@Curly Top ; I'm sorry your son has had to go through such difficulty with diagnosis. Unfortunately this is something I have come across when reading studies on JIA. Often people wrongly assume arthritis is an 'old person' disease when it isn't. My research isn't so much medical, but sociological where I want to understand experience of growing up with JIA as there isn't much research on it.
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I think you are double jointed. I have bendy fingers and thumbs.
I can imagine. What you are doing is very valuable. Lysette Anthony, an actress from Hollyoaks, campaigned about awareness of JIA a few years back as her son had it. She often used a buggy for him and people criticised her because they thought he was too old to use it. People just don't understand that arthritis can effect young people even babies. It is heart-breaking. We were lucky to get a diagnosis because in the end we went private but if people don't have recourse to this then undiagnosed JIA can cause permanent injury. The psychological damage from not being believed is horrendous.
I honestly could have written this word for word - its exactly what im thinking/feeling. Nothing anyone can do to make it better. Sending you lots of love xxx
I am so glad that you are researching this widely misunderstood disease. My son was diagnosed with JIA, but it took ages. He was in a lot of pain for months due to this lack of understanding. Many GPs and specialists could not pinpoint it accurately. It was a very worrying time. Once we found a paediatric rheumatologist, he had around 12 procedures over six years done under general anaesthetic. They needed him to be completely still to inject accurately into his knee. His school could not understand that he could be practically crippled in the morning but fine by the afternoon. Teachers thought he was making it up. I was furious and my husband had to give several PE teachers a medical explanation.
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We were lucky with our son. He had a swollen hot knee and was sent to hospital to check it. They kept him in hospital and did tests then took him to surgery to drain the knee and then a few days later they came and said he didn't have JIA. Then an hour later they came back and said he did! About a week later they gave him a steroid injection into his knee and then luckily it never came back. He had his eyes checked for uveitis for 3 years and was under the Rheumatologist for a while but as it's dormant they stopped seeing him. I have often wondered if it was a misdiagnosis as it was strange they said he didn't have it then an hour later that he did! Your sons school are ignorant. I hope he's doing better now?
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We were lucky with our son. He had a swollen hot knee and was sent to hospital to check it. They kept him in hospital and did tests then took him to surgery to drain the knee and then a few days later they came and said he didn't have JIA. Then an hour later they came back and said he did! About a week later they gave him a steroid injection into his knee and then luckily it never came back. He had his eyes checked for uveitis for 3 years and was under the Rheumatologist for a while but as it's dormant they stopped seeing him. I have often wondered if it was a misdiagnosis as it was strange they said he didn't have it then an hour later that he did! Your sons school are ignorant. I hope he's doing better now?
- I have Asperger's Syndrome.
- I used to live in a Palestinian refugee camp.
- I love to bake. Lockdown means I work from home and can't bring in cakes for my co-workers.
moved to the US in 2005.Yes I am x
Here are my 3:
1. I have brachydactyly type D (clubbed thumb) but only on my right hand.
2. I don't like the country I live in and feel like I live in the wrong one.
3. I wish I could be a stay at home mum.
1. I have brachydactyly type D (clubbed thumb) but only on my right hand.
2. I don't like the country I live in and feel like I live in the wrong one.
3. I wish I could be a stay at home mum.
LOVE this thread!
1. I am a triplet and was created by IVF (bit of a shock to my parents lol)
2. Everyone that knows me would say I am 100000% an extrovert, life of the party etc but most of it is put on. I absolutely love being by myself and can spend hours happily alone
3. I have huge health anxiety issues and can no longer google any symptoms as I convince myself every time that something is seriously wrong
1. I am a triplet and was created by IVF (bit of a shock to my parents lol)
2. Everyone that knows me would say I am 100000% an extrovert, life of the party etc but most of it is put on. I absolutely love being by myself and can spend hours happily alone
3. I have huge health anxiety issues and can no longer google any symptoms as I convince myself every time that something is seriously wrong
We were lucky with our son. He had a swollen hot knee and was sent to hospital to check it. They kept him in hospital and did tests then took him to surgery to drain the knee and then a few days later they came and said he didn't have JIA. Then an hour later they came back and said he did! About a week later they gave him a steroid injection into his knee and then luckily it never came back. He had his eyes checked for uveitis for 3 years and was under the Rheumatologist for a while but as it's dormant they stopped seeing him. I have often wondered if it was a misdiagnosis as it was strange they said he didn't have it then an hour later that he did! Your sons school are ignorant. I hope he's doing better now?
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That is fantastic. I am so glad for you. Maybe things are getting better.
My son is now a strapping 21 year old who - touch wood - has needed no further procedures for four years now.
I relate to 1 a lot
1. I have lived in Cyprus, Hong Kong, Brunei, Germany, America, Canada, England, Ireland, Qatar and Gibraltar
2. I am waiting for the day I have enough money to finish my house reno, rent it out, take a career break and work in Ghana for a good while (an amazing 3 month volunteer experience in 2017 won’t leave my mind!)
3. Besides my partner (does he count?) I actually have 0 friends. I get on well with work colleagues but never enough to progress to “outside of work friends”, I struggled at uni to make friends and have no friends from school. People often tell me how funny and kind I am (
) so I don’t understand what I do wrong. I tell myself I enjoy my own company but to be honest I’d quite like a bit of a social life
2. I am waiting for the day I have enough money to finish my house reno, rent it out, take a career break and work in Ghana for a good while (an amazing 3 month volunteer experience in 2017 won’t leave my mind!)
3. Besides my partner (does he count?) I actually have 0 friends. I get on well with work colleagues but never enough to progress to “outside of work friends”, I struggled at uni to make friends and have no friends from school. People often tell me how funny and kind I am (
) so I don’t understand what I do wrong. I tell myself I enjoy my own company but to be honest I’d quite like a bit of a social life1. I'm half way through a law degree with the Open University. Upon completion I hope to qualify as a solicitor dealing in family law.
2. I'm a pescatarian. I love fish but the thought of eating meat makes me gag.
3. I cannot bear a loud eater. It annoys me to the point I genuinely can't be in the same room as them. Really boils my blood.
2. I'm a pescatarian. I love fish but the thought of eating meat makes me gag.
3. I cannot bear a loud eater. It annoys me to the point I genuinely can't be in the same room as them. Really boils my blood.
I relate to #3 soooo much! My partner is really my only true friend. Everyone else are just acquaintances or people I text/speak to on social media occasionally. I too do not know where I am going wrong!1. I have lived in Cyprus, Hong Kong, Brunei, Germany, America, Canada, England, Ireland, Qatar and Gibraltar
2. I am waiting for the day I have enough money to finish my house reno, rent it out, take a career break and work in Ghana for a good while (an amazing 3 month volunteer experience in 2017 won’t leave my mind!)
3. Besides my partner (does he count?) I actually have 0 friends. I get on well with work colleagues but never enough to progress to “outside of work friends”, I struggled at uni to make friends and have no friends from school. People often tell me how funny and kind I am (
1. I can’t stand chocolate
2. I’m a serial organiser and it drives my husband crazy
3. I can now speak/communicate in 9 languages
2. I’m a serial organiser and it drives my husband crazy
3. I can now speak/communicate in 9 languages
Which was your favourite?
That's amazing! I really want to learn another language. I can pick up a little via immersion but I've never been fully fluent in anything other than English.
1. I’m a medical student, and an aspiring Psychiatrist
2. I am obsessed with astrology, and often weird people out by trying to calculate their birth chart and work out their signs
I’m generally a really superstitious person
3. I have no hobbies. It sounds sad, but as a child my parents never pushed me to learn an instrument or take up a sport. I’ve grown into a talentless adult
I have things I enjoy - makeup, true crime..but no real hobbies. I want to learn a new language or try something new, but I’m not sure what I’m good at and worry I’m too old to ‘naturally’ pick up a language. When people ask me what my hobbies are, I panic
2. I am obsessed with astrology, and often weird people out by trying to calculate their birth chart and work out their signs
I’m generally a really superstitious person3. I have no hobbies. It sounds sad, but as a child my parents never pushed me to learn an instrument or take up a sport. I’ve grown into a talentless adult
I have things I enjoy - makeup, true crime..but no real hobbies. I want to learn a new language or try something new, but I’m not sure what I’m good at and worry I’m too old to ‘naturally’ pick up a language. When people ask me what my hobbies are, I panic2. I am obsessed with astrology, and often weird people out by trying to calculate their birth chart and work out their signs I’m generally a really superstitious person
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Yes me too. I love looking up people's date, time and year of birth online and finding out their sun, rising and moon signs. I often guess and get people's signs right. We had a book called Sun Signs by Linda Goodman, which we used to read from at Christmas with the neighbours. We had so much fun.
I’m generally a really superstitious person[/QUOTE]
Yes me too. I love looking up people's date, time and year of birth online and finding out their sun, rising and moon signs. I often guess and get people's signs right. We had a book called Sun Signs by Linda Goodman, which we used to read from at Christmas with the neighbours. We had so much fun.
Yes me too. I love looking up people's date, time and year of birth online and finding out their sun, rising and moon signs. I often guess and get people's signs right. We had a book called Sun Signs by Linda Goodman, which we used to read from at Christmas with the neighbours. We had so much fun.
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I’ll have to check out that book!
There’s a thread on here for sun/moon/risings:
It’s a bit slow but I look checking if anyone has the same big three as me haha! (Scorpio/Libra/Gemini)
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I’ll have to check out that book!
There’s a thread on here for sun/moon/risings:Astrology - Sun, Moon & Rising
I love astrology and my Tattle name was inspired by it. I am interested to know what everyone’s “big three” placements are, if willing to share. My Sun is in Leo, my Moon is in Gemini and my Rising sign is Libra. My Sun sign is a fire sign but my other main placements are Air signs. If you...
tattle.life
It’s a bit slow but I look checking if anyone has the same big three as me haha! (Scorpio/Libra/Gemini)
There’s a thread on here for sun/moon/risings:
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Ooh I didn't know that. I'll get stuck in now. Thanks
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Ooh I didn't know that. I'll get stuck in now. Thanks