Thats so discouraging but I'm not surprised. When i got my dx, i asked what i could do to alleviate symptoms. I had a 3yo to look after.
I was told salt and water. Didnt really help. So my cardiologist reccommended for me to get a full body spacesuit
thanks doc. Ill get right on that
I have learned to have a stool in the shower, i sit on the toilet to brush my teeth. Im 34 in the body of someone much older. My heartrate gets up to 159bpm JUST STANDING CALMLY. I hate it. I feel so bad that i cant keep up with my kids. My 7yo doesnt remember me healthy. My 3yo will never know me how i was. Its sad but also good, i guess. They will never know