My child is profoundly brain damaged and have severe physical disabilities. We visit a children's hospice regularly for respite due to my child's condition being life threatening and limiting.
For Talia to behave in this way is seriously worrying. If and it's very likely Oakley has Aperts, he would lead a pretty 'normal' life.
Other children with other conditions don't.
I wish I could shake her and force her to come to a children's hospice and she can see with her eyes just how lucky she is.
Oakley is not in a stimulating environment. He's covered constantly from the world and doesn't look like he's ever taken out of his chair. She's purposefully sabotaging his development when he has so much potential.
What I and others would give for out child to have head control, to have fine motor skills, sit up, see the world. No matter how hard I and others try some kids just have a limit they reach with their development because of the severity of their disability. Its heartbreaking. We try so hard and it's taken years just to do something others think of as nothing.
Yet here she is, not seeing how amazing her son is, how much potential he has because she cannot be arsed. Its actual parenting. It's not being a 'medical mumma' its being a parent. You just have to give extra attention to stimulation and development. Give your child the tools to grow. She's given up. Too much hard work for her.
The tumble form chair she's been provided by the OT.... its not to attach toys to (another lazy I can't be arsed to play with him from her) it's for Oakley to be positioned correctly to allow his spine and hips to grow correctly. Help encourage his head control and for him to be PLAYED WITH. Get on the floor and play with him!!! I'll also point out Talia you are very privileged to get that piece of equipment because I know various areas of the UK have such limited, restricted funding when it comes to equipment for disabled children.
Usually areas provide a wheelchair or specialist pushchair, bath aid, a profiling or specialist bed and you'll be lucky to get a physio wedge. There's no gratitude for that chair which let's face it won't be used and another family who'd love for a tumble chair be forced to wait for a chair to be handed back from a family.
So much resentment. So much selfishness.
For Talia to behave in this way is seriously worrying. If and it's very likely Oakley has Aperts, he would lead a pretty 'normal' life.
Other children with other conditions don't.
I wish I could shake her and force her to come to a children's hospice and she can see with her eyes just how lucky she is.
Oakley is not in a stimulating environment. He's covered constantly from the world and doesn't look like he's ever taken out of his chair. She's purposefully sabotaging his development when he has so much potential.
What I and others would give for out child to have head control, to have fine motor skills, sit up, see the world. No matter how hard I and others try some kids just have a limit they reach with their development because of the severity of their disability. Its heartbreaking. We try so hard and it's taken years just to do something others think of as nothing.
Yet here she is, not seeing how amazing her son is, how much potential he has because she cannot be arsed. Its actual parenting. It's not being a 'medical mumma' its being a parent. You just have to give extra attention to stimulation and development. Give your child the tools to grow. She's given up. Too much hard work for her.
The tumble form chair she's been provided by the OT.... its not to attach toys to (another lazy I can't be arsed to play with him from her) it's for Oakley to be positioned correctly to allow his spine and hips to grow correctly. Help encourage his head control and for him to be PLAYED WITH. Get on the floor and play with him!!! I'll also point out Talia you are very privileged to get that piece of equipment because I know various areas of the UK have such limited, restricted funding when it comes to equipment for disabled children.
Usually areas provide a wheelchair or specialist pushchair, bath aid, a profiling or specialist bed and you'll be lucky to get a physio wedge. There's no gratitude for that chair which let's face it won't be used and another family who'd love for a tumble chair be forced to wait for a chair to be handed back from a family.
So much resentment. So much selfishness.
