Simply because I didn’t like doing it! I don’t mind needles at all but I couldn’t stand it
- Notice
Shoequeen91
VIP Member
I had really similar when I was diagnosed with Diverticular disease. Depending on how old you are it can be quite common and/or unheard of. I tend to have a lot of excessive trapped wind (mainly more so burping which makes me have chest pain and/or just general discomfort. Where is your back pain? Upper back or lower? (which I’m currently having quite a lot and then panicking thinking I’m having a heart attack)
Pain for diverticular is usually bottom left hand side. I usually have niggles in my lower left back too.
Hope you get it sorted x
Blahblah93
VIP Member
Has anyone had barbie but surgery?
No bug Lovely - fine within an hour or two. No Sickness or Diarrhoea since. Been to Dr's this morning, another stool sample - talks of a possible Allergy or IBD - but he is reluctant to say or treat as unable to pin point a trigger! Got to keep a food diary.
Sheva
Member
I'm wondering if anyone else has had a very bad time with IBS since giving up the Christmas treats and going back on plan? I have been off plan for a long time and went quite overboard and felt rubbish, but since resetting a few days ago I've been terrible. Normal reaction to a sudden change in diet? Also wondering if anyone has tried taking l-glucosamine for IBS and if it helped them at all, I read about this somewhere and picked up a bottle of 500mg today from Holland and Barrett, hoping it helps.
Hello Kitty
VIP Member
Does anyone suffer with recurrent UTI's with IBD? I have Crohn's and just had my 4th UTI this year. I've read it's common with IBD. If so, other than the usual 3 day antibiotic course, have you been offered anything else?
I’ve already had my flu jab and got a letter yesterday with an apt for my Covid booster on Wed. I have mixed feelings about it as along with others from work I have had terrible fatigue since my original jabs in Jan. I work in social care and it seems too much of a coincidence that we’ve all had the same side effect. I suffer really bad with fatigue and have low b12 and iron as it is
Jellycat369
VIP Member
At least they're not ruling anything out. Think I had that Coeliac test half a dozen times in the endSo after another flare up - I saw a Dr and he is suggesting IBS!? I’ve been put on peppermint capsules and Mebeverine which I’m to try for 3 mths! I’m to look at FODMAP but he thinks it’s more a psychological issue causing the IBS so has referred for CBT. I need to have my bloods done as he wants to check again for Coeliac - I’ve also got to have my ovaries looked at and my thyroid checked.
Hopefully the meds will help, if not the tests will hopefully either diagnose something or rule out something.
maytoseptember
VIP Member
In medical terms that’s known as “incomplete evacuation”. It’s definitely worth mentioning to the GP.
Begborrowsteal
VIP Member
Ive never been diagnosed but years of rushing to the loo with loose stools was obvious enough. Its settled down a little over the last few months, before that I was having a rotten flare up. I was fed up of rushing to the loo! Ive only noticed 1 definite food trigger, its hit and miss the rest of the time
Mollyoscar_
Well-known member
I thought i had a bug bite at first (it was summer time) my foot and ankle ballooned and i couldnt walk on it due to the pain. That same evening i noticed a blotchy red rash on my legs that spread scarily fast.
ThisIsMyDragName
VIP Member
Would it be possible to take a short course of a benzodiazepine or something similar in the lead up to a procedure just to try and relax you a bit? I’ve never had an endoscopy or colonoscopy but I feel like I would really struggle with either of these too!
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Interesting! My guts haven’t been good for many years (went alongside when my anxiety started to flare up) but since I had E. coli last year they’ve definitely been worse. May I ask what probiotic you’re taking? I’ve been taking one, which I ramped up ahead of going to the country I ended up getting E. coli from anyway, but I am not convinced it makes me better, I just also don’t think it makes me worse if that makes any sense.
Blairr
Chatty Member
I see endoscopy’s a lot where I work. Definitely take both the throat spray and sedation. The sedation given is the same amount as a colonoscopy. It’s enough to relax you and you will probably not remember much of the procedure. It wears off fast though but lasts long enough to get you through it.I’ve been having bad cramping in my stomach (left and right) and horrible pain between my boobs for a while now. I have been diagnosed with diverticular disease but my bloating is ridiculous. I’ve got an appointment for endoscopy on 16 November and I’m so unbelievably terrified. I’ve just read the leaflet that has come with my letter and I’m so torn between sedation or not.
Has anyone got any advice? Could anyone let me know what the tube is like? I don’t want to not have it but at the minute I can see myself pulling out due to worry. I’m being tested for IBD (purely precautionary) and my doctor thinks as it doesn’t look to be gallstones (USS clear but very gassy) that I could have gastritis and/or bad reflux but I’m being told the only the way they can check this is endoscopy. I’ve just tried for so long to not have anything invasive.
It’s pretty fast compared to a colonoscopy too!
Blahblah93
VIP Member
If you're unable to go to a+e ring your GP up everytime and ask for an emergency appointment.This is what I was thinking, but I’m on my own 99% of the time with a toddler. It’s just not practical to go to A&E. Im just fed up. I shouldn’t have looked on Google but I’ve got ALL the signs of IBD including the joint pain and fatigue. This bloody doctor didn’t even see mejust because blood test was fine, that must been I’m ok.
It took 8 months to get that appt on the NHS and after just 2 phone calls, it’s done and dusted with.
They have a duty of care and will soon get you seen. It's awful we have to do these things.
Same happened to me until I was hospitalised with sepsis and had to have emergency surgery to remove the majority of my bowel.
EllaEm87
VIP Member
As someone with IBD, I’m a big fan of the cherry one here. Not sure if it does much but it tastes nice!
Blahblah93
VIP Member
Is mebeverine prescription only or can you get it over the counter?
Does anyone else find that when it's really humid your IBS troubles flare up? I've felt absolutely fine all day, not eaten anything out the ordinary etc. Suddenly it felt really hot and humid in the office and my stomach was set off, major cramps and bloating. It never gets any less embarrassing.
Blahblah93
VIP Member
You need to specifically ask to be referred to a gastro doctor and request a colonoscopy. If they refuse tell them you want them to write down on your notes "refusing ongoing care to patient" - they do not like this and will refferal you.this was my original post with my symptoms.
New Reader Here... I've just been sent home from work this afternoon, as I have had sickness and diarrhoea - whilst this is happening I'm sweating profously and feel like as if I'm going to pass out... i have excruciating pain in my stomach just below my ribs... once the sickness and diarrhoea has stopped I need to lay on a cold floor to calm down... after a few hours I feel pretty normal - this has happened 4/5 times now - and Drs always put it down to Gastroenteritis!? Helppp!!!
I’ve been tested via bloods and stool samples for a Crohns, Coeliac and inflammatory issues (this was quite a while ago now) - these episodes I experience typically happen every few months and I go back to the Dr but he sits there rather dumbfounded!
edited to add: all results have come back normal!
Unfortunately within the world of crohns/uc you have to fight for ongoing tests, people wait years and then it gets to a crisis point where you're being admitted.
Don't take no for an answer. It's hard to advocate for yourself but you've got to. Do you have a family member or friend that can come with you? Sometimes it's easier if you've got someone in your corner.
Kittylover2019
VIP Member
I've not taken the vaccine at all.
I had Covid in July as did 4/5 family members, luckily it was in-between infusions. I was the worst affected unsurprisingly and was in bed for a week. Although the other 2 were in bed but for a shorter time and 1 had hardly any symptoms. I would say it was the equivalent of having flu.....real flu, I had it when I was 18 actually on my 18th Birthday so the memories are etched!
Now the 1/5 straggler has tested positive this morning on a PCR and my infusion is next week. I'll have to postpone by a week as it will be within the 10 days. I'm not worried though as after 35ish infusions I'm in remission and my body can withstand a little alteration here and there.
My infusion centre let's me jiggle appointments as needs be on occasion, ie a week early or a week late if needs be for holiday etc they are really good
I had Covid in July as did 4/5 family members, luckily it was in-between infusions. I was the worst affected unsurprisingly and was in bed for a week. Although the other 2 were in bed but for a shorter time and 1 had hardly any symptoms. I would say it was the equivalent of having flu.....real flu, I had it when I was 18 actually on my 18th Birthday so the memories are etched!
Now the 1/5 straggler has tested positive this morning on a PCR and my infusion is next week. I'll have to postpone by a week as it will be within the 10 days. I'm not worried though as after 35ish infusions I'm in remission and my body can withstand a little alteration here and there.
My infusion centre let's me jiggle appointments as needs be on occasion, ie a week early or a week late if needs be for holiday etc they are really good