Krocks In The Kitchen

[AngryBird]

I've watched them all through the recipe years from very early on. The food was interesting but they both struggled with weight badly. It's been terrible seeing their cancer diagnoses. I was also very shocked when the baby suddenly happened at what seemed liked the worse time to make such a decision. My dad died of kidney cancer so reading through this thread has been an eye opener and quite sad I understand now a bit more why his decline was so fast on the last 9 months of his life. I couldn't understand why treatment was minimal after a certain point but I get it now. It's a horrible thing to see.

I wish them all the best. I see them as flawed but genuine people, not grifters. I found this after Bryan mentioned a forum. I was on Tattle anyway but my heart sank when he mentioned it as I thought it might be here. I hope Jessica is coping OK, she's not on the video update so I'm guessing she's not up to being on camera and fair enough.

 

[Turaj]

I noticed that Jessica is back to being grossly overweight too. Some scenes of her, from behind, pushing the baby stroller. I just don't understand these two. Both with cancer yet Jessica seems heavier now than before her diagnosis. Brian still quite heavy too. I hope he sticks to his weight loss promise. But if Jessica is overeating, that will be hard for him too.

Brian seems very serious...with just one kidney working he has to have some massive weight loss. I hope he is working with a dietitian to get a balanced diet because what they have been doing just does not work.
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I've watched them all through the recipe years from very early on. The food was interesting but they both struggled with weight badly. It's been terrible seeing their cancer diagnoses. I was also very shocked when the baby suddenly happened at what seemed liked the worse time to make such a decision. My dad died of kidney cancer so reading through this thread has been an eye opener and quite sad I understand now a bit more why his decline was so fast on the last 9 months of his life. I couldn't understand why treatment was minimal after a certain point but I get it now. It's a horrible thing to see.

I wish them all the best. I see them as flawed but genuine people, not grifters. I found this after Bryan mentioned a forum. I was on Tattle anyway but my heart sank when he mentioned it as I thought it might be here. I hope Jessica is coping OK, she's not on the video update so I'm guessing she's not up to being on camera and fair enough.

I do think he was talking about TL forum. They are definitely not the norm for YT. I did not think much about Jessica not being there..he mentioned she is working non stop ...helping him and of course a mother. Brian has a tough decision to make on the immunotherapy. It really is so much for a young couple with a new baby. I wish them the best.

 

[shragae]

I noticed that Jessica is back to being grossly overweight too. Some scenes of her, from behind, pushing the baby stroller. I just don't understand these two. Both with cancer yet Jessica seems heavier now than before her diagnosis. Brian still quite heavy too. I hope he sticks to his weight loss promise. But if Jessica is overeating, that will be hard for him too.

I would guess that she is an emotional eater and she certainly has a reason to be stressed.

 

[Saydee]

I've watched them all through the recipe years from very early on. The food was interesting but they both struggled with weight badly. It's been terrible seeing their cancer diagnoses. I was also very shocked when the baby suddenly happened at what seemed liked the worse time to make such a decision. My dad died of kidney cancer so reading through this thread has been an eye opener and quite sad I understand now a bit more why his decline was so fast on the last 9 months of his life. I couldn't understand why treatment was minimal after a certain point but I get it now. It's a horrible thing to see.

I wish them all the best. I see them as flawed but genuine people, not grifters. I found this after Bryan mentioned a forum. I was on Tattle anyway but my heart sank when he mentioned it as I thought it might be here. I hope Jessica is coping OK, she's not on the video update so I'm guessing she's not up to being on camera and fair enough.

I'm sorry for your loss. RCC research has been very scarce in past years, but the landscape has recently massively changed. Next year sees Belzutifan being brought to the market. A brand new treatment for kidney cancer specifically. It certainly offers nothing for those already lost but brings so much hope for newly diagnosed patients. I'm hopeful that Brian may be able to access this new treatment down the line (whenever Belzutifan is approved in the US)

 

[AngryBird]

That's good to know. Thank you Saydee, your input is excellent. I found support and information to be minimal 7 years ago for families. Unless you are in the appointment with your loved one then you are left with the official doctors letters amd not much more.

 

[girlwhowrites]

Just watched the update video. I’m a bit confused but it seems like overall he’s in a good place? I’m a bit confused as to whether he’s cancer-free now that he’s had the surgery, because from what I understood the disease hadn’t spread anywhere else. Is the treatment he’s thinking of having now more of a preventive measure so it doesn’t come back?

 

[Turaj]

Just watched the update video. I’m a bit confused but it seems like overall he’s in a good place? I’m a bit confused as to whether he’s cancer-free now that he’s had the surgery, because from what I understood the disease hadn’t spread anywhere else. Is the treatment he’s thinking of having now more of a preventive measure so it doesn’t come back?

they can never be sure some cells have not escaped. In that case often the adjuvant treatment is offered and doctors will give you the pros and cons of doing the treatment. He has a big decision to make. Right now nothing is seen.

 

[Saydee]

Just watched the update video. I’m a bit confused but it seems like overall he’s in a good place? I’m a bit confused as to whether he’s cancer-free now that he’s had the surgery, because from what I understood the disease hadn’t spread anywhere else. Is the treatment he’s thinking of having now more of a preventive measure so it doesn’t come back?

A good place? RCC is extremely sneaky. I personally don't think Brian is in a good place. Brian is in unknown territory and will be for many years. Old data suggested 5 years of clean scans then a patient can be considered cured, sadly that data was incorrect. Many patients developing recurrences beyond the 5 years. New recommendation is 10 years of clean scans.
CT scans haven't showed further spread, but CT scans and no scans for that matter can spot microscopic spread. This is the reason why high-risk patients require scans every 12 weeks, microscopic spread takes time to show itself as a tumour.
Brians cancer is grade 4 which makes him at high risk of recurrence because grade 4 cells act aggressively.
Recent data following a UK trial has found that immunotherapy can be useful as adjuvant therapy, ie preventative. Immunotherapy trains your own immune system to fight and kill off cancer even when its microscopic.
Technically Brian could have treatment now and it could kill any microscopic cells. The 'but' and there is a 'but', there is also a risk. Immunotherapy doesn't work forever and it can't be given forever. As a preventative its prescribed for 12 months. However, patients become resistant to immunotherapy eventually. What does that mean? It means cancer cells mutate to evade attack. If Brian had immunotherapy and later had a recurrence, immunotherapy probably wouldn't work for him.
The question/risk. Use immunotherapy when there might be no disease present or alternatively when microscopic disease is present (nobody can know for sure) only time will tell. Or save immunotherapy for if tumours show up down the line.

 

[AlwaysScience]

A good place? RCC is extremely sneaky. I personally don't think Brian is in a good place. Brian is in unknown territory and will be for many years. Old data suggested 5 years of clean scans then a patient can be considered cured, sadly that data was incorrect. Many patients developing recurrences beyond the 5 years. New recommendation is 10 years of clean scans.
CT scans haven't showed further spread, but CT scans and no scans for that matter can spot microscopic spread. This is the reason why high-risk patients require scans every 12 weeks, microscopic spread takes time to show itself as a tumour.
Brians cancer is grade 4 which makes him at high risk of recurrence because grade 4 cells act aggressively.
Recent data following a UK trial has found that immunotherapy can be useful as adjuvant therapy, ie preventative. Immunotherapy trains your own immune system to fight and kill off cancer even when its microscopic.
Technically Brian could have treatment now and it could kill any microscopic cells. The 'but' and there is a 'but', there is also a risk. Immunotherapy doesn't work forever and it can't be given forever. As a preventative its prescribed for 12 months. However, patients become resistant to immunotherapy eventually. What does that mean? It means cancer cells mutate to evade attack. If Brian had immunotherapy and later had a recurrence, immunotherapy probably wouldn't work for him.
The question/risk. Use immunotherapy when there might be no disease present or alternatively when microscopic disease is present (nobody can know for sure) only time will tell. Or save immunotherapy for if tumours show up down the line.

Thx Saydee, once again excellent and useful information - thank you. If a loved one or one of my friends got diagnosed with RCC tomorrow I would have a wealth of valuable knowledge from you about this horrible cancer.

When people talk about there being a cure for “cancer” some day I think “which cancer?” because there are so many cancers and I don’t think one cure is likely to be found that works for all of them.

 

[girlwhowrites]

Thanks for the extra information! The fact that this cancer isn’t responsive to chemo or radiation definitely makes the possibility of a recurrence extremely scary. I guess at this point, he’s just very lucky that they caught it before it had seemingly spread. I do hope it just stays gone so he can raise his daughter.

 

[shragae]

Any news?

 

[Turaj]

Any news?

No news at all. I assume that by now Brian has decided on follow up care if any...as I recall he had some choices. Hope all is well with them and just busy.

 

[riley123]

No news at all. I assume that by now Brian has decided on follow up care if any...as I recall he had some choices. Hope all is well with them and just busy.

One of them has posted very recently on their newest video (What stage is my cancer) if you click on newest comments. They posted in response to someone complaining that they've been posting too much personal information.

 

[shragae]

Thanks. I checked it out. They had a nasty troll. Why do some people have to be so mean?

 

[girlwhowrites]

Their posting rate had slowed down during Jessica’s illness and I’m not surprised it’s remained that way. I mean they have a lot more going on now that there’s a kid to raise. They also moved to a new house and I wouldn’t be surprised if they’ve been trying to get back to their professional lives.

Honestly though, it’s probably just really not fun to get on camera and talk about having cancer. If it were me, I would hate having to do it. In their case it sucks because they probably feel obligated to keep sharing updates now that their audience is invested.

 

[Saydee]

Have the krocks put out any recent videos? I haven't seen any, but I haven't looked either.

I hope Brians had his first clear scan and I hope they are getting quality family time between Jessica's scans and Brians's scans. I hope Brian remains NED long enough for better treatments to have come along.

I have gained a lot of respect for them both recently. Brian could have easily churned out video after video and earnt some cash, but he hasn't done so. This indicates he doesn't vlog for monetary gain.

 

[mayday mayday]

@Saydee I actually checked both their channel and their Insta a couple of day ago, nothing new posted. I realized Elsie will soon be one year old !!

 

[AlwaysScience]

No videos but one of them replied to a comment recently. Reply was that they were just unlucky to have both gotten cancer despite their vegetarian diet.

 

[LeonorG]

I fee

Have the krocks put out any recent videos? I haven't seen any, but I haven't looked either.

I hope Brians had his first clear scan and I hope they are getting quality family time between Jessica's scans and Brians's scans. I hope Brian remains NED long enough for better treatments to have come along.

I have gained a lot of respect for them both recently. Brian could have easily churned out video after video and earnt some cash, but he hasn't done so. This indicates he doesn't vlog for monetary gain.

I feel the same. They could have milked it and cashed in but they have never been about that.

 

[Daisychain4]

I fee

I feel the same. They could have milked it and cashed in but they have never been about that.

Yes they appear to be sensible and honest people.
They’ve given an open and transparent account of both their health issues as well as their child by surrogate.
I wish them continued good health