IBS/IBD sufferers...

[Peggy5]

Omg! thank god i found this thread i’ve wondering for ages whether i have IBS.
My father and cousin have Chrohns/IBD and have to inject.
My dad, grandad and uncle have all had their haemorrhoids removed too.
in 2016, i just randomly become constipated one day and i’m not even joking i was on there for about. an hour TMI**** the smallest thing came out of me and ever since that day i been constipated the gp gave me cream and lactulouse. lactulouse alone is really awful, dulcoease (not dulcax) i find works really well and also a combination of fybogel when things get REAL bad. however before i ever got constipated i was always known by everyone (my family) as suddenly getting the urge to go, it’s so bad i hate it. but if i don’t have constipation i get really stronge urges to go to the loo, i’ve had times i’ve literally had to run of the train before, out cars, feel like i’m going to pass out if i don’t make the toilet, never pains more discomforting, bleeding when wiping, and the sensation of not feeling completely empty sometimes i even feel full up, like i’ve had a whole meal that’s how unempty . i don’t want to inject like my cousin and my dad but i’m worried if i don’t tell the gp’s it’ll get worse. what do you think? does this sound like ibs? or anyone with likely symptoms also?

Sorry to hear you’re struggling
I’d definitely speak to the GP - I have crohns and the symptoms you describe are very similar to what I’ve experienced. Often people forget that IBD isn’t always rushing to the toilet, I suffer extreme constipation and vomiting during a flare as the stricture in my bowel inflames. I’m in no way saying you have a stricture btw! It’s just best to be assessed, and if it is something more that IBS, it’s always beneficial to catch it sooner rather than later. Hope you find something that helps in the meantime

 

[MickeyMouseClubhouse]

Sorry to hear you’re struggling
I’d definitely speak to the GP - I have crohns and the symptoms you describe are very similar to what I’ve experienced. Often people forget that IBD isn’t always rushing to the toilet, I suffer extreme constipation and vomiting during a flare as the stricture in my bowel inflames. I’m in no way saying you have a stricture btw! It’s just best to be assessed, and if it is something more that IBS, it’s always beneficial to catch it sooner rather than later. Hope you find something that helps in the meantime

Totally agree,

@sassylash - Best thing to do is get all the tests you can, Bloods, Endoscopy, MRI etc. Worst thing I did was ignore my symptoms for over 18 months, and ended up exhausted and both B12 and Iron Anemic!

 

[Hello Kitty]

I have Crohn's and currently on day 4 of isolation due to testing positive for covid. I'm double jabbed (was booked for my booster but had to cancel as I felt rough from my flu jab). I feel awful, I'd hate to think what I'd be like if I wasn't jabbed.

Thankfully I had my Humira injection last week. I don't think I'd be able to cope with that and covid!

 

[Kittylover2019]

I have Crohn's and currently on day 4 of isolation due to testing positive for covid. I'm double jabbed (was booked for my booster but had to cancel as I felt rough from my flu jab). I feel awful, I'd hate to think what I'd be like if I wasn't jabbed.

Thankfully I had my Humira injection last week. I don't think I'd be able to cope with that and covid!

I'm on Entyvio for UC and had Covid in the summer, unvaccinated. I was ill for a week with similar symptoms to when I had flu years ago. My sister is immunosupressed and double vaccinated and got Covid in October she was far more unwell than me, her symptoms lasted over 6 weeks.

 

[MickeyMouseClubhouse]

I have Crohn's and currently on day 4 of isolation due to testing positive for covid. I'm double jabbed (was booked for my booster but had to cancel as I felt rough from my flu jab). I feel awful, I'd hate to think what I'd be like if I wasn't jabbed.

Thankfully I had my Humira injection last week. I don't think I'd be able to cope with that and covid!

I had a similar thing, had an infusion then tested positive within a few days. My wife already had it a week before the infusion, which makes me think the infusion weakened me.

I'm still coughing sometimes, 3 months later!

 

[Peggy5]

I had a similar thing, had an infusion then tested positive within a few days. My wife already had it a week before the infusion, which makes me think the infusion weakened me.

I'm still coughing sometimes, 3 months later!

Snap!! Ive still got a tight chest/cough 3m later too

 

[Kim Mild]

Something has set my ibs off these last few days . My triggers are stress or something I've eaten . I hope it's not these mince pies cos I've just had another one .

 

[MickeyMouseClubhouse]

Snap!! Ive still got a tight chest/cough 3m later too

Luckily the tiredness went away, I think we can all do without an extra dose of fatigue!

 

[Mollyoscar_]

Blerghhh 12months in remission, caught covid and got advised to stop meds to allow my body to fight it off and now im in a full blown flare, shitting blood multiple times a day, my back is in bits and i when im not at work im asleep because the fatigue is too much.
It takes at least 2days to hear back off the nurse, her voicemail says if in a flare contact gp or go a&e, so i had a tel appt with my gp who told me if im bleeding i need to.go a&e because she cant prescribe me anything because of the meds im on tbh the thought of waiting god knows how many hours in a crammed waiting room fills me with dread that id rather shut up and put up with it.
I dont get bad pain, i get uncomfortable bloating, back and joint pain, the bleeding & fatigue.

 

[Apple In My Pie]

Eh I have just been tentatively diagnosed with this after two months of acid reflux hell which has just turned into wind/bloat/pain and constipation, not sure if it is IBS but do relate to some of the symptoms & have family links (literally every family member I know has it) I have been put on the evil looking FODMAP diet, this close to Christmas as well, how evil and inconsiderate… someone please help me all my lovely broccoli and cabbage, no more! i have genuinely spent the last 3 years having broccoli n cabbage n asparagus w every meal (it’s all fun and games at Chez Apple ) - but no more!

(In all seriousness though I have been trying to eat healthily for the last 3 years in an attempt to slim down and have ended up with a crappy mindset towards food, not a full on eating disorder but disordered eating iygwim and the guidelines to this diet just sound awful I feel like there’s nothing nice to eat!?!)

 

[MickeyMouseClubhouse]

Eh I have just been tentatively diagnosed with this after two months of acid reflux hell which has just turned into wind/bloat/pain and constipation, not sure if it is IBS but do relate to some of the symptoms & have family links (literally every family member I know has it) I have been put on the evil looking FODMAP diet, this close to Christmas as well, how evil and inconsiderate… someone please help me all my lovely broccoli and cabbage, no more! i have genuinely spent the last 3 years having broccoli n cabbage n asparagus w every meal (it’s all fun and games at Chez Apple ) - but no more!

(In all seriousness though I have been trying to eat healthily for the last 3 years in an attempt to slim down and have ended up with a crappy mindset towards food, not a full on eating disorder but disordered eating iygwim and the guidelines to this diet just sound awful I feel like there’s nothing nice to eat!?!)

Any chance it could be this - https://www.nhs.uk/conditions/hiatus-hernia/

 

[Apple In My Pie]

Any chance it could be this - https://www.nhs.uk/conditions/hiatus-hernia/

I do wonder if it is a hiatal hernia mind you but the GP seemed adamant it was IBS and that i need to rule it out first

 

[MickeyMouseClubhouse]

I do wonder if it is a hiatal hernia mind you but the GP seemed adamant it was IBS and that i need to rule it out first

Thats odd, as there's not a test for IBS, usually they rule out IBDs, and hernias etc first via endoscopies or MRI.

 

[Blahblah93]

I do wonder if it is a hiatal hernia mind you but the GP seemed adamant it was IBS and that i need to rule it out first

Odd. Usually they rule out more serious conditions and then diagnose ibs if all negative.

 

[Shoequeen91]

Firstly Merry Christmas everyone. Not sure why I’m posting this on Christmas Day but suppose it’s better to just write it down before the madness starts!

Recently had some bloods taken and found out that my iron is low (7.4 when it shouldn’t be lower than 10-31). Now for those of you who may have seen my posts on here before you will know I have diverticular disease. I have a lot of symptoms of IDA (iron deficiency anemia) such as I’m always cold, I bruise really easily etc but I’m also aware that taking iron tablets orally is harsh on the gut and can cause constipation which I don’t want with diverticular disease. Has anyone here had low iron in line with their IBD/IBS? If so how did it get resolved?

I don’t want my GP to palm me off with iron tablets and this make me have a flare up. Am I being stupid to request they look at giving me something intravenously or iron injections (if there is such a thing - I’ll admit I need to research). I’m just sick of being ill, or as I always say “I just don’t feel right”. I’ve gone from having great health to 80+ incidences on my health record this year alone since being diagnosed with diverticular disease. It’s a nightmare! I’m young, and in all honesty as ignorant as it sounds, I don’t have time for my body to be fighting against me.

Appreciate any opinions / thoughts

 

[Blahblah93]

Firstly Merry Christmas everyone. Not sure why I’m posting this on Christmas Day but suppose it’s better to just write it down before the madness starts!

Recently had some bloods taken and found out that my iron is low (7.4 when it shouldn’t be lower than 10-31). Now for those of you who may have seen my posts on here before you will know I have diverticular disease. I have a lot of symptoms of IDA (iron deficiency anemia) such as I’m always cold, I bruise really easily etc but I’m also aware that taking iron tablets orally is harsh on the gut and can cause constipation which I don’t want with diverticular disease. Has anyone here had low iron in line with their IBD/IBS? If so how did it get resolved?

I don’t want my GP to palm me off with iron tablets and this make me have a flare up. Am I being stupid to request they look at giving me something intravenously or iron injections (if there is such a thing - I’ll admit I need to research). I’m just sick of being ill, or as I always say “I just don’t feel right”. I’ve gone from having great health to 80+ incidences on my health record this year alone since being diagnosed with diverticular disease. It’s a nightmare! I’m young, and in all honesty as ignorant as it sounds, I don’t have time for my body to be fighting against me.

Appreciate any opinions / thoughts

I had a transfusion of red blood cells when my iron was dangerously low due to my crohns

 

[Mollyoscar_]

I had a transfusion of red blood cells when my iron was dangerously low due to my crohns

Me 2 when my colitis was diagnosed. I was severely anemic, my periods were practically non existant for months which i assume was because of this

 

[Shoequeen91]

@Blahblah93 and @Mollyoscar_ can I ask how low your iron was when you were given transfusions, if you know that is?

 

[Peggy5]

Firstly Merry Christmas everyone. Not sure why I’m posting this on Christmas Day but suppose it’s better to just write it down before the madness starts!

Recently had some bloods taken and found out that my iron is low (7.4 when it shouldn’t be lower than 10-31). Now for those of you who may have seen my posts on here before you will know I have diverticular disease. I have a lot of symptoms of IDA (iron deficiency anemia) such as I’m always cold, I bruise really easily etc but I’m also aware that taking iron tablets orally is harsh on the gut and can cause constipation which I don’t want with diverticular disease. Has anyone here had low iron in line with their IBD/IBS? If so how did it get resolved?

I don’t want my GP to palm me off with iron tablets and this make me have a flare up. Am I being stupid to request they look at giving me something intravenously or iron injections (if there is such a thing - I’ll admit I need to research). I’m just sick of being ill, or as I always say “I just don’t feel right”. I’ve gone from having great health to 80+ incidences on my health record this year alone since being diagnosed with diverticular disease. It’s a nightmare! I’m young, and in all honesty as ignorant as it sounds, I don’t have time for my body to be fighting against me.

Appreciate any opinions / thoughts

Definitely ask for an alternative to standard iron tablets - there’s a “tummy friendly” version but they’ve still caused problems with my crohns. I’ve had iron infusions in the past which have worked wonders, I’m not sure what my iron level was at the time but very low. Hope you get it sorted! X

 

[Shoequeen91]

Definitely ask for an alternative to standard iron tablets - there’s a “tummy friendly” version but they’ve still caused problems with my crohns. I’ve had iron infusions in the past which have worked wonders, I’m not sure what my iron level was at the time but very low. Hope you get it sorted! X

Thank you! I’m just going to have to push for anything but the tablets I think xx