Is this the Dunning-Kruger effect ? I’m so frustrated that Grecian has not read the book “Special” yet. It is such an amazing read in those early days of diagnosis. How can she just be finding out about it?
She’s a self appointed expert in a parenting community that does not gatekeep. Nor does she really try to engage. I haven’t listened to her podcast, I cannot bring myself to do so. But I’m so frustrated that she is trying this influencer grift and using “parent of disabled child” as her platform when she is so new to it.
As a parent of a disabled child you have a responsibility to engage, read and learn from disability advocates themselves. Learn perspectives, and the nuances. And remember that your role as parent is always secondary to your child (like all parents really). It’s not about you. And your child’s right to privacy especially with their medical history is fundamental.
Also there are some really wonderful parents already creating engagement, encouraging discussions amongst parents and the roles they play balancing advocacy, privacy etc. Mel Demitt author of special is one, too peas podcast and their fb group is another. Yet old love is out here having missed the first 4 years of early intervention grifting smoothie cups for her nil by mouth kiddo
…

turns out I need to get that rant off my chest.I just really love that book.