I’m guessing you mean methotrexate not melts
but no it didn’t do a thing 
I was switched to injections and up to the highest dose and still nothing. I mainly have it on my face and scalp and a few patches on the rest of my body x
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but no it didn’t do a thing I was switched to injections and up to the highest dose and still nothing. I mainly have it on my face and scalp and a few patches on the rest of my body xGoats milk is so good isn't it! Glad it helps you too. I finally found a seller who makes it completely natural. If anyone is interested I can share. Agree with dairy too and seems to be gluten as well
god I'm awkward x
There was an episode of the bad skin clinic where a sufferer had ditched all treatment and she definitely got much worse. Not sure if the program is still available to watch, but treatment made a huge difference
Series one episode one https://www.discoveryplus.co.uk/show/the-bad-skin-clinic
I've got Psoriasis and Psoriatic Arthritis. Mr D has Psoriasis (he was diagnosed as a child, I only got diagnosed because he recognised the patches of skin when I had the first all over flare and he pretty much shoved me through the door into an emergency GP appointment).
MTX was crap. I'd already gone through all the other meds with no success. I just felt sick even with injections, still in pain, still leaving clouds of dust everywhere I went, a few nasty infections - stuck with it for two years going up to the maximum dose and feeling like crap all the time. Went on Humira, it was better but not good enough and I've been on Cosentyx injections for nine months now. I've had a couple of flares on my scalp and legs in the first few months (assorted steroid ointments, liquids and emollients from the GP helped) and was still in pain, but over time, it has been bloody amazing.
All the don't take anything, put yourself through constant pain is bollocks. You take whatever you need. You use whatever medication you need. You change your diet as you need (and change straight back if it doesn't make you feel better). We've got genetic coding for our bodies being complete bastards to us. No amount of thinking positively will teach our immune systems to 'learn' how to be different from the way they are inherently set up. You do everything you need to feel better and don't feel guilty about it.
MTX was crap. I'd already gone through all the other meds with no success. I just felt sick even with injections, still in pain, still leaving clouds of dust everywhere I went, a few nasty infections - stuck with it for two years going up to the maximum dose and feeling like crap all the time. Went on Humira, it was better but not good enough and I've been on Cosentyx injections for nine months now. I've had a couple of flares on my scalp and legs in the first few months (assorted steroid ointments, liquids and emollients from the GP helped) and was still in pain, but over time, it has been bloody amazing.
All the don't take anything, put yourself through constant pain is bollocks. You take whatever you need. You use whatever medication you need. You change your diet as you need (and change straight back if it doesn't make you feel better). We've got genetic coding for our bodies being complete bastards to us. No amount of thinking positively will teach our immune systems to 'learn' how to be different from the way they are inherently set up. You do everything you need to feel better and don't feel guilty about it.
@TheDragonWithAFlagon can I ask how you were diagnosed with psoriatic arthritis and where you are affected? I started having knee pain and limited movement in my knee a few years ago. I’ve never been given any conclusive explanation or treatment.
I developed psoriasis after getting a bad bout of tonsillitis 15 years ago. Looking on the NHS website my knee pain could be this - it hasn’t been linked by my doctor, nor have I had a questionnaire to fill out at any point. I have no faith in my GP to do better after a couple of failings in my treatment (and I’ve only seen the doctor 3 times in 9 years!) but I’ll be moving soon so want to try again with a new practice.
I developed psoriasis after getting a bad bout of tonsillitis 15 years ago. Looking on the NHS website my knee pain could be this - it hasn’t been linked by my doctor, nor have I had a questionnaire to fill out at any point. I have no faith in my GP to do better after a couple of failings in my treatment (and I’ve only seen the doctor 3 times in 9 years!) but I’ll be moving soon so want to try again with a new practice.
Sorry to interrupt. I was diagnosed with psoriatic arthritis when I was 24 so 6 years ago, for me it wasn’t an easy process. One day I just suddenly had a huge swollen painful knee, which eventually went down then throughout the year I’d have another bought. I saw a specialist eventually who told me at 24 I had growing pains…
I was laid up on the sofa one day feeling very sleepy for myself so my mum phoned the gp for a home visit. I was lucky as the doctor was only a few years older than me (sometimes the fresh out of medical school ones are more on it) and she said I saw on your notes you have psoriasis. I think you may have the above. And straight away I knew she was right as it’s so common. I was sent to a consultant again who confirmed it.
Thank you for your reply. So in your case it is something that flares up and you have visible swelling?
For me I have no swelling and the problem has been constant (with varying levels of pain and discomfort) for 4 years. I wasn’t examined by my GP but was sent for an X-ray which was inconclusive. I was told to self-refer for physio which ended up being a phone call with a physio who couldn’t confirm what it was (no tit Sherlock) and emailed me some exercises which “may not cure it but probably won’t do any harm”. At no point did anyone even lay a hand on me to try and diagnose a problem.
I paid for a private osteopath which didn’t make a huge amount of difference but was quite relaxing. He suggested I’d need an MRI to really see what was going on inside my knee - could be a Baker’s Cyst for example.
I compare that to my friend who had a niggle in her knee and within 6 months had been given: an X-ray, consultation with Consultant, steroid injection and fortnightly sessions with a physio.
For people with LTCs it is so much of a postcode lottery as to the treatment and attention you receive and that is vastly unfair. Looking forward to a reset when I move.
I did all the above, as I say was a long process, I had X-rays and an MRI, all the MRI found was my knee cap is slightly higher than it should be.
I only speak from experience in that o only get flair ups and winter is the worst time for me as the damp gets into my knee and it’s aches. Since having my knees drained
and a steroid injection a few years ago it’s been a lot better. Perhaps ask for a blood test? I think that’s what confirmed mine. It is all luck though if I hadn’t had that GP I would have continued to fight. I was sent to physio which took weeks to be seen (prior my diagnosis) and they said this is ridiculous you are 23 they need it i find the problem. Sadly it will be a long journey for you too by the sounds of it xI had a GP who saw a full blown Psoriasis flare covering my entire body and argued with the Rheumatology department when they suggested it might be fibromyalgia rather than the joint issues I'd had since childhood. PsA often affects fingers and toes making them look like little sausages.
I'd definitely try to see a new GP and ask about referral, though. Thing is that your knee pain could be biomechanical, a cartilage issue, wear and tear, weakened leg muscles, iliotibital band problems, a need for orthotics to prevent pronation of your foot putting pressure on the knee or any number of things other than PsA - but a blood test with CRP/ESR could identify if there's any inflammation that might/should trigger a referral to dermatology/rheumatology.
If you have the funds, I'd think that it would be a good use of money to see a sports physio privately, as they'd be able to see mechanical issues and be able to say whether they think it's an inflammatory issue and therefore out of their remit - and that could give more weight to a request for referral.
Just be warned that ESR/CRP aren't always reliable when diagnosing PsA as you can be sero-negative. A good rheumatology doctor will do a PsARC exam and take background info. Its a multifactorial diagnosis
Hi, new to this, sorry if its been posted, I've had it since a baby, my arms, legs, scalp, nose etc haven't had flare ups recently but as a kid it was crazy bad to the point people would constantly ask if I had fallen an hurt myself, one day a elderly woman approched my mum an told her what would help, it was like one of those old wife tale things, we tried it an mines cleared up super well, didn't 100% go but at least for me it made a super huge difference, it was putting oats in a cloth an tying it round the tap like a little bag an letting the hot water flow through it that did it for me
Did you bathe in the water? I think lush do something similar! It’s a little bag with oats, lavender and sandalwood in
I’ve been using Sanex moisturising shower gel and so far I really like it! I use a hypoallergenic one too with oil in and I think they’re great
Yes I did bathe in the water, I'd leave the clothe tied on the tap till the bath was filled then just get rid of the oats in a bin an I'd wash the clothe before reusing it again, I had no idea lush did these, mines hasn't gotten as bad since it was back then so I don't really use anything now to control it but I do make sure that the wash stuff I use is more natural just incase
That is what the original Aveeno was based on. Oatmeal Bath powder - I was prescribed it when I was a baby/young child for my eczema. They still sell it if you’re interested in trying it.
Thanks I much check it out, am OK now, seems to be more in the winter it's bad, people used to tell me to go on sunbeds in the winter to help it as the heat is good, I hate sunbeds cause I just can't cope with the heat but I did always see that being out in summer made a difference, back then we had no idea about things that could help so we went with what people advised, of course no Internet an doctor was just like "oh it's nothing too bad" so having the elderly lady tell us that we just went by that for years as if seemed to be the one thing that worked but its very helpful to know there's things out there that still use that sort of idea that I can try
I go on sunbeds to keep it at bay, then panic about how much sun I have.. vicious circle
I did try them an I would just do 5mins but god the heat, I couldn't cope with it but they do say 5mins at least once a week is actually OK for it an can keep it under control
Did you do stand up ones? They don’t tend to get as hot. And if you go when the shops quiet the beds haven’t warmed up yet, I used to work in a tanning shop x
I only ever did the lay down ones, my family used to hire them cause they needed their tans in winter lol an back then most shops wouldn't allow under 16s or under 18s into them so it would be the bed ones, I've never tried the stand up ones, I assume you can make them short time like 5mins? Also are they close on you like the beds are, that was also another thing I didn't quite like was how close it all seemed to be near me