lifewithjadeedwards #5 Beige

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Rmd0609

fandwild said:
She is really in for an absolute nightmare. My little girl hit every milestone, no concerns regarding language, she's really advanced & we still have found ourselves beginning a journey on the pathway to ASD assessment. Jade really, really needs to step up and advocate for her little boy. It's hard, overwhelming, upsetting, worrying, frustrating - so many things...and yet, nothing is worse than the possibility of your child not getting the help they need and deserve. You can't just be a parent and plead ignorance. We all learn as we go along, yes, but it is entirely upto the parent to be aware of possible issues, to research and to advocate for their child. She really needs to toughen up and get it together for the sake of River.
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Can I please ask how old your daughter is and what signs she’s displayed to make you refer her?
I don’t think jade has her head in the sand anymore about River. I think a health visitor has seen them recently and mentioned about River mixing at play groups and nursery to help his development and they will review it in a few months before a referral is made.
 
S

ShortyIKnow

Sticky One said:
Why are people so against boys having longer hair? I don’t get it 🤣
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I have nothing again boys having long hair at all but has she ever let her little boy decide this? Most passers by think he's a little girl. Let him decide eventually rather than what she would've preferred him to be
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ShortyIKnow said:
I have nothing again boys having long hair at all but has she ever let her little boy decide this? Most passers by think he's a little girl. Let him decide eventually rather than what she would've preferred him to be
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Has she ever said to river let's get our hair cut? He's at that age now where he's aware of his hair and would know that it's bothering him and if he wants it cut or not but it seems to everyone she's actively avoiding it so people assume he's a little girl
 
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Mamatoo2

Yeah but look at the state of the husbands hair, if your little girl or boy has long hair at least brush it & make it look nice
 
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F

fandwild

Rmd0609 said:
Can I please ask how old your daughter is and what signs she’s displayed to make you refer her?
I don’t think jade has her head in the sand anymore about River. I think a health visitor has seen them recently and mentioned about River mixing at play groups and nursery to help his development and they will review it in a few months before a referral is made.
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Of course. Some real sensory difficulties started to present over the last year, really intense special interests and fixations on certain things, a "must do" kind of routine that was her way of self regulating. Very anxious in social settings around kids without help to mix from an adult. Sensory issues around food, etc. Alot of NHS info on symptoms of being on the spectrum is extremely basic and often geared towards boys. When you begin to look into it deeper, you see that it really is a spectrum & so many people present entirely differently to someone else - whilst ultimately still having the same diagnosis.

The whole thing is a process and Jade would really be better getting things moving. Wait & see approach doesn't help anyone IMO.
 
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cill2019

cill2019

Mamatoo2 said:
Yeah but look at the state of the husbands hair, if your little girl or boy has long hair at least brush it & make it look nice
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I was literally coming to say the same thing. Rhod! Jesus man have a wash and ditch the hair band, you’re a grown a man fgs
 
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Emsie

Emsie

Rmd0609 said:
Can I please ask how old your daughter is and what signs she’s displayed to make you refer her?
I don’t think jade has her head in the sand anymore about River. I think a health visitor has seen them recently and mentioned about River mixing at play groups and nursery to help his development and they will review it in a few months before a referral is made.
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I think she still has her head firmly in a H&M carrier bag tbh. Agree that that the hv has probably said go and socialise him and see whats what but Jade should be saying that she already knows what's what and pushing further. Problem is she doesn't know. Most parents of nd kids knew before any hv came along to tell them.
 
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cill2019

cill2019

Emsie said:
I think she still has her head firmly in a H&M carrier bag tbh. Agree that that the hv has probably said go and socialise him and see whats what but Jade should be saying that she already knows what's what and pushing further. Problem is she doesn't know. Most parents of nd kids knew before any hv came along to tell them.
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Absolutely agree. My HV wouldn’t listen to me, kept telling me it was lockdown, he was stimming because he was excited and that he was running whilst looking out the corner of his eyes “because he can” honestly I will never ever forgive her for dismissing me. A complaint was put in.
Jade should be so thankful she has a HV on the ball
 
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F

fandwild

cill2019 said:
It’s River 😞
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...and she's basically ignoring him to talk at her phone about the biggest pile of rit, whilst he's trying to communicate & get his Mums attention. duck sake.

Also...hamster wheel of life? What? 😂
 
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Emsie

Emsie

cill2019 said:
Absolutely agree. My HV wouldn’t listen to me, kept telling me it was lockdown, he was stimming because he was excited and that he was running whilst looking out the corner of his eyes “because he can” honestly I will never ever forgive her for dismissing me. A complaint was put in.
Jade should be so thankful she has a HV on the ball
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Ah lockdown that age old excuse for any sign of ND. Hope you and your little one are doing okay!
 
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W

Waves89

Did anyone actually understand what point she was trying to make with all that rambling on her stories?

River is very clearly neurodivergent and I understand the HV suggesting playgroup, nursery etc to help him come on but really they need to be suggesting beginning assessments for him because Jade certainly won’t take it upon herself to do it. Although I don’t think she’ll cope if he does get a diagnosis.
As a parent you have to push, my daughters school refuse to acknowledge any of my concerns with her because she’s so high functioning and works at a higher level to her age and I’m currently trying my hardest to do all I can but jade will just be ignorant to it and river will suffer in the long run.
 
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F

fandwild

Waves89 said:
Did anyone actually understand what point she was trying to make with all that rambling on her stories?

River is very clearly neurodivergent and I understand the HV suggesting playgroup, nursery etc to help him come on but really they need to be suggesting beginning assessments for him because Jade certainly won’t take it upon herself to do it. Although I don’t think she’ll cope if he does get a diagnosis.
As a parent you have to push, my daughters school refuse to acknowledge any of my concerns with her because she’s so high functioning and works at a higher level to her age and I’m currently trying my hardest to do all I can but jade will just be ignorant to it and river will suffer in the long run.
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This. She absolutely needs to insist the referral is made to begin the assessment process. Everything is a wait as it is. I also find it extremely alien that she was sat there throughout, ignoring him and talking about prioritising herself. And I'm not for one second suggesting that she or anyone else for that matter, aren't entitled to do that - but the real pressing issue that needs to be at the forefront of her mind and to do list, is advocating for her son and informing herself. Learning, research, understanding - again & again, as many times as is necessary until it sinks in. That ought to be her priority, at present.
 
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cill2019

cill2019

fandwild said:
This. She absolutely needs to insist the referral is made to begin the assessment process. Everything is a wait as it is. I also find it extremely alien that she was sat there throughout, ignoring him and talking about prioritising herself. And I'm not for one second suggesting that she or anyone else for that matter, aren't entitled to do that - but the real pressing issue that needs to be at the forefront of her mind and to do list, is advocating for her son and informing herself. Learning, research, understanding - again & again, as many times as is necessary until it sinks in. That ought to be her priority, at present.
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This is what annoyed me so much today. All her stories today have been about prioritising her, how she never thinks of herself bla bla bla. Welcome to motherhood Jade. You’re not the priority. You should be caring more about your ND child.
She really come across as an absolute cat at times, it’s always poor me!
 
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ChubClubThug

ChubClubThug

Could be worse Jade, you could, you know have a job to go to as well as all of that. She just loves to moan. This is nothing new since she had a baby. She's always been like this. I just don't know what she expects from life.
 
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