I've hesitated making this one several times but it seems Erin has upset a lot of people lately and there is a fair bit to talk about.
Oh gosh it really breaks your heartJust look at this beautiful family. They had no say in the hand they’ve been dealt. But this family has been so incredibly gracious. Their baby boy is riddled with cancer. I’ve never once seen them whinge or whine.
Erin needs to wake up to the fact that she’s incredibly lucky to be where she’s at.
Yep I mentioned that in the main thread - I seriously don’t understand that friendshipIt's been mentioned before but I really don't understand how some of the friends Erin has made through insta (my life of love, heart of harper etc) manage to stay friends with her. These ladies have lost their babies and whilst it would be sooo incredibly challenging to have a child like Lu, surely it must feel like rubbing salt in the wound when all Erin does is complain about the burden Lu is on her life.
Also with her anti-vax stance and disdain for medical personnel/medication.
I agree. Rachel to this day clearly honours and respects Mackenzie so much with everything posted about her, everything is so positive. Mackenzie had so many wonderful experiences and never once was presumed not competent to enjoy them alongside her family/they were adapted for her enjoyment, even right up until she passed.It's been mentioned before but I really don't understand how some of the friends Erin has made through insta (my life of love, heart of harper etc) manage to stay friends with her. These ladies have lost their babies and whilst it would be sooo incredibly challenging to have a child like Lu, surely it must feel like rubbing salt in the wound when all Erin does is complain about the burden Lu is on her life.
Also with her anti-vax stance and disdain for medical personnel/medication.
That is such a good way of framing it - Rachael and Johnny adored Mackenzie, disability and all, whereas Erin apparently has never smiled since Lulu came along. It’s awful.And honestly, what awareness has been raised? That having a disabled child is a miserable experience filled with only negatives, and people with disabilities are a blight on lives of their families who deserved better and who can now never smile? Absolutely duck off mate. Very sick of these Instagram people profiting off their children's personal medical information that should never have even been a topic for public consumption. Looking at you too, eyebrows.
P.S disabled people are bleeping excellent and full of competence, and joy, and fun when you stop looking at them with ableism! (obvs directed at ERIN lol)
I agree. Rachel to this day clearly honours and respects Mackenzie so much with everything posted about her, everything is so positive. Mackenzie had so many wonderful experiences and never once was presumed not competent to enjoy them alongside her family/they were adapted for her enjoyment, even right up until she passed.
She recently put up stories saying that they decided to stop Lulus meds as she had been doing so well in regards to seizures.Can anyone share the whole “took her off meds without consulting doctors” on here? Seems pretty relevant if anyone stumbles across this thread
Actually, even worse, she stopped the medication because Luella was having an increase in seizures after ceasing the steroid, and they were suspicious that the increasing seizures were a side effect of the medication. So med was ceased and the seizure activity worsened exponentially, so they realised that the med was actually helping and recommenced it.She recently put up stories saying that they decided to stop Lulus meds as she had been doing so well in regards to seizures.
She didn’t say they were weaning them but said stopped.
These kind of meds you don’t just stop.
She then said basically as soon as they stopped them her seizures started going crazy again and since then they haven’t been able to get in control of them again.
Oh god I forgot about that email. She then posted it on social media for everyone to read. This was when she was first starting her account and was shared by a lot of bigger names andAbandoning your kid with gastro and farming her off to a paid worker is not bleeping on. Doesn’t cut the mustard. You do not turf sick children onto other people. It’s YOUR KID. You put on your big girl boots and get on with it.
Added: and you are not shopping for treatment. You are accessing largely free and world class medical care. I am stunned she tit canned a neurologist by email who gave it back to her. Calling it medical gaslighting when you just dismiss medical professionals who *gasp* know about epilepsy a little more than you do, is bleeping rude. She has nothing positive to add. I would respect her if she was a rude person being dogged in advocating for her daughters needs, but she offloads her.
She checked out from Luella a while ago. Very obvious just based on her posts.I still can’t get over her isolating from her sick daughter, so sad.