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Kids are actually the best at inclusion. It’s their parents that are the horrible ones that teach them otherwise, but for the majority, kids don’t see differences. My kid has no interest in other kids and is quite obviously disabled, and has one “friend” who he mildly tolerates, but his kinder group don’t bat an eye at him for all his differences and struggles, they actually try really hard with him. Erin is *that* parent! She sees her own daughter as “less than”, so she expects everyone else does. Another thing that is Erin’s doing.
And why the duck has she never been to kinder to support her own daughter????? I’ve attended with my son all year, i could not IMAGINE having a paid person do it every single session. Wtf.
She really did go on to do one more whole night to Ask Me Anything questions when the first round made her look like a total asshole. She obviously has a lot of brown nosers in her DM’s who validate the tit she puts out there for her to not realise she is a toxic cow.
I still don’t get how on one hand she’s saying she literally can’t even drop Lulu at preschool, and then a minute later still talking about sending her mainstream??
Also, I have a four year old. At that age they are sweet and smart and curious and non-judgmental. Kids would absolutely go to a party for Lulu and play with her. How heartbreaking to just completely write her off like that.
Also, I have a four year old. At that age they are sweet and smart and curious and non-judgmental. Kids would absolutely go to a party for Lulu and play with her. How heartbreaking to just completely write her off like that.
I still don’t understand what is actually happening with Lulu that she can’t drop her off? What is it exactly that requires constant one on one attention? I get not leaving her on her own (although Erin talks about leaving her…so…), but why couldn’t you manage Lu and a baby? I honestly don’t get it.
In other words, no he’s not. Nice that they can afford the full fee daycare 
My child is autistic and is in mainstream, but in kindy he went to an educational support school to gain extra skills to help with the mainstream environment. We met some amazing families who are our good friends, our kids go to each other's birthday parties and we often have play dates. Sure they play side by side but they all look forward to it. We all vent to each other, celebrate our kiddos' successes and share advice and resources. Erin is missing out on an incredible community that Lu could introduce them to if they looked at a specialised school. Why she's pushing for mainstream, I don't know. Is it because it becomes another system to be outraged with when they can't accommodate her? A special school would know how to teach her and to play on her strengths. Why not give your child the chance to be her best self in the right environment? It's sad.
So she’s managed to organise a spot for Tom at day care, starting next year. But has does sweet duck all about looking in to school for Lu? That is bloody terrible. Saying someone finally gave her direction on what to do. Why hasn’t she already done this work, called schools and worked out what the process is? If Lu didn’t have epilepsy, Erin would have had to enrol her in a school. It shouldn’t have just been disregarded because of Luella’s disability.
So awful wheh she has the privledge of not needing to work that she prioritises a place for her 1 year old to attend pre -school, but hasn’t even thought to research… let alone enrol her soon to be 5 year old for school. Knowing she will at the very least need an SLSO for Lu. She is fkn unreal ! But so is Dave. He facilitates all this and doesn’t stand up for Lu either. That poor baby girl.
Also does anyone know that epilepsy actually causes low muscle tone? Or has she made that up ?
I have always thought Lu has another diagnosis but Erin won’t go there. It’s always the epilepsy caused by the vax or birth injury. She is also very cocky w Tom.. saying he is developing typically.. my son was too at that age. It was only once he got to beyond 18mths I noticed that he wasn’t talking or even babbling etc when my other kids well and truly were at that age. Tom doesn’t appear to be communicating any more than Lu at this stage.
Also does anyone know that epilepsy actually causes low muscle tone? Or has she made that up ?
I have always thought Lu has another diagnosis but Erin won’t go there. It’s always the epilepsy caused by the vax or birth injury. She is also very cocky w Tom.. saying he is developing typically.. my son was too at that age. It was only once he got to beyond 18mths I noticed that he wasn’t talking or even babbling etc when my other kids well and truly were at that age. Tom doesn’t appear to be communicating any more than Lu at this stage.
Do you know what makes me irrationally angry? Pictures of Dave. Grinning like a fool. Knowing that he is the only defense that Lu has against her psychologically damaged mother and he is enabling all of it. He has the power to change that little girls trajectory and he’s not. duck that guy. Now when I look at him all I see is a goofy-ass giant thumb with teeth.
As irritating as they are to read, her second round of Q&As have given me a little insight into what they might be thinking by not preplanning for a stair lift and putting Lu in a bedroom downstairs.
She says here that they can’t leave Lu at all at night because she can’t self soothe when she wakes up and continuously cries out. So why then would you put your daughter’s bedroom on the ground floor and yours upstairs? She goes on to say that she is constantly on edge parenting Lu and feels pressure to not miss a beat with her. Again, why would you have her sleeping on another floor of the house then? Especially when there is the risk of her dying suddenly w/SUDEP? I think the hope might be to get a night nurse in every night and shut her away in the room with Lu downstairs so that she and Dave can’t hear them and don’t have to be bothered.
She says here that they can’t leave Lu at all at night because she can’t self soothe when she wakes up and continuously cries out. So why then would you put your daughter’s bedroom on the ground floor and yours upstairs? She goes on to say that she is constantly on edge parenting Lu and feels pressure to not miss a beat with her. Again, why would you have her sleeping on another floor of the house then? Especially when there is the risk of her dying suddenly w/SUDEP? I think the hope might be to get a night nurse in every night and shut her away in the room with Lu downstairs so that she and Dave can’t hear them and don’t have to be bothered.
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I feel like her ignorance over the whole schooling situation speaks volumes to her complete lack/refusal of acceptance of this is who Luella is and her reality. Yes it’s crappy, yes you wish it was different, but that doesn’t change that this is the reality. And by not accepting it she is missing out on celebrating all the wonderful things about Luella. Her deficit mindset is probably the worst thing about her.
For duck sake woman find some positives and joy no matter how small they are because you’ll be a miserable witch the rest of your life if you don’t.
For duck sake woman find some positives and joy no matter how small they are because you’ll be a miserable witch the rest of your life if you don’t.
Maybe he is absolutely dying inside, barely holding it together. He may be an absolute shell of a man. Smiling in a few pics on Instagram doesn’t indicate his state of mind I don’t think. We also don’t know his view on things, how much he fought for the surgery, how much he trusted Erin. I feel for him.
Yeah the encephalopathy will cause the hypotonia, as well as the limb rigidity (when she extends her arms and locks her legs) and involuntary movements. Her diagnosis has affected every part of her development
.I would be interested to know what her plan is if she is sending Tom off to daycare. Probably have the carers looking after Lu and then hanging around doing whatever she wants under the guise of needing to be present.
I would also put money on her having bullied a doctor to get a medical exemption for Tom, so they can get the subsidy. 100000% Erin would do this.
Her comment about the birthday party made me so sad… she feels that way because SHE would never take her kids along to a party of a kid like Luella. Kids do not care if a child engages back, they will engage and include anyone. I’ve seen it with my own kids, they’re naturally curious and want to know about kids living with a disability, and Luella would benefit so much being around other kids.
The other part of this is that if Erin had spent time taking Luella herself to get to know the parents in her class and building that relationship then they also would have made an effort to come along to a party for Lu.
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