I'm going to be brutally honest here.
Saf and Ash have gone through nothing different to others who have ill children. I'd say they've had a much easier journey,however, I am not minimising their grief. Most parents don't have the luxury of being sent deliveroo meals and free coffees during the day. Most aren't sent fancy hair curlers and clothes when their baby's are are ill and if they were, they'd likely be trying to sell them to raise funds. Many parents have to rush back to work, and the sympathy of employers runs out sooner or later.
Personally, I found it massively insensitive that Saf was so concerned with having a great hairstyle when many in the ward, including her own child, were losing theirs! It was so weird that they were then able to pose in the bathroom with new clothes.
The saddest part about this, is that the public raised all that money in just 24 hours. That exact same money is now sitting in their bank accounts and parents have to submit forms, jump through hoops to be considered for just a tiny portion of that money - it's really bloody foul.
We don't need to be made aware of childhood cancer, we know it exists. What we want is to to make the lives of those children a little more happy and to alleviate the worries of those parents by perhaps covering the odd bill here and there for them so that they can feel that tiny bit more lighter.
For Saf and Ash, this really isn't about A. They have completely dehumanised her by turning her into a commodity. She was a tiny baby who was probably often sad because of all her pain, that likely enjoyed hugs, cuddles, love, warm and stimulation. That's it. By by calling her brave, fearless, a champ etc is bulshit. She was likely petrified of all the pain and that's human, anyone would be scared and in pain.
I really wish they'd stop using her name to make money and let her rest in peace. They should change the name to 'the Ash foundation'.