My disease is pretty well maintained through medication although I still have the odd flare up that is more often than not without blood. The thing with chronic illness is you quickly learn you have varying degrees of being unwell and more severe flare ups will have blood in them. Best advice I can give is taking note of symptoms and if necessary keep a food diary. More often than not it’s misdiagnosed as being IBS so the more information that can be given at apts the better.There’s no blood, is that a red flag or can you have it without any bleeding?
Thank you for your reply xx
Take care @Milfordcubicle that sucks hope you’ve got a good support network xxI have crohns, have had a bowel resection and inject myself once a week and have infusions every couple of months. It has literally destroyed my life I had over 25 hospital admissions one year and currently have covid and am really high risk cos im on immunosuppressants. It sucks
I’m so sorry you’re poorly, the threat of catching Covid this past year has been really stressful - sending lots of healing prayers your wayI have crohns, have had a bowel resection and inject myself once a week and have infusions every couple of months. It has literally destroyed my life I had over 25 hospital admissions one year and currently have covid and am really high risk cos im on immunosuppressants. It sucks
My disease is pretty well maintained through medication although I still have the odd flare up that is more often than not without blood. The thing with chronic illness is you quickly learn you have varying degrees of being unwell and more severe flare ups will have blood in them. Best advice I can give is taking note of symptoms and if necessary keep a food diary. More often than not it’s misdiagnosed as being IBS so the more information that can be given at apts the better.
you really have to push sometimes to be heard, I was starting to feel like I was imagining what was going on with me as the GP kept passing off what I was telling them as being nothing . If they were telling me it was fine then I must be exaggerating kind of thing. I ended up on a drip for 3 days and getting a blood transfusion as I was so severely dehydrated and anaemic from going to the toilet so much. You know your own body and what is different for you, if I could go back and tell myself anything it would be to be more assertive about what was going on and not take no for an answer.
Take care @Milfordcubicle that sucks hope you’ve got a good support network xx
Just googled live foods and seems I misspoke. Fermented foods is on the money. Live foods are lava for the time being as I go through the slow process of figuring out what my body likes and doesn’t like - for example, it is not loving raw celery I had as a snackCut to 2020 and I learned about “live foods” and “gut bacteria.”
It could be diverticular disease. Ask for a CT scan if possible as this was how mine was diagnosed, sometimes it can be diagnosed by colonoscopy but because of how young I am doctors weren’t keen on using this as a way of diagnosis for me.Does anyone suffer with endometriosis? I was diagnosed a couple of years ago and put my bowel issues down to that. I had surgery to remove it and my doc advised there was no endo on the bowels but I'm still suffering with bowel issues.
I'm still suffering with diarrhea every morning (2-3 times), cramps in lower tummy, worse on the left side but can happen all over, I have chronic fatigue nearly all the time, headaches, joint pain and the most annoying thing has been recurrent mouth ulcers all over the back of my throat.
My GP has done bloods and my CRP levels have been consistently raised, she mentioned this can happen with IBD.
Has anyone experienced anything similar? I don't know wether to go back to gyne or try a gastroenterologist?
Thank you so much. Will definitely mention this to the doctor because the left side pain has been going on for years, thought it was ovary pain but I think it's more digestive problem now.It could be diverticular disease. Ask for a CT scan if possible as this was how mine was diagnosed, sometimes it can be diagnosed by colonoscopy but because of how young I am doctors weren’t keen on using this as a way of diagnosis for me.
Usually cramps on the lower left side are diverticular related, I tend to get them in the upper left side though. I was really fatigued, not as much now but I have been making sure to take magnesium and B12 daily for the last six months on and off. Also my CRP is only ever slightly raised and more so bor
No one really knows about diverticular disease when I mention is so may be worth looking it up or mentioning it to your doctor. Mine was only diagnosed after I was hospitalised for four days this year cause I couldn’t keep fluid down.
Hope this helps slightly.
No problemThank you so much. Will definitely mention this to the doctor because the left side pain has been going on for years, thought it was ovary pain but I think it's more digestive problem now.
Sending loveI have Crohn's Disease and IBS. I've had the majority of my bowel removed and I'm currently on a chemotherapy drug and steriods. Been having to have a liquid only diet for the past 4 months on and off. Currently in hospital with an anal fistula that requires surgery. Oh the joys of having IBD.
I'm currently on Methotrexate and tbh I absolutely hate it, the side effects are draining. Currently on 40mg of steriods (for 4 weeks then tapering off over 3 months). Yeah man the anal fistula is not fun, the amount of blood loss was insane before I got it diagnosed. Had to have a blood transfusion as had really awful anemia. Hoping I might get a drug change and once this op is over I should start feeling more human. I think if nothing changes a stoma is on the cards which tbh I'm kinda hoping for as I need to get some sort of life back.Sending love
I have Crohn's and had an anal fistula 10+ years ago, the pain from that was awful. I was so relieved after the surgery.
What medication are you on at the moment?
This is me.Does anyone suffer with endometriosis? I was diagnosed a couple of years ago and put my bowel issues down to that. I had surgery to remove it and my doc advised there was no endo on the bowels but I'm still suffering with bowel issues.
I'm still suffering with diarrhea every morning (2-3 times), cramps in lower tummy, worse on the left side but can happen all over, I have chronic fatigue nearly all the time, headaches, joint pain and the most annoying thing has been recurrent mouth ulcers all over the back of my throat.
My GP has done bloods and my CRP levels have been consistently raised, she mentioned this can happen with IBD.
Has anyone experienced anything similar? I don't know wether to go back to gyne or try a gastroenterologist?
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