Could you have a polyp or fibroids? Sorry to hear you are in pain xxHello all,
I wondered if anyone has experienced the same/ similar to me and whether anything has helped.
In a nutshell, I have always suffered with horrendously painful periods every month and the contraceptive pill helped slightly. I came off it about 3 years ago due to other side effects but suffer still with my periods. Going back on the pill isn’t an option as it affected my moods and we are TTC
My symptoms are:
Hormonal acne around chin and jaw
Swollen stomach area
Bloating
Swollen feet often
Heavy periods
Pain causing me to feel faint, sweat, vomit and scream in agony!
Upset stomach at time of the month
Cramps which feel like I’m being sliced open or stabbed!
Periods last 2 days but pain is intense and it’s affecting my work- I’m off sick every month without fail
I’ve been pushing for further tests, my bloods were taken on day 21(or as close as I could get to) all came back ok, I’ve had a pelvic internal scan which showed ovulation but struggled to find my left ovary?!
No signs of cysts or masses from initial feedback from scan but I was told the internal scan doesn’t show endometrial tissue or polyps- is this true and what next?
I don’t think I can keep up with this monthly pain it is causing so much distress!! I’m on mefanamic acid and trans something, neither are helpful.
Has anyone had anything similar? Has anything helped and what should I do? Xx
Hello all,
I wondered if anyone has experienced the same/ similar to me and whether anything has helped.
In a nutshell, I have always suffered with horrendously painful periods every month and the contraceptive pill helped slightly. I came off it about 3 years ago due to other side effects but suffer still with my periods. Going back on the pill isn’t an option as it affected my moods and we are TTC
My symptoms are:
Hormonal acne around chin and jaw
Swollen stomach area
Bloating
Swollen feet often
Heavy periods
Pain causing me to feel faint, sweat, vomit and scream in agony!
Upset stomach at time of the month
Cramps which feel like I’m being sliced open or stabbed!
Periods last 2 days but pain is intense and it’s affecting my work- I’m off sick every month without fail
I’ve been pushing for further tests, my bloods were taken on day 21(or as close as I could get to) all came back ok, I’ve had a pelvic internal scan which showed ovulation but struggled to find my left ovary?!
No signs of cysts or masses from initial feedback from scan but I was told the internal scan doesn’t show endometrial tissue or polyps- is this true and what next?
I don’t think I can keep up with this monthly pain it is causing so much distress!! I’m on mefanamic acid and trans something, neither are helpful.
Has anyone had anything similar? Has anything helped and what should I do? Xx
You describe my symptoms when my endometriosis has been at its worstI hope it’s okay to post here just after some advice.
My whole life my periods have been fine, had the odd cramp here and there but absolutely nothing that impacted my life in any way. Tbh I felt pretty lucky about that!
My past two periods have been horrific. Excruciating pain like I’ve never experienced before.
Today it was so bad I ended up vomiting multiple times. The pain lasted an hour I was actually scared at how bad it was. I couldn’t move or stand up. Just waiting for meds to kick in. Now the pain has completely gone I feel absolutely fine. Its only the first day that I seem to get this but my god I dunno what’s up because never in my life have I had pain like this.
No other changes and no pain for the rest of my period or during my cycle. I am very very stressed at the minute I dunno if that would make it worse?
gosh I’ve never had any reason to suspect endo. Never had anything like this before. It’s weird that it’s only for like an hour in my entire period. I don’t get any other cramps. From what I read about endo it causes pain throughout. Weird i guess I’ll just keep an eye on it.You describe my symptoms when my endometriosis has been at its worst
Hi, I experienced all this with periods since 2006 when I was 17. I dreaded each month, I was so ill with sickness and the pain. Hot and cold sweats, lying shaking in dizzy nausea, sometimes passing out. Tried Mefenamic Acid - useless.Hello all,
I wondered if anyone has experienced the same/ similar to me and whether anything has helped.
In a nutshell, I have always suffered with horrendously painful periods every month and the contraceptive pill helped slightly. I came off it about 3 years ago due to other side effects but suffer still with my periods. Going back on the pill isn’t an option as it affected my moods and we are TTC
My symptoms are:
Hormonal acne around chin and jaw
Swollen stomach area
Bloating
Swollen feet often
Heavy periods
Pain causing me to feel faint, sweat, vomit and scream in agony!
Upset stomach at time of the month
Cramps which feel like I’m being sliced open or stabbed!
Periods last 2 days but pain is intense and it’s affecting my work- I’m off sick every month without fail
I’ve been pushing for further tests, my bloods were taken on day 21(or as close as I could get to) all came back ok, I’ve had a pelvic internal scan which showed ovulation but struggled to find my left ovary?!
No signs of cysts or masses from initial feedback from scan but I was told the internal scan doesn’t show endometrial tissue or polyps- is this true and what next?
I don’t think I can keep up with this monthly pain it is causing so much distress!! I’m on mefanamic acid and trans something, neither are helpful.
Has anyone had anything similar? Has anything helped and what should I do? Xx
HiI Don't Know If I Have Endometriosis Or Not, I Would Like Some Help.
I have recently turned 19 and have been experiencing pain since my first period age 11. ( I am from Cardiff, Wales ) The pain used to be unbearable, I would miss so much school, my anxiety was horrible because of it. I even ended up in A&E when I was 16 as the pain was so bad, where I had to stay two nights and be on the IV, as well as take strong anti-biotics for two weeks. I have been going to the doctors for these pain since I remember the pain starting, I've tried multiple different doctors, and I have had countless scans. When I was 17, they admitted me to a Gynaecologist, where she said I might have Endometriosis, but she did not want to do a laparoscopy on me. She then dismissed me, and put me on birth control to stop my period, which I have been on since then. However, I get random bleedings and the pain is still there, just not as severe and as much. I also got tested for IBS and Celiac and both were negative.
Since I have started University in September, I am trying to see if the doctors there will do it differently, at the moment, she just wants me to have a vaginal swab test.
I don't know what to do. I don't really need the pill, I'm not sexually active, and it's not helping much. I also just want to get help for this, I'm scared that I am infertile, or that I do have Endometriosis and it's being left untreated. I know I could go privately, but it's a lot of money and I don't know who would be the correct doctor for it. I also feel like I should not be paying for this if its free on the NHS.
My symptoms from when I first remember the pains are:
- Heavy bleeding and long periods.
- Cramps in my thighs and lower abdomen as well as near the ovaries, which were so bad that I would cry, throw up or faint.
- Diarrhoea
- Nauseous
- Dizziness, feeling weak, not enough energy to stand up ( I would have to stay in bed all day).
- No appetite ( I would hardly eat when I would be on my period since the pain was so bad, and I would throw up pretty much anything I ate)
- Constant pooping
- Only since starting the pill, I have also been having cramps in my lower back on top of all the other areas.
If anyone could shed some light it would be very helpful, I've missed so much school/high school, and have already missed a few days of university due to the pain. I have not been given a lot of information on what I can do to make myself better at home, all that works for me is my hot water bottle, taking pain killers does not help. (However, I've not how uneven skin tone on my stomach and thighs due to the constant use of boiling hot water bottles)
I just want to know if it could be Endometriosis or something else, and what can I do?
Funny you say that i was in the uk and took 15 years to get diagnosed with endometriosis. Moved to canada and have the best doctor. She was the one who got me to do ivf and not waste anymore time trying to convince naturally.Hi
Sounds like it could be endo. I had it from aged 14 and did not get a proper dignosis until 2020, aged 28. You will have to advocate for yourself a lot. I found UK doctors very dismissive compared to Canadian.
My symptoms were:
lower back, pelvic and hip pain when I had my period. I would feel like I was going to pass out.
Thigh pain - felt like they were stomped on.
Heavy, long periods - would last weeks.
I had been on Depo for years and it helped for a long time. But last year even though I was on it, I was getting 3 week+ periods.
I finally met with an endometriosis specialist - this is key. He is a specialist in excision surgery (where they cut the endo out). Some gynes burn the endo out but if they are not a specialist - they may not see it all, it takes a well-trained eye, also burning it away with the laser (ablation) can often cause people more pain as it can spread it.
When I met the specialist, I told him my symptoms. I had also had an MRI which showed what looked like endo. He agreed it would be best to do a laparoscopy and excision. I had a 4 hour surgery which confirmed endo - he did the lap and excision on the same day. I will now be staying on Depo until I want a baby. Sadly, new endo can grow back. He said if I stay on Depo, I will likely have 11 years pain-free. If I go off, 7-8 years.
Here are a list of specialists in the UK: https://www.google.com/maps/d/viewer?mid=1hd_-wSlqZWOlR5VxPhIN3oAbJh4&ll=0,0&z=1
A reddit group: https://www.reddit.com/r/Endo/
thank you so so much. this means everything to me that you sent the links as well!Hi
Sounds like it could be endo. I had it from aged 14 and did not get a proper dignosis until 2020, aged 28. You will have to advocate for yourself a lot. I found UK doctors very dismissive compared to Canadian.
My symptoms were:
lower back, pelvic and hip pain when I had my period. I would feel like I was going to pass out.
Thigh pain - felt like they were stomped on.
Heavy, long periods - would last weeks.
I had been on Depo for years and it helped for a long time. But last year even though I was on it, I was getting 3 week+ periods.
I finally met with an endometriosis specialist - this is key. He is a specialist in excision surgery (where they cut the endo out). Some gynes burn the endo out but if they are not a specialist - they may not see it all, it takes a well-trained eye, also burning it away with the laser (ablation) can often cause people more pain as it can spread it.
When I met the specialist, I told him my symptoms. I had also had an MRI which showed what looked like endo. He agreed it would be best to do a laparoscopy and excision. I had a 4 hour surgery which confirmed endo - he did the lap and excision on the same day. I will now be staying on Depo until I want a baby. Sadly, new endo can grow back. He said if I stay on Depo, I will likely have 11 years pain-free. If I go off, 7-8 years.
Here are a list of specialists in the UK: https://www.google.com/maps/d/viewer?mid=1hd_-wSlqZWOlR5VxPhIN3oAbJh4&ll=0,0&z=1
A reddit group: https://www.reddit.com/r/Endo/
9 years trying to get doctors to help me in the UK and got dismissed.Funny you say that i was in the uk and took 15 years to get diagnosed with endometriosis. Moved to canada and have the best doctor. She was the one who got me to do ivf and not waste anymore time trying to convince naturally.
hi this sounds like it could be endo, especially the puking (that's what made me realize something was really wrong) I had to do three different test before I was diagnosed, have you seen an endo specialist? it's only after I saw a specialist that they found mine. You sound like me, go to a specialist asap please.I Don't Know If I Have Endometriosis Or Not, I Would Like Some Help.
I have recently turned 19 and have been experiencing pain since my first period age 11. ( I am from Cardiff, Wales ) The pain used to be unbearable, I would miss so much school, my anxiety was horrible because of it. I even ended up in A&E when I was 16 as the pain was so bad, where I had to stay two nights and be on the IV, as well as take strong anti-biotics for two weeks. I have been going to the doctors for these pain since I remember the pain starting, I've tried multiple different doctors, and I have had countless scans. When I was 17, they admitted me to a Gynaecologist, where she said I might have Endometriosis, but she did not want to do a laparoscopy on me. She then dismissed me, and put me on birth control to stop my period, which I have been on since then. However, I get random bleedings and the pain is still there, just not as severe and as much. I also got tested for IBS and Celiac and both were negative.
Since I have started University in September, I am trying to see if the doctors there will do it differently, at the moment, she just wants me to have a vaginal swab test.
I don't know what to do. I don't really need the pill, I'm not sexually active, and it's not helping much. I also just want to get help for this, I'm scared that I am infertile, or that I do have Endometriosis and it's being left untreated. I know I could go privately, but it's a lot of money and I don't know who would be the correct doctor for it. I also feel like I should not be paying for this if its free on the NHS.
My symptoms from when I first remember the pains are:
- Heavy bleeding and long periods.
- Cramps in my thighs and lower abdomen as well as near the ovaries, which were so bad that I would cry, throw up or faint.
- Diarrhoea
- Nauseous
- Dizziness, feeling weak, not enough energy to stand up ( I would have to stay in bed all day).
- No appetite ( I would hardly eat when I would be on my period since the pain was so bad, and I would throw up pretty much anything I ate)
- Constant pooping
- Only since starting the pill, I have also been having cramps in my lower back on top of all the other areas.
If anyone could shed some light it would be very helpful, I've missed so much school/high school, and have already missed a few days of university due to the pain. I have not been given a lot of information on what I can do to make myself better at home, all that works for me is my hot water bottle, taking pain killers does not help. (However, I've not how uneven skin tone on my stomach and thighs due to the constant use of boiling hot water bottles)
I just want to know if it could be Endometriosis or something else, and what can I do?
I’ll definitely try to go to a specialist since the doctors just keep brushing me off sadly. Thank you so much for everyone for helping me!hi this sounds like it could be endo, especially the puking (that's what made me realize something was really wrong) I had two do three different test before I was diagnosed, have you seen an endo specialist? it's only after I saw a specialist that they found mine. You sound like me, go to a specialist asap please.
Don't give up or let yourself be dismissed. You will need to be firm in asking for a referral to a specialist. xI’ll definitely try to go to a specialist since the doctors just keep brushing me off sadly. Thank you so much for everyone for helping me!
I was really worried (I still am but feel more at ease) x
We're here for you! You have nearly all the symptoms I had, I'd suggest a warm bath if possible, spraying a hot shower head right where the pain is, eating moderately and easier food for your digestive tract right around that time of the month, also warm tea, and I heard weed can help but I've never tried it during mine.I’ll definitely try to go to a specialist since the doctors just keep brushing me off sadly. Thank you so much for everyone for helping me!
I was really worried (I still am but feel more at ease) x
Yes, just last year, hot baths were the only thing that helped me.We're here for you! You have nearly all the symptoms I had, I'd suggest a warm bath if possible, spraying a hot shower head right where the pain is, eating moderately and easier food for your digestive tract right around that time of the month, also warm tea, and I heard weed can help but I've never tried it during mine.