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Kim Mild

VIP Member
I've had a bit of a day today and it has properly exhausted me. I forgot my bag , and phone when I went out, I drove to somewhere I don't normally. We went to the cinema, which is a sensory nightmare. I hate the surround sound , and hate the way the screen makes me feel disorientated. I also felt quite trapped in the auditorium.
I can't do anything else today as I feel like I have to recover from all that .
 
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soph30

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Wow is there really a cross over between ADHD and autism? I feel ADHD's more accepted in the media these days
 
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shadowcat5

VIP Member
hey guys,

another tattle user directed me here, i’m going to copy and paste what i put on another thread about my son and add some bits in, i’d be really appreciative of any advice please.

my son is 5 nearly 6 and is on the verge of being excluded from school and i don’t know what to do anymore, i’ve tried everything possible including getting him assessed but the GP won’t even entertain an appointment with them until he’s 6 let alone a referral.

He doesn’t sleep, no matter what i do or the routine he just does not sleep until he’s at the point of exhaustion where he pretty much collapses.

he has an obsession around any technology mainly phones, computers and watches but even down to things like smart meters. He doesn’t have access to anything other than a TV so he will constantly draw the items he is interested in and if the slightest thing on the drawing is wrong he will have a melt down.

He also likes to know exactly how things work and operating systems etc and is extremely knowledgeable on anything to do with technology.

he constantly puts things in his mouth, he will have meltdowns over certain foods, when he has a meltdown he will kick, scream, bite, scratch and throw things.

He doesn’t seem to have an “off” switch, he talks and it’s like his brain goes a thousand miles an hour and he will talk and talk about his subject of interest but is not engaged when something else is spoken about.

he constantly and consistently interrupts conversations and has no perception of personal space with anyone.

sorry for the long post and thanks for reading x
Hello, it’s me from the other thread. I will reply here as there is more information!

It sounds like ASD to me.
Disclaimer: please don’t take this as me telling you how to parent. You sound like a wonderful mother who loves her son and I’m not a parent. I can only go off what did or didn’t help me as a kid. I am no expert in neurodivergency either, I am solely speaking from my own experiences. I will caveat my thoughts with my own experiences. Also be prepared for lots of questions lol.

Firstly, does his school have a sen/senco team? What are the school saying about his behaviour? How big is his class? What kind of activities does he do? Does he play with the other kids? I am wondering if his kick offs at school are from being overwhelmed with the noise and the attention needed to sit and listen. I vividly remember being his age and hating break time and anytime we had to sing cause there was so much noise but not consistent noises. It was so many different noises. I am wondering if there is someone available to remove him from the room when he’s struggling.


I have no advice about the meltdown when not getting things right because I only learned to let that go as an adult. That said, is ethereal someone where he can go with the meltdowns? Somewhere safe where he can just let go and not harm himself or anyone else. I wish I could tell you how to stop them but in all honesty, I’m 20 years older than your son and I still have moments where I just want scream the place down.

Have you ever done a reward type thing with him? Let me explain, I have a family friend who was a foster career and she would use teachable skills as positive reinforcement. So basically x amount of behaviours gets you x thing. Not like potty training though, more like in your sons case, if he doesn’t interrupt when someone is speaking he gets to do something like look at the smart meter and touch the buttons. I have 0 idea if it’ll work cause the kids she had had behavioural issues from being neglected so she would have things like “i showered every day”, “I brushed my teeth” “i peed in the toilet” which were things they’d never been taught. obviously your little one doesn’t need that but I’m wondering if the positive reinforcement of life skills would help him. He might be a bit young for it but he sounds very bright from what you’ve said.

Does he have a watch and could you get him a watch? Not a smart one or anything, but maybe one of those fan dangle ones with buttons on the side, they sell them in Argos.
I am wondering if a watch he can play with could be used as a calm tool. also could be a reward thing for him.

For putting things in his mouth have you looked into chewable jewellery? He might be an oral stimmer so using his mouth is what’s calming him (i am one of these but I like to repeat words)

As for the sleeping, what’s his room like? Is there too much going on in there? E.g. walls are too colourful, curtains not dark enough, too many toys. What exactly is he doing when he’s not sleeping? Is he running around? Is he coming out of his room?

Also, does he like blankets/heavy clothes?

I hope you don’t think I’m saying you’re doing anything wrong cause I DO NOT think that all. It’s just really hard to understand if your brain isn’t wired up that way ❤❤
 
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soph30

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he is so so intelligent honestly, he is super smart he catches on to anything he is interested in immediately and he writes and reads so well too and can speak very well for his age
If he is diagnosed with Asperger’s don’t despair, neurodiversity is honestly a difference not a disability. I can think of at least ten CEOs and tech genuises with Asperger’s. The world can be cruel but he’ll be fine. And don’t listen to mumsnet etc as gospel truth, I saw one thread where they were saying dyslexic kids had to go to special schools and it’s such shite :)

I’d be a little careful about jumping to conclusions about things as well. Take advice from professionals, but be aware they’re sometimes working off a checklist. For example I’m dyspraxic, not autistic, and it was thought I was autistic for years as I wouldn’t play ball games in the playground. I didn’t like the games because I found the coordination aspect difficult, nothing to do with the other kids. It’s sometimes obvious there’s a ‘difference’ but not how severe it’s going to be- for example I wasn’t great at eye contact up until like age 11 but was fine as a teen :)
 
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soph30

VIP Member
I know this isn't what this thread is for, but I'm parent to a neurodiverse (non verbal) child and it's really interesting to read this and see why he may struggle with some things and why he does certain things. Very enlightening reading, thank you.
Oh no you’re welcome! 🤗

Raising awareness is so important, there’s still not enough out there
 
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Melian

VIP Member
This is going to sounds strange but I’m wondering if anyone else has this (very first world and pathetic) issue.

I really find it hard to find things to watch. I feel like there is almost too much option between TV with hundreds of channels, all the streaming services, on demand and YouTube. I spend most of the day just flicking between all of them. Now I’m pissed off because it is
4pm and I’ve wasted yet another “chill in front of the tv” day doing nothing.
Oh yes! Got a lot of stuff recorded too. I then end up watching repeats of Policec Interceptors or Traffic Cops. But I find with some programmes, I can't just put them on. I have to watch them and follow what's actually going on, which I struggle with a lot. (I have other complex meuro stuff going besides Autism)
 
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soph30

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I think it’s because a lot of the programming is about the minutiae of human relationships which a lot of autistic people struggle to grasp with any nuance unless it’s quite simplistic :) which is why Gilmore girls, kids programmes, Disney etc is more comforting
 
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shadowcat5

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Oh that is actually interesting, I’m not autistic (but I am neurodivergent so not treating you like a science experiment or judging etc) and I always assumed reading a room would be tricky? Really proves there‘s a spectrum
To be fair, i think it is for some people. I will say men and women present very differently too so could be a male orientated trait (not saying women don't experience it though) One of the reasons women are so under diagnosed is because we know very little about how autistic women present.

(also no offence or judgement taken! I love this thread because we´re all here to learn and be a little community)
 
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Hollaaa

VIP Member
If school is busy we dial right back on participation in anything outside of school. We are lucky in that school is on the same page as us but they don't always get it right (and neither do we).
 
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I doubt you'd be able to pick up subtle hints of who fancied someone if you were even moderately autistic. This is from a fellow NDer btw, not someone fed media shite :) The meltdowns do sound like autism though- yep get a diagnosis, I'd just add my name to the NHS waitlist as you might get one in like a year
I appreciate your point of view. As I said, there's lots more info, I can't really condense my life into a few posts. If a qualified professional with years of experience is telling me she thinks I am, I should probably take that on board (and it's taken me a long time to admit that). The wait in my area is about two years though and I'm not sure I currently have the energy for the process. Maybe me just quietly accepting it and making sure I use my own personal experiences to improve life for my children is enough.

Edited to add: there's a massive cross over between ADHD and autism as well presentation wise which clouds the picture.
 
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soph30

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He also might not understand what he’s doing wrong in some aspects. I remember having that issue 😐
 
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AT_16

Active member
Have you double -checked the referral process for your area? In many areas now they prefer referrals from schools as they ask for evidence that a graduated response has been used. Then it wouldn't matter if you can't persuade the GP to refer.

i spoke to the health visitor advice line thing today and they said there’s a new thing in our area that the school might not be aware of which is where they can directly refer him for an assesment so it cuts the middle man out so to speak so they’ve sent me the details and i’m passing them on to the school so we can get the ball rolling (i hope)
 
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Apple In My Pie

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I have cerebral palsy and I think autism (started a referral 6mos ago), I really struggle with changes to routine. Trying to find a job is tough.
 
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conrea37

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Do any of you feel like you struggle with rejection and confrontation in that regard?

ETA: Posted this with 0 context haha. Something happened to me yesterday that is so stupid but I'm still upset over .
Rejection sensitive dysphoria is very common. I have it big time
 
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Kim Mild

VIP Member
Over time , I've noticed signs of being nd in my teenager. Then I started to realise I have so many signs myself. I've always felt like I'm not like everyone else . I mask a lot , so I don't know if other people notice , although people sometimes think I'm rude. I was a strange child , apparently , that was probably before I masked . I feel like nobody knows the real me , and I love being alone so I don't have to do my in front of other people persona. I move differently when I'm alone.

I've struggled with motor skills , throughout my life, this was often put down to clumsiness or lack of concentration but someone did tell me that it looks like I have dyspraxia.
 
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Bagelwheat

Chatty Member
Here goes! Hoping some of you might be able to offer me some advice 🤞

I’m a manager of a small team, and my most recent hire hasn’t been as plain sailing as I’m used to. She’s recently been diagnosed about 3 months ago with ADHD in her early 20s.

She’s not picked the job up well in that she can’t retain information, doesn’t write things down or follow instruction and won’t ask questions (she told me she feels like she’s a pest if she asks as she knows she’s asked before). On my very limited knowledge and googling, I believe this could be her ADHD.

She’s a nice girl and I really want to make it work, but I’m at a bit of a loss of what to do. Is there anything I can put in place or change how I do things to make things easier for us both? I’m worried she’s going to end up leaving because she’s unhappy. I’m usually quite relaxed and leave my team to it, but I’m finding myself constantly checking over her work because when I don’t, nothing gets done, but this isn’t how I want to be and it can’t be nice for her either.

Thank you, and hopefully I don’t sound like an awful person. It’s all new to me and I want to do better!
 
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soph30

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Yeah I brought @TwooTwooTwitTwitTwoo over here from the I’m a celeb thread as she said as an autistic person herself she thought Matt H might be autistic and I said he had too much of an understanding of people’s motives and feelings. But it’s interesting how some people have weaker neurodivergent traits and stronger ones rather than coming as a whole package 📦
 
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Meg78

VIP Member
okay, is there something about it specifically that you think is causing you to avoid it (anxiety, boredom) or is this a normal thing for you?
Could you put some music on?
Would watching tv actually help?
sometimes I find the tv on while doing something helps cause it doesn’t feel so official.
Is it possible for you to do the easiest part of the task first? Like write your name? Is that a possibility?sorry I don’t know what the task is but I’m just brainstorming things that help me get started.
could you loop around the block on a fast walk? I find that helps me sometimes
It’s a PIP form. Not because of neurodivergence, other fun health shenanigans, but it’s daunting as there’s so many horror stories about the assessments. I know it will help me overall to get it done, but it’s a lot of writing and I’m aware I have to get it right, it’s almost too daunting if that makes sense?

I did as you suggested and started with the dull admin side, signing my name and dating things etc, but every fibre of my being is fighting me to avoid filling anything else out
 
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soph30

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I don't really agree with this. I am autistic and I can read a room like it's no ones business. I have to in order to survive tbh lol. I do struggle to read people/unspoken language in relation to myself (e.g I can't tell when someone is bored of a conversation) but I can tell when there is a vibe among people as a whole so like I can tell when 2 people fancy each other but I can't tell when someone fancies me. I can tell when there is tension between people sexual or otherwise. I can tell when something has gone tits up in the office. I can usually tell when people are taking the piss out of me (not always).

That said though, as someone who grew up in an abusive environment, a lot of these are skills I've learnt over the years of walking on egg shells. I wouldn't say I'm intuitive but I'm observant?

ETA: I'm not saying that what you're saying isn't right or true. but I would say that it isn't my experience.
Oh that is actually interesting, I’m not autistic (but I am neurodivergent so not treating you like a science experiment or judging etc) and I always assumed reading a room would be tricky? Really proves there‘s a spectrum
 
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