I guess that was the post. Seems that the poster needed some attention and I was the target. Probably should not give them any more consideration. Also to set the he/she record straight (per above) I am a "she" with a daughter about TT's age.
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That is what I thought, but I wasn't sure anymore because I think the poster who wrote that unsavory comment directed at you used 'he' instead of 'she.' Also, Miss K of a certain K-vlogs stated that you were likely an Indian male, presumably because of the 'raj' ending.
Heck, if the same was thought of me, I'd just go with it and let them all think I am an Indian male!!
that is pretty funny. Actually the name is Persian...however my choice of it for Tattle Life many years ago was sort of random and had meaning to me only. Also it is unique. I guess it could sound Indian.That is what I thought, but I wasn't sure anymore because I think the poster who wrote that unsavory comment directed at you used 'he' instead of 'she.' Also, Miss K of a certain K-vlogs stated that you were likely an Indian male, presumably because of the 'raj' ending.
Heck, if the same was thought of me, I'd just go with it and let them all think I am an Indian male!!
Kalei has a new video posted. While I write whatever I think here, I try to be less negative in people's comment sections. My comment is below. Was it too harsh or highly incorrect?
Thank you for your interpretation of Job's story, so far. There are three points I would like to relay to you in conjunction with what you presented. First, you talked about bitter vs. better. Those aren't mutually exclusive! Someone could become better in the sense of stronger or more resilient after various trials in life. At the same time, that person could also be bitter. So, the person would be both better and bitter.
Secondly, you asked about what to tell your children about why you will look sick. Why not keep the answer simple? You (will) look sick because you are sick. You will be getting medicine that also causes you to look sick.
The last point I would like to mention is that when Tiffany of the Tiffanythinks channel chose the 'watch and wait' before her pelvic exenteration surgery for locally advanced colorectal cancer, her very well-reputed surgeon at the Royal Marsden, Dr. Rasheed, told her that the risk of 'watch and wait' is that even in two weeks, there could be significant spread that would render her inoperable. In your case, you have known for at least a month, if not more, the situation in both of your lungs. Why is there what seems like at least a month-long wait for your lung surgery? You've been approved for this surgery weeks ago, if not over a month ago. I think you should have been operated on already by now. You mentioned needing another CT scan prior to surgery. You just had one about a month ago, were approved for surgery by your oncology team, and now you will have another CT scan before surgery. Watch and wait shouldn't be done in Stage IV cancer patients! Surgery should have been done after that first CT scan showing significant progression. You also say your cancer is fast-growing. Again, why have YOU or your team chosen to prolong this surgery for over a month now? Sorry, but that is not the ideal route to go where cancer is involved, and certainly not with your type of 'fast-growing' cancer. What have the doctors said to justify this delay, during which you are receiving absolutely no treatment? I almost have the impression that it is you who put on the breaks for this surgery so that you could do things with your family. If so, that is not a good decision because cancer doesn't take vacations!
Thank you for your interpretation of Job's story, so far. There are three points I would like to relay to you in conjunction with what you presented. First, you talked about bitter vs. better. Those aren't mutually exclusive! Someone could become better in the sense of stronger or more resilient after various trials in life. At the same time, that person could also be bitter. So, the person would be both better and bitter.
Secondly, you asked about what to tell your children about why you will look sick. Why not keep the answer simple? You (will) look sick because you are sick. You will be getting medicine that also causes you to look sick.
The last point I would like to mention is that when Tiffany of the Tiffanythinks channel chose the 'watch and wait' before her pelvic exenteration surgery for locally advanced colorectal cancer, her very well-reputed surgeon at the Royal Marsden, Dr. Rasheed, told her that the risk of 'watch and wait' is that even in two weeks, there could be significant spread that would render her inoperable. In your case, you have known for at least a month, if not more, the situation in both of your lungs. Why is there what seems like at least a month-long wait for your lung surgery? You've been approved for this surgery weeks ago, if not over a month ago. I think you should have been operated on already by now. You mentioned needing another CT scan prior to surgery. You just had one about a month ago, were approved for surgery by your oncology team, and now you will have another CT scan before surgery. Watch and wait shouldn't be done in Stage IV cancer patients! Surgery should have been done after that first CT scan showing significant progression. You also say your cancer is fast-growing. Again, why have YOU or your team chosen to prolong this surgery for over a month now? Sorry, but that is not the ideal route to go where cancer is involved, and certainly not with your type of 'fast-growing' cancer. What have the doctors said to justify this delay, during which you are receiving absolutely no treatment? I almost have the impression that it is you who put on the breaks for this surgery so that you could do things with your family. If so, that is not a good decision because cancer doesn't take vacations!
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I personally think: not harsh at all. This is why I believe these overly religious cancer YouTubers are dangerous. I haven't watched Kalei's latest video but if it really is the case that she's 'delaying' surgeries to spend time with her family, either because of fatalistic reasons or because she thinks prayers will take care of it, that is dangerous thinking that she will spread among her viewers. I hope people who at least read your comment will get the right idea. I have personally learned a lot about cancer through Tattle and comments about Tiffany's journey, knowledge I wish I'd known before my mom was diagnosed with it.
Harsh yes but very fair and I agree with what you say. I am not really clear why the wait but her situation is not good at all.
My aunt had an aggressive form of breast cancer while she was post-menopausal. It wasn't hereditary, and her annual mammograms had been clear. Apparently, this aggressive cancer just 'showed up'. She felt a lump on her breast and went to her primary care physician as soon as possible. He didn't think it felt good at all, and he suspected cancer. She was in for a biopsy the next day, and one entire breast was removed two days after the biopsy results. Several lymph nodes were removed as well in a second surgery. (Margins had not been clear after the first surgery.) Then, she had chemotherapy as well as radiation. It's been over 10 years and she is now considered 'cancer-free'. However, the oncologist said that if she had waited just a few weeks more, she might not have survived so easily because her cancer had been of the aggressive form. I have no further details as to what type it was.
There are other comments in Kalei's comment section that question her diagnosis of a few months ago because, apparently, she only had metastasis in one lung and not both. Now, there are metastases in both lungs.
There are other comments in Kalei's comment section that question her diagnosis of a few months ago because, apparently, she only had metastasis in one lung and not both. Now, there are metastases in both lungs.
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I like Kalei but she gets too religious, jesus-y, and bible-y for my taste. I could not watch this last video because of this. I don't know where in the video she talks cancer and I didn't feel like finding out. So I gave up on it. I might go back to it and watch it with more patience later.
Your comment is not harsh, it is informative. You always come from a place of care.
I personally think this is in the realm of medical advice, which should be avoided considering we have no idea what is truly medically going on with Kalei except what she chooses to share. But the underlying point is good, to advocate for herself and to get a second opinion if she thinks her oncologist is or isn’t doing something they should be.
I’ve had personal experience with a family member with this same type of cancer, also young, also very aggressive cancer, and I wish I had known what I do now. We were dealing with a very over-confident oncologist and I believe his overconfidence hastened the disease’s inevitable end. He kept promising the treatment would be curative, gave a few months long break on chemo, didn’t recommend any adjuvant treatments, went on vacations for weeks at a time and had no backup and therefore medical assessment was prolonged when he was out of the country, claimed sepsis after surgery was expected/inevitable, and basically misled us into thinking everything was under control until it was too late. But not knowing better, of course we trusted him. That was a mistake.
It’s good to inform patients that they need to be realistic about their treatment plan, and to be frank about outcomes rather than claiming stage 4 can be cured. If Kalei isn’t aware of the statistics surrounding her disease, she needs to be. There’s always the hope that she could be that one in a million who survives this, or at least lives for several more years, but prayers aren’t going to make her cancer go away, only aggressive treatment can combat it.
Same, I've tried to watch her before and couldn't make it through an entire video. I'm somewhat religious myself, but it just felt too preachy to the point that it began to feel a bit fake to me. I think there's a psychological component because she is using her faith to shield herself from her reality. At the very least Tiff doesn't bring it up in every single sentence. I have sympathy for K and wish her well, but she's really exhausting to listen to. I don't get how she has viewers (unless they're all equally religious)
I think they must be equally religious and enjoy the religious parts. Some of her videos are less religion and those are good, she explains well.
Tiffany is Instagram religious. God is just another product placement to her.
Kalei had a yt short about 2 weeks ago where she stated that her oncologist is looking for a cure leading to remission. Her treatment will be more intense and longer than Kalei thought it would be since a cure is the goal not a temporary fix. She is hopeing the disease will not return. Surgery on her left lung, recover, radiation on her right lung (no need biopsy since they assume it's cancer) followed by 6 months of Folfuri.
I am not a religious person at all but it doesn't bother me if she finds her beliefs comforting. I see that her videos that give results, bad news etc have higher views than her other videos. I'm not sure what that says about viewers....they are willing to watch something bad but not engaged enough to follow and watch all of her vlogs.
I am not a religious person at all but it doesn't bother me if she finds her beliefs comforting. I see that her videos that give results, bad news etc have higher views than her other videos. I'm not sure what that says about viewers....they are willing to watch something bad but not engaged enough to follow and watch all of her vlogs.
judging from Kalei's comments I do think she has a loyal very religious following. I skipped thru this last one to get to the medical part.
Thanks for the summary!
I also had to stop it because of the religion comments. I really like her but I’m an atheist and whilst I know religion and God brings comfort to people, I’d rather listen to her cancer story.
Many food joints have plastic gloves to stop the grease getting all over the hands.
My husband had to wait almost 3 months for surgery even though the MDT had concluded surgery was the way forward. This is in the UK though. Is Kalei US based? I thought all USA patients got scan results the same day ( although Jenny Apple often had to wait long periods for her results) and surgery/treatments are started super swift according to previous posters on the TT threads.
I’m very surprised that any oncologist would mention the word “cure “ to any stage 4 patient. Oncologists and surgeons have no control over microscopic spread. I don’t believe a lot of what Kalei says. I shouldn’t say I am surprised… what I should be saying is that I don’t believe any oncologist or surgeon would tell a stage 4 patient they was “ going for a cure “.
To answer your question. No it’s not harsh in my opinion. You are showing concern about someone with “ fast growing” cancer waiting around without treatment. Connected to my previous posters…. “Fast growing “ = aggressive cancer. Radical approach to hope for the best outcome, but to outright be told they are “going for a cure “? It’s actually laughable. Oncologists won’t even entertain the word “cure” in patients that have remained NED for several years.
Ahhh I am sorry to read the last bit of your post
I think the majority of regular posters on this thread probably understand Tiffany’s disease more than Tiffany does herself. I actually believe Tiffany reads these threads herself. It isn’t coincidence that we had lengthy discussions about radiation only being able to target specific areas, but to treat cancer and try to control spread… systemic treatment is required. After those lengthy posts/discussions our Princess states she is scared because she needs systemic treatment which is why she was happy to delay radiation and start the trial.
@c.sabatier I think it was you that asked how long T’s radiation will last? I believe it to be small fractions over a 3 week period. I think the radiation will mentally and physically impact her much more than the trial treatments did.
I saw that comment on TS! I find it hard to believe that Tiffany would go to such lengths!