IBS/IBD sufferers...

[Captainmouse]

@Jelly Bean Are you any better?

 

[yeoooo]

anyone have no findings of crohns in colonscopy but via MRI in small intenstine?

 

[ChiRie]

Wow I didn't know this. I have Crohn's and Epilepsy. Is there an alternative to the prep?

Hope you're ok.

The movieprep wasn't to be given with seizures it brought it on for me. I still have thme now

 

[EllaEm87]

Just sharing what my dermatology consultant told me when I queried if I could use the topical antibiotic she had prescribed. My gastro team told me to avoid oral but not topical. Antibiotics absorbed in the gut will aggregate the gut more than those absorbed into the bloodstream via the skin.

 

[Blahblah93]

I'm thinking of trying a daily probiotic. Does anyone have any recommendations?

I have a Kefir everyday

 

[N0sey.P4rker]

Has anyone tried the Low FODMAP diet? I’m a new member (long time lurker) so can’t make a new thread yet but I think a Low FODMAP thread could be helpful for sharing advice, experiences and accidental Fodmap foods in supermarkets ?

New to this thread, I know tattle would have experts

My partner has just been told to follow a FODMAP diet, does any one have any info they can give, meal ideas etc?

Everything I cook has onion and garlic in it so currently scratching my head

 

[Woolmercardington]

Does anyone hear get frequent stomach/bowel/intestinal rumbling and gurgling - but not associated with diarrhoea?

If so, does it tend to happen during the night?

I've had this on and off for a while and can be so loud it wakes me up.

 

[Bobbleowl90]

Does anybody have flare ups that last over a week?

I’ve not had any issues for quite a while but suffering so badly with bloating for the past month. A week ago I was so bloated and I ended up vomiting after eating. Since then, my stomach has been in bits with cramping and griping pains. I look pregnant! I am so bloated. I’ve been taking buscopan and my GP has given me some Mebeverine now and requested stool sample to ensure nothing else going on. I just didn’t think a flare up would be so severe for this long and I feel awful.

 

[Thecatsmother]

I’m glad I’ve found this thread as I was diagnosed with diverticular disease earlier this year. I feel everyone’s pain around flare ups. I feel like any digestion issues just get cast aside by doctors a lot of the time.

How have people found support from doctors in terms of their eating once being diagnosed? I’m almost afraid to eat and rotate the same foods daily at the minute because I don’t want to flare up.

I’ve got IBS not diverticular disease but my doctor suggested a low fodmap diet which had been working well for me.

 

[blackmasque]

I had a colonoscopy a while back and my gi dr suspects I might have ulcerative colitis so back to low fodmap I go. More bloodwork and tests. I'm so sick all the time that I'd rather just not eat. It's probably not a good idea but

Spoiler

I've been severely limiting the amount of food I eat, even though it's low fodmap food.

I was already on humira for another autoimmune issue now they've increased the amount of doses I take. Hopefully it improves soon. I'm just soo tired of being sick.

 

[WilmaHun]

I have been diagnosed with IBS and started on mebeverine. I don’t think it’s making any difference at all to be honest.

I had a McDonald’s on Saturday and I’m still in agony with cramps and bloating. This is the worst flare up I’ve had, I’ve been in tears with it. Is there anything at all I can do it ease the pains?

I am also on mebeverine for my IBS. Mostly it does help me however I know some other people really recommend peppermint tea! Have you tried that?

 

[Olive16]

Do you have ibs or ibd? If ibs check out monash university fodmap app.

I haven’t been diagnosed with either - Dr doesn’t believe it to be IBS because some of the symptoms and how quickly my body is reacting to whatever is triggering! I did look into FoodMap, but read it’s not to be long term!?

 

[Summer2011]

Can I ask why you couldn't complete the colonscopy? Was it the prep? I have them every 3 months at the moment if you want any tips. Xx

I have no idea, everytime I vomit. I vomit with the prep and then the actual camera, I’ve had sedation and gas & air and I’m still so worked up that they have to give up xx

 

[Blairr]

I've mentioned before the prep gave me seizures so the procedure didn't go ahead. I didn't know you could be sedated for it though, they never said that to me. I don't know if I'm brave enough to try and go for it again. They said I'd have to stay in hospital the night before to take the prep because of what happened last time, imagine that toilet wise! Still having a lot of problems soiling which is a nightmare.

Oh bless you. That’s not nice I know that sometimes they give enemas to those that can’t tolerate or haven’t cleared out properly but you run the risk of them not having a great view or getting far enough through the test. I hope everything goes ok for you!

 

[TheDragonWithAFlagon]

Just wondering has anyone refused to go on to steroids? Is there an alternative? I have UC diagnosed in March currently in flare (since last november) and still waiting to see the consultant. They have given me mesalazine but it's not changed anything. I'm already on a corticosteroid for a different illness and I really don't want more. I don't think I could handle it.

If it's the side effects of oral steroids that are the problem, you could perhaps have a long acting depot shot instead?

 

[Blahblah93]

I haven’t bought anything new as I haven’t a clue what it is I’ve just carried on with the peppermint

Yeah get some. It's just over the counter. Should sort you out

 

[Never in the World]

I rang 111 for advice and they didn’t give any but they’ve booked me a face to face at my own GP tomorrow which I’m grateful for

 

[Carapop]

No, I’m very lucky not to have any intolerances or allergies usually. Maybe I’ll switch to lactose free for a while, granted I just want to be able to have custard and rice pudding and stuff which has little nutritional value but maximum comfort food levels!

Ah but if you’re using milk then at least you’ll get the protein and calcium, rice has carbs and b vitamins, so its comforting and still providing nutrients. Are you feeling any better?

 

[ChiRie]

Reading all these issues you’re having and I’m sorry to all those going through it.
Spent some time reading through this thread and although I’ve never been diagnosed, I’ve had stomach issues my whole life. I also have Fibro so it’s hard to distinguish symptoms sometimes. My question is this - is it better to try and amend diet/stress levels first before getting investigated. I’ve had a couple bouts of food poisoning recently but I know my diet is terrible this may be a reaction to it, knowing I need to get my sh!t together (pardon the pun! Lol)

When I changed to a good diet due to being overweight and type 2 diabetic I went the complete opposite to soooo constipated I wished so badly I could go get it out. I'd rather the runs than that but now I'm back eating normally and embarrassingly soiling myself at night if I dare break wind. Having to get up and got the the bathroom each time just in case is annoying when I'm trying to sleep.

 

[Jellycat369]

I just googled the bike acid malabsorption and it does sound exactly like my issues!

Why would the doctor last year who did my colonoscopy not mention this to me? And the special test they can do it diagnose is?! NHS costing probably!

I’ve got another GP appointment next week to raise the issue with them again because it’s just getting silly. I have to wear pads daily now as my bum area constantly feels wet and I’m worried I am leaking poo.

(again I’m sorry to anyone eating right now ha ha)

I have proctitis so know exactly how you feel. I hope your appointment goes well and you get some answers.