I think I’ve mentioned this in here before but, I have hydrocephalus (a genetic disorder). I’ve had it since I was in utero. My parents were always told that if they had boys, one most likely would have hydro. Hello, here I am. My older brother (by 26 months and 7 days is healthy) they were told I’d be blind, couldn’t walk or talk and basically I’d be a piece of flesh. that assessment sent my father into a rage that he just could not accept. My parents worked very hard to give me the best life possible while raising 4 other kids at the same time. They sacrificed a lot. I think my father would have done anything to change the life I had growing up. He always had a hard time accepting my limitations and therefore didn’t teach me things I would need to succeed later in life. ( I learned by sitting on the sidelines watching him instead of hand over hand instruction). as my need for less brain surgeries over the years continued, my ability to do more increased. HS grad, associates degree, bachelor’s degree, learned to drive ( all things doctors said would be impossible for me). my biggest fear when I got married and had a child was that my child would have the same genetic disorder. Nope, he’s a happy thriving 9 yr old who’s loud as all get out ( loud noises drive me nuts as it’s part of my PTSD from being in a garage fire when I was 7).Well done for saying that. I can’t believe it when people say they wouldn’t change their kids with disabilities, why would anyone not want the very best life for their children. Who would want their children to struggle on a daily basis when they could lead a much easier life. In my opinion it’s a selfish thing to say, look at Abbie, why would a parent want their child to be like that if they could change it.
i guess the point of my ramble was that with my genetic disorder, my father did want the best for me but, didn’t know how to say or express it)