The Archie Battersbee Case #6

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Poor, poor Archie. I’m in tears reading this thread, she needs to let him rest now.
 
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And pray tell, which hospice exactly, will wish to take Archie?
 
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Why the duck was she smiling through out that sky interview?! bleeping narcissistic tramp!
 
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I've only dipped in and out of this thread and seen the odd story on social media but I dunno how you have the strength to refrain from arguing with all those idiots online

Sorry if mentioned bit did anyone see that thread on twitter from a nurse who described the whole situation perfectly millieinthesky is her twitter name if anyone wants a read
 
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And is the dad just trying playing along ?

that poor boy just needs to be put at rest
I don’t see much about the dad mentioned. Probably because they’ve been divorced for ten thousand years and he wasn’t in the boys life much before this shitshow. Apparently he’s been kept out of live interviews after saying something Lisa didn’t like. He was at the court hearings. The judge referred to parents present but mouthpiece Ella did all the waffling.
 
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sounds horrible but does have disabilities cause I refuse to believe that someone who’s son is literally dying can be that so composed.
 
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As a HCP I can only imagine the discussions 🙄
I can't help but think of the hospital scene in the movie " little miss sunshine" when the family 'steal' grandpa's body. Have visions of Hollie unplugging everything and trying to get Archie out
 
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I know the family are hurting but it’s terribly cruel of the family to be treating the doctors and nurses this why ! What an earth do they have to gain from ending the life off a child? They have to live with for the rest of their lives no doubt question if there is something they could have done.

I know we can never say how we would react in this situation but I’d like to think I’d be rational and put my child’s needs first ! And removing emotional attachment from a statistic point of view he isn’t going to survive andis using valuable resources that could help save another persos life. I totally get why the nhs have to call it quits. Resourcing and funding is not a luxury, he will be lying like that forever if she had her way.
 
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I can only speak from my experience in Scotland with the Children Hospices we have here, but a child in Archies condition with the level of medical support he requires could probably not be moved to the hospice. The hospice staff aim to support in the most appropriate setting which can be hospital, hospice or home and this is discussed with the hospice team in your ACP when the time is right. If the family wish end of life care to take place at the hospice or at home CHAS can support this but it is dependant on the level of intensive support the child needs.
The highest level of support ie PICU usually means that the child's needs are best met and supported in hospital but they can arrange after death to transfer your child to their 'rainbow room ' which is a dedicated cool room where your child can stay and you be with them after death until the funeral if necessary and the family will be supported by the hospice and make use of the facilities. The hospice staff can arrange for hand and footprints, a hand mould, make memory boxes etc - as the hospital outlined in the letter to Archies Mum that they could do. Paediatric PICU's are prepared for this and offer the same compassion and dignity that the hospice will.
My son died at home in my arms with discreet support from hospice nurse and his MDT from the local Children's Hospital. My friends daughter died in PICU in Edinburgh and they were able to spent time at the hospice with her after.
Parents and families who have used CHAS have a common bond in that we have lost our children but all our experiences are different and whether it be hospital, hospice or home, the decisions are based on what is best for the child and where their needs can be best met with support for the family.
 
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sounds horrible but does have disabilities cause I refuse to believe that someone who’s son is literally dying can be that so composed.
That’s because you are a normal humane person. She has no disabilities unless narcissism is now classed as one, in that case she will be hoping to claim disability living allowance! And not to contradict you, but the boy isn’t dying, he’s already clinically dead.
 
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I know a lot of people don't believe in this sort of stuff, but I would hate to think of Archie being trapped between two worlds all of this time because his body is being forced to linger on here. He needs to be 'whole' wherever his soul is now.
I do believe in this “stuff”. I know our souls can go ahead of us if we are in active dying, but I think his soul will be more free once his body is let go, if you know what I mean. Our bodies are just the vessel for our soul/spirit, but his is being kept alive artificially 😞
 
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