Anyone else get a bit of puke in their mouth with Erin's "Done for Lulu" plaque that she had designed to hang her running medals on? No, Erin, you are not doing this for Lu. You running benefits her in exactly ZERO way. It does not improve her quality of life. It does not give her quality time with her mum, it doesn't even raise awareness. It does exactly nothing for Lu, at all. Someone should gift her a new on that says, "Done for Erin, and Erin Only" lol.
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THIS. It is all done so Erin can get pats on the back.
Well said above poster. This Women is bleeping vile.
I mean this in the nicest way possible but did Erin genuinely ever think that Lu would attend a mainstream school? It shocks me that you can be so oblivious and in such denial. My son is Autistic and has an Intellectual disability, he did kinder in a mainstream school but it was evident over that time he needed to be in a specialist setting. Were there tears? Ofcourse there were that's only natural, there were so many unknowns, but watching him flourish it was 100% the right choice. The mainstream school said that they would never turn him away but they were truthful in that they just couldn't give him the support he deserves and I completely understood that as hard as it was to hear that's the reality. She just doesn't seem to grasp or want to accept that this is her future and she seems almost angry and annoyed that the education department has told her mainstream isn't the best for Lu? Were you seriously not expecting that given her conditions? 
Given how late she started actually investigating schooling options, I think she thought Luella would just not attend school. 
It explains how ableist Erin is. Genuinely doesn’t occur to her there is a need for specialist schools.I mean this in the nicest way possible but did Erin genuinely ever think that Lu would attend a mainstream school? It shocks me that you can be so oblivious and in such denial. My son is Autistic and has an Intellectual disability, he did kinder in a mainstream school but it was evident over that time he needed to be in a specialist setting. Were there tears? Ofcourse there were that's only natural, there were so many unknowns, but watching him flourish it was 100% the right choice. The mainstream school said that they would never turn him away but they were truthful in that they just couldn't give him the support he deserves and I completely understood that as hard as it was to hear that's the reality. She just doesn't seem to grasp or want to accept that this is her future and she seems almost angry and annoyed that the education department has told her mainstream isn't the best for Lu? Were you seriously not expecting that given her conditions?
Exactly. Kicked and screamed to get full time round the clock care for her child so she doesn’t have to do it, yet thought she was going to go to mainstream school? Lol.I mean this in the nicest way possible but did Erin genuinely ever think that Lu would attend a mainstream school? It shocks me that you can be so oblivious and in such denial. My son is Autistic and has an Intellectual disability, he did kinder in a mainstream school but it was evident over that time he needed to be in a specialist setting. Were there tears? Ofcourse there were that's only natural, there were so many unknowns, but watching him flourish it was 100% the right choice. The mainstream school said that they would never turn him away but they were truthful in that they just couldn't give him the support he deserves and I completely understood that as hard as it was to hear that's the reality. She just doesn't seem to grasp or want to accept that this is her future and she seems almost angry and annoyed that the education department has told her mainstream isn't the best for Lu? Were you seriously not expecting that given her conditions?
Just another perfect example of how ignorant erin is.
We have a complexly disabled child with more diagnoses than Lu and yep we’re looking at specialist, that’s why they exist!?
I can’t believe she was crying about it on her stories. Like… what does this witch need to make her happy? She has more support than anyone i know or know of (and i know people far more impacted than little beautiful Luella) and is still such a whinging sack of tit.
Luella is the one i feel sorry for. Having that as your mother. Sheesh.
She only made the phone calls so she could drag out content. Also, why ring the Department? Call the schools? Lol.
she’s so out of touch.
Then now just posted about the run she is doing for epilepsy and said all the things Lu can’t do… can’t walk, can’t talk, can’t feed herself…I mean this in the nicest way possible but did Erin genuinely ever think that Lu would attend a mainstream school? It shocks me that you can be so oblivious and in such denial. My son is Autistic and has an Intellectual disability, he did kinder in a mainstream school but it was evident over that time he needed to be in a specialist setting. Were there tears? Ofcourse there were that's only natural, there were so many unknowns, but watching him flourish it was 100% the right choice. The mainstream school said that they would never turn him away but they were truthful in that they just couldn't give him the support he deserves and I completely understood that as hard as it was to hear that's the reality. She just doesn't seem to grasp or want to accept that this is her future and she seems almost angry and annoyed that the education department has told her mainstream isn't the best for Lu? Were you seriously not expecting that given her conditions?
It’s always CAN’T when she has posted videos of her actually doing these things with assistance. But then wants her to go to mainstream school.
She probably assumes that Lulu won’t ever work or contribute to society or possibly live to adulthood so why bother with school. Like I’m not trying to be funny or anything, I imagine this was genuinely her line of thought. Awful woman.
I forgot she posted this today but absolutely yes to all of the above.
With the amount of times she bangs on about how much help they need with Lu, did she expect that a mainstream teacher with 30+ kids per class could handle Lu’s complex needs.. IF SHE CANT??
It’s a tough reality check, I know. But damn it Erin.
With the amount of times she bangs on about how much help they need with Lu, did she expect that a mainstream teacher with 30+ kids per class could handle Lu’s complex needs.. IF SHE CANT??
It’s a tough reality check, I know. But damn it Erin.
Well precisely! This is mind boggling that she assumed Lu was going to be able to go to a mainstream school.
She already needs specialized 1-on-1 instruction to assist her movement, specialized 1-on-1 instruction to learn, specialized equipment to move through her environment and Erin needs specialized careers for her at home around the clock and YET … Erin thought she’d be able to assimilate into a mainstream school??? That a teacher with a classroom full of 20-25 kids was going to be able to give Lu the guidance she needs? That’s next level delusion.
I guess we’re seeing the selective reality she lives in in action again. The same selective reality that enabled her to ignore the fact that Lulu needed crucial surgery that she ultimately denied her.
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I think probably also Erin thought that she herself deserved the experience of mainstream school and befriending mainstream school mums, her own ableism probably was horrified at the thought of befriending other families with disabled children. Probably no one will like her anyway at either school when her true colours come through.
She is the worst disability advocate/board member for Epilepsy Australia. She doesn't want anything to do with disabled people and doesn't associate with anyone who has disability. It's so awful to watch, everyone is right, she is way too 'embarrassed' to mix with parents at a non mainstream school. Absolutely disgusting.
This. Her level of delusion is truly next level. Also was she not looking at this last year? Why is she only talking to Dept of Education almost halfway into Lu’s kindy year? She loves to fart around on anything that has to do with helping Lu thrive yet claims she just wants her to go to school where she will thrive. Make it make sense.
100% agree with everything here. She's the worst candidate I could think of to represent the epilepsy community.
That video of her listing off all the things lulu can't do is just disgusting. Isn't that what you're fundraising for Erin....so research can be done to find out more about epilepsy and so children like lulu can get more support and funding etc so they CAN possibly walk and talk and be more independent???
Are you forgetting lulu has taken her first steps, she is trying SO hard in therapy with the amazing team behind her (not her parents) and is just an amazing little girl... surely you could list a few of the amazing achievements she can worked so hard for as way of saying please donate so lulu can reach even more of her goals and smash the glass roof that epilepsy has put above her???? Erin....wake up!!!
I didn’t watch the video because she annoys me with her axe to grind face, but why can she never ever talk about what Lulu CAN do. She was feeding herself the other day, she has walked, she does communicate. Why can’t she focus on that, and on how more funding could allow even more progress. She is the epitome of a glass half empty person.
why isn’t Lulu ever in therapy with other children to interact with? I’m doing placement for OT at the moment and we encourage clients to interact and play with each other. Instead of doing the intensives all the time, why don’t they do weekly sessions with other children in the room? Does Lulu have any friends of a similar ability, or do they only allow her to interact with ‘normal’ children?
why isn’t Lulu ever in therapy with other children to interact with? I’m doing placement for OT at the moment and we encourage clients to interact and play with each other. Instead of doing the intensives all the time, why don’t they do weekly sessions with other children in the room? Does Lulu have any friends of a similar ability, or do they only allow her to interact with ‘normal’ children?
I could have sworn we’d discussed all of this before and I assumed it was when Erin was considering her options last year, but I think it was just us wondering why she hadn’t looked at options for her yet when it was obvious she’d need a special school
Erin isn’t a glass half empty kind of person…. Her glass is just empty… everything about Lu is viewed from a deficit perspective. It’s actually heartbreaking. No wonder Erin is do bleeping miserable all the time. It must be exhausting hating the world so much.
It’s so depressing because Lu is such a bright little spark and so full of life. Imagine what she could do with a supportive family behind her.
I’m really sad for Lu after reading Erin’s latest post. She feels there’s no hope and they’re just floating along.
She doesn’t acknowledge all the achievements Lu makes such as kinder, progress at NAPA etc. She doesn’t seem to look for ways to keep Lu entertained and engage her in activities/life in general.
I feel like Erin would only ever be happy if there was a cure for epilepsy, and will never accept Lu’s path in life with any disabilities.
She doesn’t acknowledge all the achievements Lu makes such as kinder, progress at NAPA etc. She doesn’t seem to look for ways to keep Lu entertained and engage her in activities/life in general.
I feel like Erin would only ever be happy if there was a cure for epilepsy, and will never accept Lu’s path in life with any disabilities.
The reality is that even if there was a cure for epilepsy that would stop Luella’s seizures tomorrow, the damage that’s already been done by the condition would still leave her severely impacted. Yes, removing the seizures would allow her to progress in a more linear way, and retain the skills she’s working so hard to learn. But she wouldn’t be ‘normal’ overnight. I think Erin is holding out for a magic wand that she can wave and Luella will magically be a ‘normal’ four year old and this mentality is what’s keeping her miserable, stuck focussed on the deficits and holding everyone, but mainly Luella, back from living a really full life.
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