Psoriasis

[OutrageouslyScarlet]

Thanks I much check it out, am OK now, seems to be more in the winter it's bad, people used to tell me to go on sunbeds in the winter to help it as the heat is good, I hate sunbeds cause I just can't cope with the heat but I did always see that being out in summer made a difference, back then we had no idea about things that could help so we went with what people advised, of course no Internet an doctor was just like "oh it's nothing too bad" so having the elderly lady tell us that we just went by that for years as if seemed to be the one thing that worked but its very helpful to know there's things out there that still use that sort of idea that I can try

I go on sunbeds to keep it at bay, then panic about how much sun I have.. vicious circle

 

[Scorpihoe]

My boyfriends English but he’s worked there for a few years now so is settled and hates the thought of English life again! Can’t blame him


Ah.. I’m taking citalopram to try and calm my stress and worry. So I wonder if this has triggered it a little too.
I’m not sure how many light sessions I have left as they will only let you have a certain amount in your life

Can’t blame him in the slightest. Whenever we visit my boyfriends family, I don’t want to come home

I was on Sertraline for about a year and a half, but didn’t see any effect on my eczema when I came off it. I do want to try LED light therapy, but to be honest whenever I go to the doctors they just throw steroid creams at me and tell me to manage it. I’m too shy to ask for anything else :/

Do you guys find drinking water regularly helps? Like 2 litres a day? I’m starting to do it, but haven’t noticed a difference yet

 

[OutrageouslyScarlet]

I have PsA too! On mtx and etoricoxib which work well for me although there's talk of switching to simponi injections.
I use Enstillar foam for my skin when its bad and its amazing but does contain steroids

I’ve been quite lucky for a while, I get some pain when it’s damp and occasionally when I’ve done quite abit or cycling, it was so bad a few year ago I had to have my knees drained and steroid injections. Since then it’s really calmed down.
I’ve had to give anything with steroids up I have quite olive skin and I found I was burning die the first time ever.

 

[Welsh1]

Have you guys heard of “no moisture therapy”, it’s basically when you ditch all steroid and moisturisers, so that your body will start producing its own moisture. I’ve read a lot about it on Reddit and online (I’ll attach some articles), but honestly I’m too scared to try it...

I've 'cured' my eczema by depriving my skin of ANY moisture after steroids triggered horror reaction

FOR years Jonathan Rowe struggled with an agonising skin condition eczema. But the 32-year-old, from London, says he finally managed to “cure” his eczema – after depriving his ski…

www.google.co.uk

https://www.google.co.uk/amp/s/www....y-ditching-steroid-creams-showering-WEEK.html

I follow a girl called Steph on Instagram who has eczema and she's done this but I feel so sorry for her. She's in a living hell right now while her skin recovers. She hasn't even been able to have a bath in 400 days, 1 shower a week. She is so determined to see it through though and I have nothing but admiration for her.

 

[Snippysnips]

I did try them an I would just do 5mins but god the heat, I couldn't cope with it but they do say 5mins at least once a week is actually OK for it an can keep it under control

 

[Welsh1]

I suffer from this, mainly under my breasts but also my scalp. My scalp never gets much of a flare up so thats not been an issue lately but my GP gave me betnovate gel for under my breasts and its a miracle worker. Im completely clear under my breasts currently, im large busted so usually suffer in the warmer months.

 

[Scorpihoe]

I’ve had a really bad flare up recently so I saw a dermatologist, who has given me antibiotics and antibacterial medication to calm my skin. But it’s getting really bad lately and affecting my life so much I’m due for a follow up in 6 weeks, if it remains like this, he said he’s considering putting me on Methotrexate

 

[Snippysnips]

The psoriasis on my face has gone crazy over the past year, particularly round my nose and chin. I'm not sure if wearing a mask has made it worse. I found this balm really helped: https://www.lyonsleaf.co.uk/Calendula-and-Marshmallow-balm

It hasn't shifted the psoriasis but it's really helped with flakiness and the redness has calmed too.

Thanks I'll check it out, am kindi used to it being a more of a flare in winter so am not sure if the mask is causing it to be worse or not, it's more a annoyince than anything for me but be nice to have somthing to calm it so am not feeling paranoid that I've skin lose around my nose

 

[AngryBird]

I have a type of eczema called Pomphylox (Greek word for bubbles) - or more commonly dyshidrotic eczema. It affects the hands and soles of the feet. It looks awful - little bubbles beneath the skin. It all peels and can be really sore.

I actually only get in on my right foot now but I was prescribed Diprosalic cream, which always clears it up quickly. Thank goodness. I never want to be without this cream.

It is good for scaly type of eczema and unlike some steroids does not thin the skin.

I just put this in here as no one else has mentioned it. It may be useful for someone.

Ugh. I've had this in the past. Feet and hsnds! So sore. I currently have a small patch of psoriasis trying to start again on my leg but seem to be controlling it so far. Elbows still clear! I find this really crazy after decades of it there. I can only assume Vit D is working.

 

[Scorpihoe]

I follow a girl called Steph on Instagram who has eczema and she's done this but I feel so sorry for her. She's in a living hell right now while her skin recovers. She hasn't even been able to have a bath in 400 days, 1 shower a week. She is so determined to see it through though and I have nothing but admiration for her.

Oh wow! Would you mind telling me her Instagram please? I’d love to follow the journey

 

[Magik27]

My husband developed really severe psoriasis a few years ago all over his body (particularly bad on his hands and legs) and was referred for UV light treatment at the hospital. He only had about 10 sessions and it cleared right up - his skin was perfect. Recently it flared up again randomly, then coincidentally a few weeks later he stopped taking his antidepressants (fluoxetine), that he had been on for a few years, and it’s cleared right up again. So now we’re thinking they must have been linked, as the psoriasis really only appeared when he started taking the tablets. Doctor has said it’s likely that this is the case. Strange!

 

[Blairr]

I too have psa and scalp psoriasis plus other issues, been on methotrexate for 4 years......it’s helped me so much.
All dose changes including starting it initially take 3 months to kick in....,how are you finding it now?

It hasn’t helped at all. They’ve switched my over to injections as they think I might not be absorbing it orally due to another medical condition I have! They’ve had to move me down to 10mg to start with. I don’t have much hope to be honest with you!

The next step is Biologics which is kind of annoying since I’ve had no side effects taking MTX :-(

 

[MonkeyTennis]

Sadly childs farm didn’t work for me, it mad how some things work for some and not others. I’ve read child’s farm has worked for lots of people

Sorry to hear that, it really is a game of trial and error until you hit upon what works for you.

 

[RandomUser12345]

The only thing that leaves my hair feeling remotely OK now is ketoconazole. I'm allergic to salicyclates, so most of the remaining products are out of the question and the GP looked at me as though I'd asked for the ingredients to set up a home meth lab when I asked about enstilar or exorex. It's not a perfect solution and oh, THE BURNING ITCH without Psoriderm or T-Gel, but I can just about batter through most of the time with it & Eucerin Dermocapillaire lotion.

Baths and showers are so much harder now without Psoriderm. One bath a week with hibiclens makes sure nothing gets infected or colonised, QV gentle wash is OK for showers, but I do wonder how many times I can say 'but I don't need it covered with paraffin, I need it to stop itching and burning so I don't just scratch my way through a layer of paraffin when I'm asleep'.

Yours sounds alot worse than mine sadly but I had a look up ketoconazole and nizoral came up which I have tried before to no avail!

I think the capasal is doing something so I think it must definitely be the coal tar that works for me. Just need to try and find a stronger product!

 

[AngryBird]

Vitamin D capsules monthly and quitting my stressful job have kept me psoriasis free for 5 years. Before that a 40 year continual struggle with it.

 

[Scorpihoe]

I suffer from this, mainly under my breasts but also my scalp. My scalp never gets much of a flare up so thats not been an issue lately but my GP gave me betnovate gel for under my breasts and its a miracle worker. Im completely clear under my breasts currently, im large busted so usually suffer in the warmer months.

My scalp suffers a bit too, have you tried Neutrogena t gel? Or aveeno skin relief soothing shampoo?

 

[Scorpihoe]

Oh man I didn’t know that about Zerobase! Whilst it’s winter and we are in lockdown .. again. I’m going to speak to my doctor about coal tar.

Oh sorry do you mean zerobase or eumovate? I think eumovate does but I’m not sure about zerobase (I really hope not).

I had some scalp itchiness and dryness, I used coal tar (specifically neutrogena t gel) and it helped

 

[Scorpihoe]

That's exactly what I used to do lol, I honestly can't remeber the oats I used, pretty sure it was just the cheap ones out the shop but it was a little elderly lady that told my mum about it an it was like one of those old wives tales you hear, we didn't have anything to loose so just decided to go for it, it's amazing right?

so so good! It really softened my skin and overall just made me feel much better thank you! I’m going to do some research into what kind of oats specifically!

 

[PoopooKaKa]

Only just found this thread , I've begged for yrs for enstilar and finally got it , suffered with this awful shite since the age of 10 +40 odd yrs, anyone got advice?

 

[JGJB]

Hello, just come across this thread. Sorry if this has been mentioned before but there is a book by Dr John Pagano called Healing Psoriasis. I suffered from terrible psoriasis all over my body about 5 years ago. I used steroid creams and had uv therapy but as soon as I stopped it always came back.

I read Dr Paganos book, followed his diet and used the supplements he suggested and my psoriasis was gone in about 2-3 months.

A few pointers: The diet he recommends is extremely restrictive but it works. He also recommends colonics and chiropractors which I didn't use so not sure if this would have sped up the process or not. And finally the book is very dull but I would have done anything to get rid.

Any flare ups now are minimal and I can easily get them under control by following the diet again.