I was diagnosed many years ago too but got no further advise. Recently diagnosed with type 2 diabetes which I now only after the fact realised is common, if not careful, because of the insulin resistance associated with PCOS..
I am on a few pcos Facebook groups and the general information is that you should have a bleed at least every 3 months even if it’s forced by medication. To stop the risk of the womb lining becoming to thick. I would ask your GP for the tablets that cause a bleed. I was diagnosed 3 years ago and was only given help as I was ttc. Now I’ve had my baby I’ve been left to it. I am on metformin that does seem to help a lot of women with their periods
I had mirena coils for 13 years. It masked the majority of my PCOS symptoms and also helped stop my endometriosis from coming back after it was lasered off. My first was fitted immediately after the surgery and either because of the surgery or because it was my first coil or both I did bleed constantly for about 10 weeks which was brutal. Some tranexamic acid from the Dr sorted that out and after that it was great. The first Dr I saw told me to tough it out, the second said I never should have been left to bleed so long so I probably just had a rubbish experience there! The replacement of the mirena was… I didn’t enjoy it. I left my first coil in too long partly due to covid and partly due to just not sorting out my GP etc and they were nervous about removing it as they were worried it was brittle so went really slowly and I found it all a bit traumatic and may have screamed ‘duck!’ at the top of my lungs during insertion whilst squeezing a nurse’s hand for dear life. How mature of me. The recent removal I had was absolutely fine, however (didn’t have another put in). I understand you can ask for local anaesthetic for fitting now so you could explore that? Sorry if this has put you off. I would just rather be honest. I am glad I had the mirena. Especially as my PCOS symptoms are absolutely beasting me now it’s been removed and I am wondering if my endometriosis has started to return as well!Hi everyone!
I was diagnosed with PCOS this morning. It was kinda unexpected as I never really thought much of my irregular bleeding, and only went to the GP for the coil.
I'm not really sure where to go from here. My GP was so kind, reassuring and informative, but I still feel lost. Luckily, I don't require any medication like metformin, but I only know the basics about PCOS. I'm 90% certain on not having kids, so idk why I'm feeling like this. Taking my hypothyroidism into consideration, I guess I'm just fed up of my body not doing what it's supposed to.
Idk which coil I want either, I've been indecisive about both since the start, and don't have any prior experience with the coil. GP recommends the hormonal coil as it gives endometrial protection.
Any guidance would be greatly appreciated
after coming off the pill Cerazette I've had 2 years of non existent periods. After having a blood test my doctor suspects it's PCOS. He prescribed Metformin twice a day since October last year.It’s only been three months. It’s different for everyone but took me three months to have a period after taking metformin then was regular every single monthHi ladies am I being thick here or something?
I assumed the Metformin would help my cycle become regular again but has made no difference. Is this weird?
Mine are now regular after not having one for over 6 months when I was first diagnosed. I lost about 2 stone and they came back (not saying this is something you need to do as of course I have no idea of your circumstances!). Losing weight and regular exercise did help my symptoms a lot, and I also added a lot more salad and veg into my diet. I have a bit of salad with my tea every evening and try to get a better variety of veg than I was before. I'm not a big fan of fruit so don't each much of that.
I absolutely need to lose weight so this message has motivated me! Thank you so much x
The only thing that has helped me is low sugar, low carb diet with lots of protein, seeds, veg. Alongside supplements inositol, berberine and alpha lipoic. Alongside Metformin. I didn’t see a difference until I had a total lifestyle change.
I have found the tips from these two super helpful!
Ask them for an internal ultrasound to check
I have regular periods every Month. I was diagnosed from the bloods showing the same as yours and an interval ultrasound. I would defiantly go back
Ok thank you!! I will
That’s reassuring to know you still get monthly periods! Thank you, I will do xx
Hey everyone, I thought I’d update as I have since had an ultrasound and seen the GP! My scan came back as abnormal, with “small follicles around the periphery”. More than would be classed as normal but apparently not enough to be an obvious case of PCOS. Strangely, one of my ovaries was much larger than the other (13ml vs 6ml) however my gp said this is fine? But everything I’ve seen online has suggested it’s more a sign of pcos?THANK YOU SO MUCH!! It sounds selfish to say but it’s good to know of other people who have similar experiences! It can be so isolating especially when you have doctors that don’t take you seriously.
I ended up booking a gp appointment last week with another doctor at my practice and thank goodness I did. She was absolutely amazing, was confused why I hadn’t been tested for pcos before! I told her the stuff was other doctors had said and she was very quick to shut them down. I cried in front of her haha. She took my bloods and has put me on the list for a TV ultrasound. I’ve checked the NHS app just before too and it looks as though my blood tests results came back showing (very) high prolactin levels (>800mIU/L- normal range is 102-496!) and testosterone is above normal range too. Hopefully the doctor will call to discuss as googling is just causing me to spiral lol
I've always had regular periods, apart from when I was first diagnosed. It's an endocrinologist you need to see to be diagnosed.
Ok thank you so much!!! I’ll look into it with work on Monday xx
Ahhh thank you so much!!
I’ll definitely get looked into it Monday. Thanks everyone for their support!
