little.lulu.love : Most liked Posts

At least that’s the confirmation for everyone yesterday who doubted whether Erin actually believed vaccines were responsible
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She’s not wrong though. Vaccines, specifically the lack of them, certainly have played a role in poor Lulu’s health challenges.

How hurtful to Lu that Erin said she is “essentially” a first time Mum - ouch! This is what bugs me. She has this curated vision of motherhood and how it’s meant to be, and she feels she is owed that, and because Lu didn’t give her that experience she is bitter and it “doesn’t count”. But in reality, in the very real world where nothing is perfect, EVERY mother has a unique experience of motherhood - it is never the perfect vision EVER. you’re not “essentially” a first time Mum to Tom because you didn’t get to experience your perfectly curated vision of motherhood with Lu. Please Erin see Lu as the beautiful unique child she is, stop discounting her existence and celebrate her!!

Sorry but plenty of us live with this reality.
Lots of us have children who will not live independently, and who will eventually go into full time care when we are too old / frail.
It’s not just epilepsy. And it’s not just their family. This isn’t news. She’s just so tunnel visioned that they’re the only people in the world to live this reality.
Yes it’s scary. yes we all cry about it. Even thinking about it twists my stomach and my kid is the same age as Lu. He will not be independent. we know that. miracles don’t happen. But i work with my psych to understand that and make sense of it. And at the end of the day, we have today. No tomorrow. He might not live for 30 years. I don’t know what his brain will do. So, we rejoice in what we do have TODAY.
Reality sucks. Life is exceptionally difficult with severely disabled children who may die unexpectedly.

But you have to keep going, and find a way. Because without us they have nothing and no one, or they aren’t here at all, and that’s a far worse reality.
Sorry i might sound harsh, but i’m not buying this. This is the everyday of many, many families. If only Erin took the time to lean into it, learn from others, connect with people who do share similarities years ago. She wouldn’t be so bitter, so anxious, so angry. And we all are at times, but it’s not all consuming, it cannot be, because they fucking matter and deserve to not be perceived as burdens or reason for depression.
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Moomin_mama said:

I take it surgery is off the table then

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it’s a word salad, i could honestly interpret it either way. i’m sure she’ll do more stories about it

dulcielaroux said:

Really don’t know how I feel about her saying that if she could go back and talk to pre-kids Erin she’d tell her not to have kids. I don’t have medically complex children but I can’t imagine any of the people I know who do have children like Luella giving this answer. Yes, they’d wish for their children not to suffer but she wouldn’t suggest things would be better without them?

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I have a medically complex child, with a brain injury and my husband and I forever say. We couldn’t change a thing, because if we changed it. We wouldn’t have her, and good or bad. I cannot imagine a world without her in it

Of course we’d change the things that had happened, but if that meant not having her. No way

STOP TAKING YOUR SICK KIDS OUT

santababy said:

I’m ready to punch Erin in the fucking face.

Erin. You discharged Lu and went to the dr because YOU WERENT HAPPY.

It’s taking all my strength to not reply to her

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Exactly THIS! IF YOU HATE THE PLACE SO MUCH - GO SOMEWHERE ELSE!!!!!! As a nurse this pains me so much. Day in day out we absolutely kill ourselves to care for our patients, often leaving our own families at home. And that’s just our rostered shifts. I won’t even start on the overtime we do, the double shifts, the 12+ hour shifts without so much as a toilet break.

She’s so focussed on ‘fixing’ Luella that she can’t see that her neuro not wanting to see her for six months is actually a good thing. In most cases if a specialist is extending the time between your appointments it means they’re reasonably happy with your condition and that you can be left without regular consults without negative impact. It suggests a level of stability for Luella. It’s a great thing - something most people would be celebrating. But because he didn’t ‘fix’ her daughter in the way Erin wanted him to (ie make her not disabled) she’s raging and making it all about her. I hate her.

I feel like her ignorance over the whole schooling situation speaks volumes to her complete lack/refusal of acceptance of this is who Luella is and her reality. Yes it’s shitty, yes you wish it was different, but that doesn’t change that this is the reality. And by not accepting it she is missing out on celebrating all the wonderful things about Luella. Her deficit mindset is probably the worst thing about her.
For fuck sake woman find some positives and joy no matter how small they are because you’ll be a miserable witch the rest of your life if you don’t.

Now suggesting she can’t get an appointment with the neurologist for five weeks because they’re punishing here. Ffs. That’s an amazing turn around on a specialist appointment in the first place, and also that’s not how doctors book appointments? Based on who they want to punish? What an insane thing to suggest!

EveryDaysASoulDay said:

There was this question, which seemed conspicuous to me. It could have been a genuine question from someone else or it could have been her asking herself the question and a window into her current thoughts. I’m sure she asks herself questions to have an excuse to talk about certain things or to be able to air her grievances. (I would bet at least one of those questions about Chrystal was from her.)

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Yes and especially saying that after saying that Lu’s bedroom wlll be downstairs seperated from the family ?
Why with the risk of this would they do that ?????

All the bitching about non inclusive playgrounds, the bathrooms at the hospital etc and then she has the privledge of a custom new build and puts no measures in place for accessibility for Lu after saying she will NEVER walk ! But then saying we don’t know what the future holds…

Reading through the lines

And this could well be another reason why Chrystal left

robbolife said:

The other part of this is that if Erin had spent time taking Luella herself to get to know the parents in her class and building that relationship then they also would have made an effort to come along to a party for Lu.

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I’m still wondering how she can definitively claim that Lu has no friends and that no one would come to a party if she’s never bothered to go to daycare to see for herself. How would she possibly know?

MrsEyeroll said:

For starters PUT THE BABY DOWN in a safe place and help Lu considering she's having a medical episode! How is this even a question? Does it suck having to choose? Of course it would but in what world does a babies sleep come before a toddler seizing?! Oh but how would she get sympathy if she wasn't asking these dumb ass questions making herself out to be a hero. I'm honestly at the point where I can't even hate follow. She literally makes me feel sick.

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I don't even understand this, how on earth is a 4 months old nap more important than attending to a toddler seizing? It might come as shocking news to Erin, but having to split yourself between multiple children is something that sooo many mums have to do. Is it hard? Hell yes. But you just have to prioritise and do the best you can.

Attending to seizure > putting baby to sleep.

Have to go to a therapy appt? Baby sleeps in the car.
Have to eat and put dinner on the table? Baby goes in carrier/bouncer/cot. And if the baby doesn't sleep? Oh well. Put them to sleep once you're able to.

Maybe Erin should take a leaf out of Jaspers mum Sas book. What she says here about her son is profound.

She has this fucked up perception that there’s two types of kids.
Disabled (worse) & Typical (better)
Just shows the type of person and “friend” that she is that she pays no attention or mind to anyone in her life except her.
Would not occur to her that people with TyPiCaL kIdS also have struggles.
Honestly she needs help to change her attitude.
My kiddo isn’t epileptic like Lu but he has some serious stuff going on and he’s the same age, we just started his wheelchair process for him. and we adore him and don’t focus on the negatives because that’s just not helpful to anyone. Life’s to be lived and enjoyed. If she took the time, she’d learn a LOT from her beautiful little girl and the way that Lu sees the world.
We take him to things he may enjoy and cope with (such as the park) and we adapt them to find a way so we see him smile and laugh.
Yes it’s hard and i would love to take his struggles away.
But that’s not going to happen and i love the child in front of me, not one i “thought” i would have. Or in erin’s case, the one she thought she was entitled to.
It’s like Erin sees her life as continually drawing the short straw and like Lu’s existence is some kind of slight to her character or the life she thought she was entitled to. Yet if she took off her miserable lense of her perception, she’d see she’s actually doing okay and has a lot to be appreciative and thankful about. A husband, no financial worries, no need to work, a full time aide, a night nurse, a brand new home being built, living in a beautiful location, LIVING children, just to name a few.
My heart just breaks for Lu. imagine all the comparisons she would hear each day.

Erin is a Narcissist. Whole post is to gather sympathy for herself. It’s Luella who has lost that chance and her parents have had a long time to decide. Not deciding was a decision in itself. Very sad.
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Pollie said:

So sad. Dues it mean poor Lu is expected to go downhill very fast? Just horrific.

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Yes but I think she’s already gone down based on her recent posts.

dulcielaroux said:

I don’t understand this mothers group thing - why didn’t she join a mothers group when Luella was born? Why does she want to be in a group with first time mothers? Why is she intent on acting like Luella is some aberration that doesn’t count?

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Came here to post this too. Wants to join a first time mothers group because that is essentially what she is with Tom, a first time mum? Sorry what? Imagine Rachael said that. Oh I want to join a first time mothers group with Zak because that’s what I “essentially” am?
no Erin. You aren’t a first time “mother” with Tom. You have Lu. Just because she isn’t “typical” does not make her any less of a beautiful, precious littlegirl.

I think this answers it!

Wow this is a new low, even for Erin.

Tom does not need a holiday Erin. He is 1. You could take him to a beach or anywhere and that would be exciting for him. Not that she does much, she’s far too busy running and shopping and expects everyone else to parent her kids.

You know who needs a holiday? Lu. That little girl has been working so hard at her therapy, and would probably love a change from the usual and new experiences even if it’s hard. Every parent knows a holiday with kids is not really a “holiday” but you still can make new memories and have a good time.

I can’t get over what a selfish bitch Erin is. She wanted a relaxing hotel/beach holiday so she booked it knowing full well Lu wouldn’t come. Why is her husband going along with this?? Her parents? She is absolutely disgusting.

Just when I was really empathising with Erin and thinking I had unfairly judged her...she goes and reminds me of why I took issue in the first place .

As said above, if anyone is declining badly enough, you go to hospital and get the treatment. If you stay home, you're well enough to wait. Quite simple really.

I just don't get it...she wants the medication and MRI SO badly but won't do anything to actually get it?

I'm so glad there's a thread here! God I cannot stand this nasty woman and her "deep" captions that are supposed to make you feel sorry for her and only her for having her life "ruined" by Lu. I'm an adult with epilepsy and delays and reading through some of her posts sent my grown ass into a bit of a panic, thinking oh god is this how my mum felt about me? Did everyone just see me as a burden? And I'm an adult with kids of my own, so if reading her posts made me feel that way I cannot even imagine how that poor little girl feels. I hope Chrystal makes Lu feel loved and special because god knows her own mum resents her.

It really pissed me off when she did a poll asking parents of disabled kids (not actually disabled people, because we know actual disabled opinions don't matter to her) what word they use instead of disability. Because she seems to think disability is a bad word and an insult. And showed replies from a bunch of other ignorant people with ridiculous euphemisms they use to avoid accepting that their children are disabled.

I'm really disappointed in mylifeoflove for being best friends with this woman because I always enjoyed following her and she clearly loves Mackenzie dearly and seems to adore Lu too, just the way she is.