Kate - its_not_kates_time

[GeorgieBox]

This is Kate's original diagnosed cancer type - treatable, not curable ie ..bluntly ... it will ultimately kill her/she'll die of it ...

BUT ..... if someone where to decide to fake cancer, Metastatic ALK-Rearrangement Positive Non-Small Cell Lung Cancer, like Kate had/has, is certainly one that has a long life expectancy .... just saying ..... I'm not a Doctor, after all ... and the same can be said for the T4NxM1c (Stage IVB) Adenocarcinoma that she was diagnosed with in 2023 ....

Is Metastatic ALK-Rearrangement Positive Non-Small Cell Lung Cancer (NSCLC) Curable?

No, metastatic ALK-positive NSCLC is not considered curable, but it is highly treatable, and many patients live for years with modern targeted therapies. Unlike other stage 4 lung cancers, ALK-positive NSCLC responds exceptionally well to ALK inhibitors, significantly extending survival.

1. Why Isn’t It Considered Curable?
Metastatic (stage 4) lung cancer means that the cancer has spread beyond the lungs (e.g., to the brain, liver, bones, or lymph nodes).

• In stage 4 cancer, even if the visible tumors shrink or disappear, microscopic cancer cells usually remain somewhere in the body, leading to eventual recurrence.
• No current treatment eliminates all ALK-positive cancer cells permanently.

2. Can Long-Term Remission Be Achieved?
Yes, some patients achieve long-term remission (No Evidence of Disease – NED), but this is not the same as a cure because the cancer can eventually return.
ALK inhibitors (like alectinib, brigatinib, lorlatinib) can control the disease for many years.
Some patients live 8-10+ years with treatment, but the cancer almost always develops resistance at some point.

3. How Do ALK-Positive NSCLC Patients Live Longer Than Other Stage 4 Lung Cancer Patients?
ALK inhibitors (targeted therapy) work extremely well, often shrinking tumors by 50-80% and keeping the disease stable for years.
Newer ALK inhibitors (like lorlatinib) help overcome resistance, giving patients multiple lines of treatment.
Radiation (SRS) for brain metastases + ALK inhibitors can keep the disease under control for longer.

4. What Could Lead to a Cure in the Future?

• Next-generation ALK inhibitors that delay or prevent resistance.
• Combination therapies (e.g., ALK inhibitors + immunotherapy or chemotherapy).
• Early-stage detection before metastasis occurs.

5. Final Verdict: Treatable but Not Curable
Metastatic ALK-positive NSCLC is NOT curable with current treatments.
However, it is one of the most treatable forms of stage 4 lung cancer, with some patients surviving 8-10+ years.
Ongoing research may eventually lead to a cure, but for now, the goal is long-term disease control and quality of life.

In addition
Many ALK+ patients stay in NED for 3-5 years on Alectinib alone.
With multiple ALK inhibitors and careful treatment, some patients reach 8-10+ years of survival.
NED is not the same as a cure, but long-term survival is possible.
Regular scans and molecular testing help doctors switch treatments before major progression occurs.

I do believe she has cancer and this has definitely cemented for me that western medicine and the ALK inhibitors are keeping her alive and even giving her the NED results. I really appreciate how clear the ChatGPT response is as this has answered a lot of my questions about how someone in stage 4 can achieve NED or even no growth/shrinkage of tumours. I also think the response regarding differences between scans have helped. I think Kate has leveraged clear scans but doesn't explain which ones would be helpful for her particular condition, namely because a) she fundamentally has not even researched or even understood her own disease and b) likes to use double-speak and talk absolute circles thinking what she does in terms of treatments sounds impressive. How would a lay person know she wouldn't have ultrasound? Or the fact that if they use that at H4C it could plausibly give people a false impression?

H4C is such a scam and I cannot believe she is directing people to that place.

 

[GeorgieBox]

That’s super interesting. If her type of cancer is known to be survivable for years with targeted therapy how come she was claiming doctors told her she only had 6 months to live I wonder.? She mentions this a lot.

I said previously - oncologists have mentioned cancer treatments have absolutely accelerated within the last 20 years. The old chemo trope is apparently for very few patients (loss of hair, nausea, etc). There are way more effective treatments which can prolong life (but not cure cancer) significantly (depending on cancer type). From what I understand it's difficult to get prognosis anymore.

 

[KrittyKat]

That’s super interesting. If her type of cancer is known to be survivable for years with targeted therapy how come she was claiming doctors told her she only had 6 months to live I wonder.? She mentions this a lot.

I think Kate likes to exaggerate/play loose with the truth to suit her story … my thoughts are that IF (and it’s a big IF) conventional Drs said anything about a timeline, it was about her life expectancy WITHOUT the targeted therapy/alectinib.

 

[whathappenedtotherabbit]

I think by the time the docs suggested it she was committed to the alternative path. I think also it was given specifically for her secondary brain tumours as it’s known to work well on that specially? But the way she describes that first doctors appointment is like that doctor had absolutely no idea, but as stated above it was definitely misrepresented.

I swear every time she gets media attention she reminds everyone of the conversation she had with the doctor “go home and drink wine, eat chocolate, spend time with your daughter” nada nada. Any chance to tell that narrative she takes it!

 

[KrittyKat]

I think by the time the docs suggested it she was committed to the alternative path. I think also it was given specifically for her secondary brain tumours as it’s known to work well on that specially? But the way she describes that first doctors appointment is like that doctor had absolutely no idea, but as stated above it was definitely misrepresented.

She was definitely prescribed alectinib/targeted therapy in 2018 - its specific for the type of genetic mutation cancer that she has. Her 2023 diagnosis was a progression of that same cancer. She kind of indicates that the doctors prescribed it, as (according to her) "it would work much better this time around on her brain tumours". She's been a bit unclear about wether she discontinued alectinib at any stage, or if she has continued taking it all along.

That it returned - and in her brain ( ie in a new location) along with lung, liver etc in 2023 - from what I've read, suggests that she continued taking it, as that's a more common progression of the disease. If she'd discontinued it once she had no evidence of disease (ie NED), which she was in mid to late 2019, she would have relapsed (ie same cancers, same location) within weeks to months.

My money is on her having been on it the entire time, and its alectinib that's prolonging her life, not her coffee enemas; not her pen helmets; not her dog worming tablets; not her vaped cannibiol ......

 

[KrittyKat]

I swear every time she gets media attention she reminds everyone of the conversation she had with the doctor “go home and drink wine, eat chocolate, spend time with your daughter” nada nada. Any chance to tell that narrative she takes it!

Also - this was her GP. So it would have been before she saw the oncologist/radiologist/lung specialist etc I'd assume it was her GP who ordered the chest xray; told her the results and then referred her to oncologist/radiologist/lung specialist for a full diagnosis. Maybe it was also the GP who told her that she had 6 - 24 months to live as, as @leeeeleeee pointed out, because of how quickly the research with/on cancer treatments has evolved (and medicine in general) oncologists are increasingly unwilling to give people prognosis/life expectancy deadlines.

 

[KrittyKat]

And here you go - If I believed in woo, I'd caption this with "and the universe always delivers what you need, when you need it " ... but because I don't believe in things like that, let me just say that a quick scroll through her early IG reveals the following:

Exhibit A (screenshot 1 & 2) : In February 2019, Kate is posing asking her oncologist the big question of how long they believe that she has to live.
Exhibit B (Screenshot 3 & 4 ) : paperwork filled in by her GP (based on the dates) where they have ticked the life expectancy box 19 - 24 months. At a guess, I would say that these forms are for accessing her life insurance/superannuation, as IU don't kow of any medical form that would have this (and a quick check on Chat GPT confirms this - Australians also have access to a social security pension when they are terminal - Disability Pension (DSP) for Terminal Illnes)

These two things together indicate that it was her GP - and not her Oncologist - that gave her the 6 - 18 month figure and IF an oncologist did, it was merely on some paperwork to help her access $$$$

Forms That Require a Doctor to List a Patient's Life Expectancy
There are several medical, legal, and insurance-related documents where a doctor may be required to estimate a patient’s life expectancy. These are generally used for palliative care, financial benefits, insurance claims, or medical decision-making
1. Palliative & End-of-Life Care Forms
Advance Care Plans (ACP) / Goals of Care Documentation

• If a patient has a terminal illness, doctors may document estimated prognosis to guide care decisions.
• Used in hospice admissions or for stopping aggressive treatments.

Do Not Resuscitate (DNR) / No CPR Orders

• If a patient has a poor prognosis, doctors may discuss whether resuscitation is appropriate.

Hospice / Palliative Care Admission Forms

• Many hospice programs require a doctor to certify that the patient has a life expectancy of 6 months or less if the disease follows its normal course.

2. Insurance & Financial Forms
Total and Permanent Disability (TPD) Insurance Claims

• Some life and health insurance companies require a doctor to estimate prognosis for early payout of life insurance or disability benefits.
• Generally requires certification that the patient has less than 12-24 months to live.

Superannuation (Pension) Early Access in Australia

• In Australia, patients can access their superannuation early if two doctors certify they have 24 months or less to live.
• Requires a Terminal Illness Certification Form, signed by a GP or specialist oncologist.

Compassionate Release of Life Insurance Funds

• Some life insurance policies allow patients with a documented terminal prognosis to access part of their payout before death.

3. Medical & Research Forms
Clinical Trial Eligibility Forms

• Some trials exclude patients with very short life expectancy (e.g., less than 3 months).
• Others may be for end-stage patients needing experimental treatments.

Medical Aid in Dying (MAID) Forms (Countries Where Legal)

• In places where assisted dying is legal (e.g., Canada, some U.S. states, parts of Europe), doctors may be required to confirm a life expectancy of 6 months or less.

4. Government & Disability Support
Social Security / Disability Pension (DSP) for Terminal Illness

• Some government support programs (e.g., Centrelink in Australia, Social Security Disability in the U.S.) allow fast-tracked disability benefits for terminal patients.
• A doctor may need to confirm a prognosis of less than 12 or 24 months.

Aged Care Assessments (ACAT in Australia)

• A terminal prognosis may influence priority for nursing home placement or palliative home care services.

Final Thoughts
Doctors rarely give life expectancy estimates unless required for legal, financial, or palliative care reasons.
Forms often ask for “expected prognosis” in months (e.g., 6 months, 12 months, 24 months) rather than exact timeframes.
Terminal illness certification is most commonly needed for hospice, insurance, or financial claims.

 

[FingerMouse]

And here you go - If I believed in woo, I'd caption this with "and the universe always delivers what you need, when you need it " ... but because I don't believe in things like that, let me just say that a quick scroll through her early IG reveals the following:

Exhibit A (screenshot 1 & 2) : In February 2019, Kate is posing asking her oncologist the big question of how long they believe that she has to live.
Exhibit B (Screenshot 3 & 4 ) : paperwork filled in by her GP (based on the dates) where they have ticked the life expectancy box 19 - 24 months. At a guess, I would say that these forms are for accessing her life insurance/superannuation, as IU don't kow of any medical form that would have this (and a quick check on Chat GPT confirms this - Australians also have access to a social security pension when they are terminal - Disability Pension (DSP) for Terminal Illnes)

These two things together indicate that it was her GP - and not her Oncologist - that gave her the 6 - 18 month figure and IF an oncologist did, it was merely on some paperwork to help her access $$$$

Forms That Require a Doctor to List a Patient's Life Expectancy
There are several medical, legal, and insurance-related documents where a doctor may be required to estimate a patient’s life expectancy. These are generally used for palliative care, financial benefits, insurance claims, or medical decision-making
1. Palliative & End-of-Life Care Forms
Advance Care Plans (ACP) / Goals of Care Documentation

• If a patient has a terminal illness, doctors may document estimated prognosis to guide care decisions.
• Used in hospice admissions or for stopping aggressive treatments.

Do Not Resuscitate (DNR) / No CPR Orders

• If a patient has a poor prognosis, doctors may discuss whether resuscitation is appropriate.

Hospice / Palliative Care Admission Forms

• Many hospice programs require a doctor to certify that the patient has a life expectancy of 6 months or less if the disease follows its normal course.

2. Insurance & Financial Forms
Total and Permanent Disability (TPD) Insurance Claims

• Some life and health insurance companies require a doctor to estimate prognosis for early payout of life insurance or disability benefits.
• Generally requires certification that the patient has less than 12-24 months to live.

Superannuation (Pension) Early Access in Australia

• In Australia, patients can access their superannuation early if two doctors certify they have 24 months or less to live.
• Requires a Terminal Illness Certification Form, signed by a GP or specialist oncologist.

Compassionate Release of Life Insurance Funds

• Some life insurance policies allow patients with a documented terminal prognosis to access part of their payout before death.

3. Medical & Research Forms
Clinical Trial Eligibility Forms

• Some trials exclude patients with very short life expectancy (e.g., less than 3 months).
• Others may be for end-stage patients needing experimental treatments.

Medical Aid in Dying (MAID) Forms (Countries Where Legal)

• In places where assisted dying is legal (e.g., Canada, some U.S. states, parts of Europe), doctors may be required to confirm a life expectancy of 6 months or less.

4. Government & Disability Support
Social Security / Disability Pension (DSP) for Terminal Illness

• Some government support programs (e.g., Centrelink in Australia, Social Security Disability in the U.S.) allow fast-tracked disability benefits for terminal patients.
• A doctor may need to confirm a prognosis of less than 12 or 24 months.

Aged Care Assessments (ACAT in Australia)

• A terminal prognosis may influence priority for nursing home placement or palliative home care services.

Final Thoughts
Doctors rarely give life expectancy estimates unless required for legal, financial, or palliative care reasons.
Forms often ask for “expected prognosis” in months (e.g., 6 months, 12 months, 24 months) rather than exact timeframes.
Terminal illness certification is most commonly needed for hospice, insurance, or financial claims.

Yeah, I was just going to say that I think she used the short life-span thing in order to release her Super to go towards her first H4C and then has just stuck with it because it suits the narrative that she's spun.

 

[leeeeleeee]

She was definitely prescribed alectinib/targeted therapy in 2018 - its specific for the type of genetic mutation cancer that she has. Her 2023 diagnosis was a progression of that same cancer. She kind of indicates that the doctors prescribed it, as (according to her) "it would work much better this time around on her brain tumours". She's been a bit unclear about wether she discontinued alectinib at any stage, or if she has continued taking it all along.

That it returned - and in her brain ( ie in a new location) along with lung, liver etc in 2023 - from what I've read, suggests that she continued taking it, as that's a more common progression of the disease. If she'd discontinued it once she had no evidence of disease (ie NED), which she was in mid to late 2019, she would have relapsed (ie same cancers, same location) within weeks to months.

My money is on her having been on it the entire time, and its alectinib that's prolonging her life, not her coffee enemas; not her pen helmets; not her dog worming tablets; not her vaped cannibiol ......

If she’d been on it all along, would she have relapsed in 23 though? Clearly it didn’t work on the primary cancer?

 

[KrittyKat]

If she’d been on it all along, would she have relapsed in 23 though? Clearly it didn’t work on the primary cancer?

Her type of cancer is "treatable" but not "curable". "Relapse" is a common progression of her type of disease and using alectinib. Over time, the cancer becomes resistant to it and it (the cancer) mutates and will often pop up in other areas (such as the brain) as Kates did. What is a little odd in her case, is that she claims that the oncologist said that alectinib would work, "this time around on her brain tumours" - Standard protocol is to switch to a next-generation ALK inhibitor (e.g., Lorlatinib), when there is a relapse/progression of the disease , but it doesn't appear, from what I can see, that she went on lorlatinib, but instead remained/went back on alectinib.

She's a bit sketchy about whether shes remained on alectinib the entire time; or if she stopped taking it at some point.

Because she's still on/was put back on alectinib after her 2023 diagnosis, my guess is that after a few years in NED, she went off it. She would have needed to have been off it for at least 12 months for her to still be sensitive to it (ie for them to have not changed her to lorlatinib).

 

[somanyteeth]

New thread

Kate Malvenan #2 - its_not_kates_time

Thanks @EveryDaysASoulDay for the suggestion. Hopefully I can tag this thread and link it to number one. Well done everyone on getting to thread two! Lots of good stuff was discovered in thread 1!

tattle.life