a hazard.
None of it adds up, but then you guys already know that.