CabalofBolorneaise
VIP Member
They’ve found a donor already, amazingly quick. Hopefully it all goes well for them.
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Monsterflaps
Active member
It must be really scary and terrifying going through this with your child, but I just don't get the pouty peace poses on youtube. Its just bizarre.
WoahThatsCrazy
Chatty Member
That's not accurate in the slighest, you even acknowledge that in your first bit about a neurological disorder like ADHD and dyslexia. Yes that's correct, hence why it's in with the neurdiversity group. But an autistic person who bags their head and can't talk is not worthless. Also not all people like that need lifelong care. Someone who bangs their head is either doing it due to pain, trauma, distress or sensory needs. In which case the point of suffering or distress/trauma etc needs to be found and the person's needs need to be met. And if it's sensory, a safer alternative needs to be found.
And for not being able to talk, it's only society which proclaims that talking with mouth words is the "best" way to communicate, or "only" way to do so. Yet this is not true either, as we have iPads, picture cards, sign language, etc.
Yes this!
People's needs change over time as they grow and develop so if the parents start working with them now (and don't sit on their phones all day like A&P lol!) then the kid should still develop okI was hoping someone would start a thread on here for her. I've watched her since her first "Tubal Reversal Mom" video days. I love her but some of her choices and beliefs are bizarre. And I totally agree about genetics. Fathering Autism's channel name always amused me... fathering genetic mutations.
After the 15mo Penelope video, I went back and watched some of her old updates/autism sign videos. Drives me crazy how much she "forgets" about child development. Lonnie wanted Nelly tested at birth like Liam, but Stephanie disagreed. I wonder if that's part of her current freak-out.
I can't imagine their lives in ten years! Lex's behavioral issues and violent meltdowns will not be easy to control when he's Lonnie Jr's size. And the two teens will hopefully be out of the house so the parents will be completely outnumbered. What if one of the little ones ends up having Abby-level needs?
Maybe a bit "slower", but most milestones are often based on NT people anyways Also I believe that these meltdowns might be due to lack of communication, I haven't watched for a while, I stopped a long time ago, but does he have something to communicate with, eg pictures or an iPad? And is he ok sensory wise? These things should hopefully be thought about too.
Being autistic is "fucked up". Hmm, eugenics much??
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growingupmaassminus1
New member
She mentioned that Noah was on an insurance through the state for autism. She said they pay a premium for it but I imagine it's a much lower premium than a private insurance. I assume Lex and Liam are on the same one too. I don't know personally know how it works but probably through Medicaid.Ah I seeI’m in the UK and the US healthcare system confuses me.
My question has always been about the kids getting disability. She said they make "way too much money for that" but with their family size I don't think that's true. The income limits for a family of 8 are very high and I don't think there's any way she makes that much solely from YouTube. I don't care if they do or don't personally but I care if she's being dishonest.
DairyleaD
Chatty Member
Sometimes she just doesn't appear to be the full ticket.
Hotographer512
VIP Member
Catseverywhere
Well-known member
Jesus, now Noah apparently has Scoliosis. She mentioned in the recent video that things haven't gone how she wanted. I think she found out Nellie is autistic or delayed. Something is off with that kid.
scottishsiren
Active member
Steph vlogged today that she can't take being a youtuber anymore, then whined on and on about negative comments etc. Then said she will still be keeping both channels just uploading less often and when she feels like it. It's the realist I've ever seen her tbh.
Notyourusualytbr
VIP Member
Wow. That’s out of order.
spacetrash
Well-known member
I wish she would get some eye cream, those dry patches on her face look so sore and annoying.
pinkbubblegum
Member
I haven't watched the video about Lonnie's disturbing behaviour yet. I was hoping this thread would be resparked because there are so many things in recent vlogs to discuss especially her jumping to the conclusion she has MS even though her doctor seemed to make it very clear that it was something they were ruling out. I'm yet to watch today's vlog about Noah's wheelchair and was hoping someone with knowledge about low tone would pipe in about it. I wonder what the disturbing behaviour is. Will chime in again once I've watched the videos.
HeyGuyth
Chatty Member
She has made a video about her husband Lonnie and his personality disorder. Apparently he has been diagnosed with antisocial, narcissistic and histrionic personality disorder. He has always creeped me out honestly, I knew something was off with him.
Stephanie keeps saying "he has never cheated". I mean, how does she know? She says in the vlog that his very disturbing behaviour prompted the evaluation. What kind of very disturbing behaviour was this? Animal abuse? She has 6 kids and didn't want to say what this disturbing behaviour was, but I wonder if any of them in that house, including any pets are safe?! I bet he has been abusive in some form to Stephanie/the kids/pets. You don't get diagnosed with THREE such serious personality disorders without being a danger to others in some way. He sounds pretty toxic and dangerous if what Stephanie is saying is true. She seems more concerned with protecting him in the vlog. Stephanie has always come across as very naïve and lacking in boundaries (remember that Ashley chick she had as a friend?!). I feel like she is the type to turn a blind eye anyway.
It's all very concerning since she won't say what these very disturbing behaviours are. One can only speculate that it involves harming or thinking abut harming others/animals with those personality disorders.
Very concerning considering she has 6 children, 4 of which have significant disabilities.
Stephanie keeps saying "he has never cheated". I mean, how does she know? She says in the vlog that his very disturbing behaviour prompted the evaluation. What kind of very disturbing behaviour was this? Animal abuse? She has 6 kids and didn't want to say what this disturbing behaviour was, but I wonder if any of them in that house, including any pets are safe?! I bet he has been abusive in some form to Stephanie/the kids/pets. You don't get diagnosed with THREE such serious personality disorders without being a danger to others in some way. He sounds pretty toxic and dangerous if what Stephanie is saying is true. She seems more concerned with protecting him in the vlog. Stephanie has always come across as very naïve and lacking in boundaries (remember that Ashley chick she had as a friend?!). I feel like she is the type to turn a blind eye anyway.
It's all very concerning since she won't say what these very disturbing behaviours are. One can only speculate that it involves harming or thinking abut harming others/animals with those personality disorders.
Very concerning considering she has 6 children, 4 of which have significant disabilities.
CabalofBolorneaise
VIP Member
I think she’s just in absolute denial about how serious it is. I suppose in her situation maybe I’d be the same way, but that combined with her general attention seeking and the way she seems to get super excited over anything medical with any of her kids means she’s really not coming across well.
Also hoping Lonnie Jr doesn’t have to wait too long for his transplant.
CabalofBolorneaise
VIP Member
Has anyone been following her tiktok and Insta lately? Lonnie Jr is now apparently on the lung transplant list.
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Noir Fan
VIP Member
I asked Steph on a Q&A if any of the family vlogers reached out, she said no, and didn’t expect them to. She said that maybe folks don’t know how to react, and she wasn’t concerned. Of course, I was referring to one family in particular, but didn’t name them. And they do follow her.
Monsterflaps
Active member
She's had a strop and removed that post now because other people were commenting on it too.
DairyleaD
Chatty Member
I was just about to post that. Poor boy has been through hell and he's such a nice kid. I really hope he pulls through.
CabalofBolorneaise
VIP Member
Which family? 🫣
I’m glad the transplant seems to have gone so well, hopefully because he was generally in good health and so young and fit before he’ll bounce back amazingly. It’s so incredible how people do after such serious operations.