Managing an under active thyroid?

[CrazyCatLady101]

Hello fellow thyroid sufferer! I'm also on 225mg of thyroxine. I was lucky that my old GP recognised the importance of keeping TSH levels low and made sure mine was under 1. Last blood test TSH has gone up to 2.5 but as it's "within range" my new GP doesn't think anything needs to be done. Am going back tomorrow to push for an endo referral as I've been steadily declining over the past few months and this week I've been off work for 2 days not being able to get out of bed (slept on and off for 18 hours yesterday).

Definitely get your GP to do some thyroid blood test - as a minimum they should do TSH and Free T4. This will at least give you a starting point to see where things are.

I have a reminder that I have to call on Friday to make an app for more bloods. they are doing them every 6 weeks just now and I think that's how long it takes for the dosage changes to show? Do you think/know if this is why I am unable to loose weight just now?

a few years back I was eating the same thing and walking like I do now but lost 2.5 stone but I am putting on more weight just now and honestly don't understand how!! I am at the point now where I have said sod it, tonight I am having the same as my bf for dinner, chicken fajitas!! xx

 

[Mustard]

Well. I live quite rural n I am just outside the area that covers my old doctors. But they are closing down in April too. The NHS and taking it back as the service as they have too many complaints about it xx

Oh dear, where will all those patients go?

 

[Mustard]

You must insist on seeing an endo. Have you ever been referred to one? Do you belong to any thyroid groups?

 

[CrazyCatLady101]

You must insist on seeing an endo. Have you ever been referred to one? Do you belong to any thyroid groups?

I am going to book an app with my GP, I will ask for one but if they question me what is best to say? no. not a part of any groups. I always just usually keep everything to myself. I don't know anyone with an UAT and feel that nobody really gets it so don't bother them with it x

 

[CrazyCatLady101]

so....I got a letter from the hospital yesterday. I also have PCOS....something I have thought for years but every PG told me no xx

 

[Brocoligal]

Definitely need to see an endocrinologist! 225 is a large dose and with you having UAT since 11, I would have thought the gp would have referred you.
I’m not an expert but UAT can be complicated, you may have a rarer form. I would have expected the GP to request a full blood count, thyroid tests, maybe even test for diabetes?
Any other symptoms?

 

[CrazyCatLady101]

Definitely need to see an endocrinologist! 225 is a large dose and with you having UAT since 11, I would have thought the gp would have referred you.
I’m not an expert but UAT can be complicated, you may have a rarer form. I would have expected the GP to request a full blood count, thyroid tests, maybe even test for diabetes?
Any other symptoms?

she hasn't mentioned anything else to me, I moved house last year and this is a new doctors....my last one never done anything for me at all and basically said loose weight and live with the periods. I am a bit down in the dumps with it all the truth be told, the gyne I seen on Monday basically said to bring my BMI down, I started to tell her all the efforts I am putting in but she wasn't listening so I gave up. She done a smear on Monday too but said it will probs come back inconclusive as I started to bleed when she done it and haven't stopped since. she also said that my blood count is too high for someone to have periods as heavy and long as I am having...making me think she doesn't believe what I am saying x

 

[CrazyCatLady101]

I don't have any, never thought to ask for them. I am in Scotland so are they still free do you think? I am worried they will ask why I want copies and I hate any kind of confrontation so I tend to keep quiet xx

 

[Brocoligal]

so....I got a letter from the hospital yesterday. I also have PCOS....something I have thought for years but every PG told me no xx

Glad you have a diagnoses now. Did you go back to GP for endo referral?

 

[Mustard]

I don't have any, never thought to ask for them. I am in Scotland so are they still free do you think? I am worried they will ask why I want copies and I hate any kind of confrontation so I tend to keep quiet xx

I believe it's the same all over the UK but join the Health Unlocked group and ask them. You will need to steel yourself to become more assertive. On the group you can ask for recommendations for endocrinologists too.

 

[CrazyCatLady101]

Glad you have a diagnoses now. Did you go back to GP for endo referral?

Well, that's another story in itself... I called last week and asked for pain killers... I need Solpadol and was told no YET AGAIN. I've been at this surgery since June 2019 and they never allow me pain killers. I decided to write a letter asking why there is an issue and also requested the referral in the letter along with copies of all my blood work.... We shall see if I get a reply but I'm not holding out much hope xx

 

[Immoslips]

Don’t have one day “off”, pay attention to when you are full and stop eating at that point. Don’t snack between meals. Do at least 30 mins vigorous exercise daily