Erin - Little.Lulu.Love #3

[EggCarton]

Tom walking to hand Dave a gift, "I so wish both our kids could do this for you."
It's just...why does she have to always look at Lu through such a deficit focused lens. The NDIS and society in general will do this, because this is all they know. Has she not discovered the social model of disability, or the neurodiversity movement? #advocate, right.
Lu is RIGHT THERE. In the photos she's shared today, Lu looks happy, cheerful, cheeky, engaged in what she loves (Wiggles, toys, climbing the play couch that Erin always pulls her down from), regulated....all the things a parent could ever want for their child. But all Erin sees is the fact that Lu is not walking. UGH.

What will it take to get through to her? She is going to spend Lu's entire life wishing Lu were different. & she's going to miss out on the sweet, cheeky, determined little girl she is. THAT'S the real tragedy. Not disability. Not epilepsy. The real tragedy is Erin.

 

[EveryDaysASoulDay]

She looks like a Chris Lilley character in the photo.

STOP. IT.
omg.

 

[EggCarton]

What an abhorrent human.

My disabled child is 6m older than Lu and he is the light of our lives. Environments that he can’t tolerate are….wait for it…environments we don’t frequent. Guess how many family holidays we have had since he was born? ZERO. Why? Because it’s too hard and would be thoroughly unenjoyable for him. But we are not miserable! Because we do tons of other things in Sydney, and we celebrate all the things he can do and all the things he loves, because we would do literally anything to see him happy.

Grandparents take our other children to things our son would not enjoy/can’t tolerate. My other kids don’t miss out. But even if we didn’t have grandparents to take kids on those adventures I am raising children who would choose to stay home with their brother if the alternative was a ‘family activity’ without him.

Erin and Dave are disgusting excuses for parents. Money cannot buy class.

 

[jumble]

We went on a family holiday with my 4 year old son. It was a nightmare we couldn't keep him contained. We spent the whole time chasing him. Even when chasing him he would duck behind a caravan and we would loose him. He doesn't answer to his name when we call him. He has no safety awareness about cars despite warning him a million times. After a week we'd had enough so we dropped him back at my mother in law's for the second week. I don't feel guilty for doing this. It was actually great being able to spend quality time with our other children. I don't judge Erin for wanting some time with her son.

That’s not the same thing though.. it’s not the fact that they had a break, no one would begrudge a family a break, but Erin has breaks ALL THE TIME. She doesn’t take Lulu to therapy, the most she does is take her on a swing at the park. It’s the constant negative mindset when it comes to Lulu, the constant complaining about sleep, about Lulu being unhappy, about doctors, about how she never has a break from Lulu when all we ever see is Erin having a break from Lulu.
Also, I do find it cruel to leave one child at home under the care of carers while taking your other child and acting happier than you’ve been since the last time you had a child free holiday. They went overseas with both kids not that long ago.
Erin is a nasty piece of work, and if you think it’s us criticising an involved mother who supports her child, and who needed a break from the constant care she provides, and who has to have her son looked after by friends or family while she takes her disabled daughter to intense therapies, then you’re not seeing what everyone else can see, because Erin literally does none of that.
A mother like Rachael, when Mackenzie was alive, needs respite, not a mother like Erin who only feels sad for what Erin has missed out on.

 

[ljch]

This is such an odd post considering Lulu is alive. Also your girl could always be with you if you went on inclusive holidays.

 

[EggCarton]

Anyone else get a bit of puke in their mouth with Erin's "Done for Lulu" plaque that she had designed to hang her running medals on? No, Erin, you are not doing this for Lu. You running benefits her in exactly ZERO way. It does not improve her quality of life. It does not give her quality time with her mum, it doesn't even raise awareness. It does exactly nothing for Lu, at all. Someone should gift her a new on that says, "Done for Erin, and Erin Only" lol.

 

[trish_allstar]

Erin, I've made some corrections for you.
Now before you come as me, I am a mum of 3 with post natal depression/anxiety I know too well that life is not all sunshine and rainbows BUT you really are like a black cloud. Appreciate those children, appreciate the little things, enjoy time together, look at how incredible it is you all got out of the house together. Any mum will know and appreciate how difficult that is alot of days. Stop the negative narrative and maybe you'll enjoy life a little more.

 

[EveryDaysASoulDay]

It’s her duplicity about it all that is so psychotic. She starts out pretending to be really upset about their predicament but then gets around to admitting that they made an intentional decision to go someplace that Luella could not tolerate to have a one-on-one vacation with Tom. She admits that they consciously excluded Lu when it would have been just as easy to include her and choose another destination. (Read: they wanted to be able to pretend that Luella doesn’t exist, that they are the perfect “normal” family of three, if only for a few days.) While in the same breath playing victim, and pretending that it was a heartbreaking thing to be forced do. Just not heartbreaking enough to make the very easy choice of a family vacation that everyone could enjoy. God damn this woman is ghoulish.

 

[beebop88]

Also, I would be so embarrassed to admit that I’d never been to my own daughters preschool, everything she says just makes her look like a piss poor excuse for a mother.

 

[Maisiemouse]

Seriously what the actual FUCK is her problem.

- Daughter is born with epilepsy.

--> Advised to have surgery as she is drug resistant and this gives her a shot at living a normal life.

--> Advised to have surgery ASAP as it is contained to one lobe and is an option whilst the other lobe is mostly unaffected.

--> Advised there is a time constraint and it will eventually affect the other lobe making surgery no longer an option.

--> Waits 3 years "making her decision" because it is "barbaric" to have the surgery. Waits until seizures reach a critical point before deciding they should probably go ahead.

...Oh no- the other lobe is affected?! And now surgery is off the table?! And now the neurosurgeon won't continue to see us?! What do you mean there is no other treatment option?????? The AUDACITY of the medical team. Australia is ARCHAIC.

Guess we should probably go overseas for brain surgery because Australia is so far behind in medical advancements .

Spoiler alert: Of course she will ask for funds and bitch the entire time about how Australia refuses to treat her daughter because her epilepsy is "too advanced" and she has been failed by the medical system and all the children's hospitals.

 

[Moomin_mama]

Erin feels like she’s coming down with something so has ‘jumped straight on the antibiotics’ - ?! And so annoyed that Lulu is immune compromised and gets sick all the time, but has started sending Tom to daycare unnecessarily. She’s going to love those germs that he will start bringing home! (No shade on anyone sending kids to daycare, we do, but if I had an immune compromised child and didn’t need to work I think I would hold off as long as I could).

 

[santababy]

The issue isn’t the respite, it’s not them having a break. Being a medical parent is tough. The issue is Erin constantly banging on how she has no “village” no help. But is always posting her alone time on runs, the night nanny, the support workers doing the overnights.
That’s the issue, have your respite absolutely but stop harping on about how against the world is to you

 

[emmygluewho]

The absolute irony of her crapping on about where money goes during fund-raising!? What about the money from your GFM Erin!? Meant for surgery!? Many who donated have asked but got ignored.

Glass houses.

 

[just taking a break]

Jesus. A family holiday without your daughter? That’s like my husband going away for a romantic weekend without me.
And sure, holidays are nice but they are not a requirement. To me this is simple, they wanted a holiday, Luella makes it hard so they leave her behind. I mentioned many threads back that I agreed with other tattlers that Erin would be ok with Luella dying and I still think that. Also agree that if institutions were still around that’s where Luella would be, and they would visit once a month on a Sunday afternoon and believe they are “doing the right thing”. Erin’s disabled daughter ruined the perfect life she thought she was entitled to and she resents Luella for that. Erin really gets under my skin because I have epilepsy, diagnosed as a small child and can’t help but think about how I would have felt if my parents took my other siblings away on a holiday without me because of my condition. Most disabled kids already know they are different and as they get older can often feel like a burden on their families (I did) - this is how Luella will feel as she gets older, even if she can’t verbalise it, she will know and will also sense the resentment from her Mum.

 

[screenfreelookatme]

I don’t think she’s reading Tattle. I think she is (quite rightly) getting slammed in her DMs.

 

[moulindickehead]

Erin is the one that wants to send Lu to a mainstream school! Not that she had looked into schools properly yet . It’s just setting her up for failure in so many ways. Special education schools really are special.

I am a neurodivergent teacher in an alternate school setting for primarily neurodivergent kids! We fucking love a good party, and do anything and everything to celebrate and validate the diversity and variety of all of our people every chance we get.

Ignorant Erin can fuck right off, the only barrier to inclusion here is her attitude and ableism. She is deep in the stage of denial, but I have no sympathy left because other ignorant people will see her posts and think it’s permission to see being disabled as nothing but a tragedy.

 

[mrsnarky]

Nah Erin. Tom isn’t starting ‘pre school’. He’s starting daycare. It isn’t a dirty word

This! There’s no “pre school” for a 1 year old. Wouldn’t be an issue that she’s put him in care if she was actually doing anything for Lu or working but she’s not.

So now she’s got Tom in daycare, carers day and night for Lu plus grandparents. The absolute privilege and she dares to complain about needing a break.

 

[muchsmartmanybrain]

Wow. An absolute new low. So she books a holiday to the Gold Coast knowing full well it’s hot, has sand which according to her are the WORST kinds of environment for Lu - so she leaves Lu at home. What the HELL. I am mortified!!!!!!!!

 

[snarklife]

Excellent summary and thanks for the new thread @santababy. Some other comments

-It appears Erin never looks after her two children by herself and blames “their different scheduling needs” as the reason why.

-Despite having one on one support workers during the day and night to assist Erin with L’s care. Erin wants L to go into mainstream schooling and clearly has not engaged with EDCP for L (or whatever NSW version is called)

- They have an architect and interior designer for their Sydney build but haven’t consulted with an OT

- it will be interesting to see if the new carer films enough content for Erin to post and pass off as though she was there for the moment like she did with C.

- Erin is delusional and will say things like L will never independently eat or walk whilst showing videos of L in a walker or chewing and swallowing food (I get not completely independent but still not the vibe she’s describing)

I came here at the start of the Q&A last night but had to stop reading her answers as it was too much.

I have a 2 yr old and a baby. My 2 yr old has complex medical needs which include seizures, tube feedings, oxygen support, and at this stage cannot sit independently let alone walk . He is also the cheekiest funniest little dude and made our lives infinitely better - both our kids do. I’m so lucky to be their mum.

I hope any of her new followers from the recent podcast got an insight into what a sad and horrid person she is through her answers last night.

I also hope C left for a better employment opportunity and that it wasn’t due to a toxic workplace. The way Erin put her on blast was awful I’m still shocked.

 

[Jane T]

It is horrifying. I have actually been re-reading the older threads and I cannot believe EAA would have her on their board. Some crackers -

- didn’t get the proper motherhood experience with Luella, and finally did with Tom
- would not have had Luella if she knew then what she knows now
- works against every single specialist (some of which I have had the absolute pleasure of working with due to my daughter also having a disability)
- shows off designer gear in the thousands yet had a GFM
- said that Dave still loved Luella despite her disability (Father’s Day post)
- said that the 1000 days she had spent with Luella (up until that point) were hell

That’s not even scratching the surface. Absolutely repulsive behaviour which has made me, as a mother of a disabled child, feel like absolute shit that she thinks of disabled kids like this. EAA should be ashamed.