What do you remember about those challenges of being unable to speak and write as you were growing up? I can't imagine what that would be like, being around and being aware, but just struggling to communicate.
I guess the first one is you can't, it is perceived that you can't communicate with people. I think there are many ways in which one can communicate through simple touch, through observation. I think there are many ways in which that can happen, and I guess you learn those types of skills because it's kind of enforced upon a person to do so.
So, you know, I think sometimes people have this sense that it must have been very difficult for me, but in some respects or in more respects, many respects, it was beautiful, it was beautiful existence just to observe how human beings interact and to observe life without the absence of words. I think I was very, very fortunate to be in that position because seldom do human beings truly listen to one another. And by being in the position I was in, you're kind of, you're forced to have to hear, to have to listen, to have towas in, you're kind of, you're forced to have to absorb in a way that sometimes the power of speech can conflict that.
So I was very fortunate. And in some respects, it provided dexterity to me, which meant that when I was able to learn to speak and as I got older, it was a skill that I'd probably unconsciously harnessed as a young child, really aided through my amazing mother, Gifty. So that sense of it wasn't as difficult as people think.
The reading and writing thing was a lot more difficult because practically speaking, there's just a lot of things you can't do. There are a lot of things that you are limited to or that become limited if you're not literate. And so that was a lot more challenging.”
“And it also had implications for where I might end up as an adult. because as a young child, it was predicted that I'd end up in assisted living in a home with other adults who have complex learning, disabilities or autism, for et cetera. And part of it was that if you can't read and write, how is it going to be able to function in the real world?
In the real world, obviously, the world is the world. But I think it's interesting how neurotypical people or neurotypical psychologists, professionals can kind of do what type of phraseology they use and how problematic it is, because it very much relines with the medical model of disability, which is disabling, not abling. And so, yeah, so that was a real practical problem.
And it was something that was going to be difficult. But when I was 18, it's very fortunate that I met my college tutor, Sandro, and he had a huge impact on expediting that learning. And it was, well, I mean, it was very consequential, very consequential, because two years later, we got to university and he was instrumental in that.