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Could you have a polyp or fibroids? Sorry to hear you are in pain xxHello all,
I wondered if anyone has experienced the same/ similar to me and whether anything has helped.
In a nutshell, I have always suffered with horrendously painful periods every month and the contraceptive pill helped slightly. I came off it about 3 years ago due to other side effects but suffer still with my periods. Going back on the pill isn’t an option as it affected my moods and we are TTC
My symptoms are:
Hormonal acne around chin and jaw
Swollen stomach area
Bloating
Swollen feet often
Heavy periods
Pain causing me to feel faint, sweat, vomit and scream in agony!
Upset stomach at time of the month
Cramps which feel like I’m being sliced open or stabbed!
Periods last 2 days but pain is intense and it’s affecting my work- I’m off sick every month without fail
I’ve been pushing for further tests, my bloods were taken on day 21(or as close as I could get to) all came back ok, I’ve had a pelvic internal scan which showed ovulation but struggled to find my left ovary?!
No signs of cysts or masses from initial feedback from scan but I was told the internal scan doesn’t show endometrial tissue or polyps- is this true and what next?
I don’t think I can keep up with this monthly pain it is causing so much distress!! I’m on mefanamic acid and trans something, neither are helpful.
Has anyone had anything similar? Has anything helped and what should I do? Xx
Hello all,
I wondered if anyone has experienced the same/ similar to me and whether anything has helped.
In a nutshell, I have always suffered with horrendously painful periods every month and the contraceptive pill helped slightly. I came off it about 3 years ago due to other side effects but suffer still with my periods. Going back on the pill isn’t an option as it affected my moods and we are TTC
My symptoms are:
Hormonal acne around chin and jaw
Swollen stomach area
Bloating
Swollen feet often
Heavy periods
Pain causing me to feel faint, sweat, vomit and scream in agony!
Upset stomach at time of the month
Cramps which feel like I’m being sliced open or stabbed!
Periods last 2 days but pain is intense and it’s affecting my work- I’m off sick every month without fail
I’ve been pushing for further tests, my bloods were taken on day 21(or as close as I could get to) all came back ok, I’ve had a pelvic internal scan which showed ovulation but struggled to find my left ovary?!
No signs of cysts or masses from initial feedback from scan but I was told the internal scan doesn’t show endometrial tissue or polyps- is this true and what next?
I don’t think I can keep up with this monthly pain it is causing so much distress!! I’m on mefanamic acid and trans something, neither are helpful.
Has anyone had anything similar? Has anything helped and what should I do? Xx
My friend suffered terribly. She's in her 40s and it only settled after having the mirena coil. She had tried everything there was & the coil is helping massively.
Eating healthy and exercising before it does seem to help I always found when I lost weight the pain was less I mean I’m not 100% sure of that but I think it was
I hope it’s okay to post here just after some advice.
My whole life my periods have been fine, had the odd cramp here and there but absolutely nothing that impacted my life in any way. Tbh I felt pretty lucky about that!
My past two periods have been horrific. Excruciating pain like I’ve never experienced before.
Today it was so bad I ended up vomiting multiple times. The pain lasted an hour I was actually scared at how bad it was. I couldn’t move or stand up. Just waiting for meds to kick in. Now the pain has completely gone I feel absolutely fine. Its only the first day that I seem to get this but my god I dunno what’s up because never in my life have I had pain like this.
No other changes and no pain for the rest of my period or during my cycle. I am very very stressed at the minute I dunno if that would make it worse?
My whole life my periods have been fine, had the odd cramp here and there but absolutely nothing that impacted my life in any way. Tbh I felt pretty lucky about that!
My past two periods have been horrific. Excruciating pain like I’ve never experienced before.
Today it was so bad I ended up vomiting multiple times. The pain lasted an hour I was actually scared at how bad it was. I couldn’t move or stand up. Just waiting for meds to kick in. Now the pain has completely gone I feel absolutely fine. Its only the first day that I seem to get this but my god I dunno what’s up because never in my life have I had pain like this.
No other changes and no pain for the rest of my period or during my cycle. I am very very stressed at the minute I dunno if that would make it worse?
You describe my symptoms when my endometriosis has been at its worst
gosh I’ve never had any reason to suspect endo. Never had anything like this before. It’s weird that it’s only for like an hour in my entire period. I don’t get any other cramps. From what I read about endo it causes pain throughout. Weird i guess I’ll just keep an eye on it.
Hi, I experienced all this with periods since 2006 when I was 17. I dreaded each month, I was so ill with sickness and the pain. Hot and cold sweats, lying shaking in dizzy nausea, sometimes passing out. Tried Mefenamic Acid - useless.Hello all,
I wondered if anyone has experienced the same/ similar to me and whether anything has helped.
In a nutshell, I have always suffered with horrendously painful periods every month and the contraceptive pill helped slightly. I came off it about 3 years ago due to other side effects but suffer still with my periods. Going back on the pill isn’t an option as it affected my moods and we are TTC
My symptoms are:
Hormonal acne around chin and jaw
Swollen stomach area
Bloating
Swollen feet often
Heavy periods
Pain causing me to feel faint, sweat, vomit and scream in agony!
Upset stomach at time of the month
Cramps which feel like I’m being sliced open or stabbed!
Periods last 2 days but pain is intense and it’s affecting my work- I’m off sick every month without fail
I’ve been pushing for further tests, my bloods were taken on day 21(or as close as I could get to) all came back ok, I’ve had a pelvic internal scan which showed ovulation but struggled to find my left ovary?!
No signs of cysts or masses from initial feedback from scan but I was told the internal scan doesn’t show endometrial tissue or polyps- is this true and what next?
I don’t think I can keep up with this monthly pain it is causing so much distress!! I’m on mefanamic acid and trans something, neither are helpful.
Has anyone had anything similar? Has anything helped and what should I do? Xx
Glory, it makes me feel panicked thinking back to it. My doctor told me to get on with it - “some women just have bad periods”. Me thinking - “hmm yeah I’m pretty sure I shouldn’t be feeling like I’m about to die.” All my friends agreed that my symptoms were not normal.
I ended up taking matters into my own hands and found a fertility clinic that practiced Maya Massage (I was pretty sure I had endometriosis by this point). I had 3 months of Maya Massage, once and twice a week, combined with some acupuncture. It changed my life. Helped my insides dispel A LOT of clotted material during periods, as they advised it would. Actually, my first period after starting treatment, I did not even realise it had arrived, I felt no symptoms. Wonderful.
Back in October there, I had my first baby, which also appears to have worked well for my system as my periods are very tolerable - no nausea or cramping pain (I was worried they might return badly), although the flow is extremely heavy. Sorry if this is TMI!
Basically I just wanted to let you know that Maya Massage changed my life! It was private, so cost about £600 for 3 months, but it was worth it. Had I had endless money I would have kept going, but had to call time on it!
I wish you all the best!
I Don't Know If I Have Endometriosis Or Not, I Would Like Some Help.
I have recently turned 19 and have been experiencing pain since my first period age 11. ( I am from Cardiff, Wales ) The pain used to be unbearable, I would miss so much school, my anxiety was horrible because of it. I even ended up in A&E when I was 16 as the pain was so bad, where I had to stay two nights and be on the IV, as well as take strong anti-biotics for two weeks. I have been going to the doctors for these pain since I remember the pain starting, I've tried multiple different doctors, and I have had countless scans. When I was 17, they admitted me to a Gynaecologist, where she said I might have Endometriosis, but she did not want to do a laparoscopy on me. She then dismissed me, and put me on birth control to stop my period, which I have been on since then. However, I get random bleedings and the pain is still there, just not as severe and as much. I also got tested for IBS and Celiac and both were negative.
Since I have started University in September, I am trying to see if the doctors there will do it differently, at the moment, she just wants me to have a vaginal swab test.
I don't know what to do. I don't really need the pill, I'm not sexually active, and it's not helping much. I also just want to get help for this, I'm scared that I am infertile, or that I do have Endometriosis and it's being left untreated. I know I could go privately, but it's a lot of money and I don't know who would be the correct doctor for it. I also feel like I should not be paying for this if its free on the NHS.
My symptoms from when I first remember the pains are:
- Heavy bleeding and long periods.
- Cramps in my thighs and lower abdomen as well as near the ovaries, which were so bad that I would cry, throw up or faint.
- Diarrhoea
- Nauseous
- Dizziness, feeling weak, not enough energy to stand up ( I would have to stay in bed all day).
- No appetite ( I would hardly eat when I would be on my period since the pain was so bad, and I would throw up pretty much anything I ate)
- Constant pooping
- Only since starting the pill, I have also been having cramps in my lower back on top of all the other areas.
If anyone could shed some light it would be very helpful, I've missed so much school/high school, and have already missed a few days of university due to the pain. I have not been given a lot of information on what I can do to make myself better at home, all that works for me is my hot water bottle, taking pain killers does not help. (However, I've not how uneven skin tone on my stomach and thighs due to the constant use of boiling hot water bottles)
I just want to know if it could be Endometriosis or something else, and what can I do?
I have recently turned 19 and have been experiencing pain since my first period age 11. ( I am from Cardiff, Wales ) The pain used to be unbearable, I would miss so much school, my anxiety was horrible because of it. I even ended up in A&E when I was 16 as the pain was so bad, where I had to stay two nights and be on the IV, as well as take strong anti-biotics for two weeks. I have been going to the doctors for these pain since I remember the pain starting, I've tried multiple different doctors, and I have had countless scans. When I was 17, they admitted me to a Gynaecologist, where she said I might have Endometriosis, but she did not want to do a laparoscopy on me. She then dismissed me, and put me on birth control to stop my period, which I have been on since then. However, I get random bleedings and the pain is still there, just not as severe and as much. I also got tested for IBS and Celiac and both were negative.
Since I have started University in September, I am trying to see if the doctors there will do it differently, at the moment, she just wants me to have a vaginal swab test.
I don't know what to do. I don't really need the pill, I'm not sexually active, and it's not helping much. I also just want to get help for this, I'm scared that I am infertile, or that I do have Endometriosis and it's being left untreated. I know I could go privately, but it's a lot of money and I don't know who would be the correct doctor for it. I also feel like I should not be paying for this if its free on the NHS.
My symptoms from when I first remember the pains are:
- Heavy bleeding and long periods.
- Cramps in my thighs and lower abdomen as well as near the ovaries, which were so bad that I would cry, throw up or faint.
- Diarrhoea
- Nauseous
- Dizziness, feeling weak, not enough energy to stand up ( I would have to stay in bed all day).
- No appetite ( I would hardly eat when I would be on my period since the pain was so bad, and I would throw up pretty much anything I ate)
- Constant pooping
- Only since starting the pill, I have also been having cramps in my lower back on top of all the other areas.
If anyone could shed some light it would be very helpful, I've missed so much school/high school, and have already missed a few days of university due to the pain. I have not been given a lot of information on what I can do to make myself better at home, all that works for me is my hot water bottle, taking pain killers does not help. (However, I've not how uneven skin tone on my stomach and thighs due to the constant use of boiling hot water bottles)
I just want to know if it could be Endometriosis or something else, and what can I do?
Hi it could be but its hard to diagnose endometriosis. I had bad periods also and a cyst on my ovary its wasn't till i got an operation they picked up on the endometriosis. I went on the injection and it helped alot for me but everyone is different. Usually they grade it from 1 to 8. 8 being the worse mine was at a 4. Keep going to the doctor ask for scans. I got a obgyn and she is amazing. I struggled to conceive and had to do ivf luckily it worked for me and now have a baby. I wish i found out years ago as i would of frozen my eggs. Good luck and keep fighting the doctor's aren't really trained with endometriosis so try and look into specialist.
Hi
Sounds like it could be endo. I had it from aged 14 and did not get a proper dignosis until 2020, aged 28. You will have to advocate for yourself a lot. I found UK doctors very dismissive compared to Canadian.
My symptoms were:
lower back, pelvic and hip pain when I had my period. I would feel like I was going to pass out.
Thigh pain - felt like they were stomped on.
Heavy, long periods - would last weeks.
I had been on Depo for years and it helped for a long time. But last year even though I was on it, I was getting 3 week+ periods.
I finally met with an endometriosis specialist - this is key. He is a specialist in excision surgery (where they cut the endo out). Some gynes burn the endo out but if they are not a specialist - they may not see it all, it takes a well-trained eye, also burning it away with the laser (ablation) can often cause people more pain as it can spread it.
When I met the specialist, I told him my symptoms. I had also had an MRI which showed what looked like endo. He agreed it would be best to do a laparoscopy and excision. I had a 4 hour surgery which confirmed endo - he did the lap and excision on the same day. I will now be staying on Depo until I want a baby. Sadly, new endo can grow back. He said if I stay on Depo, I will likely have 11 years pain-free. If I go off, 7-8 years.
Here are a list of specialists in the UK: https://www.google.com/maps/d/viewer?mid=1hd_-wSlqZWOlR5VxPhIN3oAbJh4&ll=0,0&z=1
A reddit group: https://www.reddit.com/r/Endo/
Funny you say that i was in the uk and took 15 years to get diagnosed with endometriosis. Moved to canada and have the best doctor. She was the one who got me to do ivf and not waste anymore time trying to convince naturally.
thank you so so much. this means everything to me that you sent the links as well!
so sorry that it took so long to get you diagnosed. i wish people would listen more! thank you
9 years trying to get doctors to help me in the UK and got dismissed.
For my first 2 years in Canada, I didn't have healthcare as was waiting for my residency. But as soon as I had a doctor, she referred me to a specialist and an MRI - the wait time for the specialist was long because there are so few of them.
hi this sounds like it could be endo, especially the puking (that's what made me realize something was really wrong) I had to do three different test before I was diagnosed, have you seen an endo specialist? it's only after I saw a specialist that they found mine. You sound like me, go to a specialist asap please.
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I’ll definitely try to go to a specialist since the doctors just keep brushing me off sadly. Thank you so much for everyone for helping me!
I was really worried (I still am but feel more at ease) x
Don't give up or let yourself be dismissed. You will need to be firm in asking for a referral to a specialist. x
We're here for you! You have nearly all the symptoms I had, I'd suggest a warm bath if possible, spraying a hot shower head right where the pain is, eating moderately and easier food for your digestive tract right around that time of the month, also warm tea, and I heard weed can help but I've never tried it during mine.
Yes, just last year, hot baths were the only thing that helped me.
- heat pads and hot water bottles too
- tiger balm helped A LOT.
- I bought specific pain for period pain which did help a bit.
- I cut back on red meat as I read that can make inflammation worse.