Hope for Harley

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it just reinforces it for me that they have always known the outlook and his challenges/limitations, but have decided to chance their hand at boosting their bank balance, grifting for as much as they can get In his name.
That's exactly how I feel about the situation too. It's something he was born with and is apparently really rare and there are only 25 cases of it currently. It was always going to affect his mobility and breathing etc.
 
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If she made a tiktok account for awareness, fine. If she made an account explaining his challenges and limitations, how he is expected to deteriorate and the different ways this will present, such as eyesight, hearing, spine deformity, lung function.. again fine. Even if she was open and honest and said "this is my boys reality, and there's limitations to what we can do for him, but what we want to do is make some bucket list dreams come true...get him to spurs, meet his favourite player, have a dream holiday.. " I think the wider public would be absolutely fine with it and be open to donating to give him a boost and support him to make the most of his circumstances.

Telling the world he's only got til now to raise 2.5M, or he can't be saved, that his life depends on it, with all the discrepancies that are coming to light. Pushing it on news channels, to the media, all with the same narrative that his death is imminent and will be painful and undignified while he mobilises well, up and down the stairs, has a fluctuating need for oxygen but largely isn't on it and plays on his computer consoles happily singing, all the things that would put his body under exertion but doesn't seem to? No. Not ok.

I follow a little girl who isn't expected to make her 2nd birthday, her condition is grave, her parents are facing what would be everyone's nightmare. Yet they only seek to raise awareness. They Meet her needs financially themselves via working, ask for nothing for them or even her. The only thing that they have asked for was an Amazon wishlist that benefit the hospice and hospital their baby attends and all the gifts were reasonably priced, carefully chosen, for the benefit of other children so they each could have a nice Christmas. That's what it's about
 
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Mine is my actual lungs that are damaged unfortunately. They can give medication to slow down the progression but that’s it.
This is why she is making me so angry. I would never sit online and beg for money or blame the NHS.
It seems she has had a few problems with GOS hospital.
I’m sure all these hospitals are not wrong like she makes out.
If they correct his spine it will not make his lung function any better unfortunately. So not sure what the operation is going to achieve.

she says his organs are crushing all his organs but for the last 2/3 years he does not seem to have got any worse?
That sounds awful. Is there no type of transplant. Im so sorry I just hate it when people have no options to get better.

I just looked at this family. I do feel when it comes to GFM type accounts the money trail should be visible. Like what is spent so people can trust the situation is transparent.
Once it comes into question anything people can doubt trusting peoples motives. They have raised over 500k.
Thats a big amount in a short time so its good. But they will find it stalls with bad publicity. They just need to make it clear when the operation and all plans and it will probably pick up speed. The public buy into you so you have to be transparent and kind. I cant see a video of the mim or dad being unkind. Maybe they are just sp desperate or dislike social media.

Its easier to get charity for babies and toddlers than teens.
If it were me Id do videos on expenditure and plans. I hope they get all the money as you said he knows his fate and thats scary for a kid.
 
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If she made a tiktok account for awareness, fine. If she made an account explaining his challenges and limitations, how he is expected to deteriorate and the different ways this will present, such as eyesight, hearing, spine deformity, lung function.. again fine. Even if she was open and honest and said "this is my boys reality, and there's limitations to what we can do for him, but what we want to do is make some bucket list dreams come true...get him to spurs, meet his favourite player, have a dream holiday.. " I think the wider public would be absolutely fine with it and be open to donating to give him a boost and support him to make the most of his circumstances.

Telling the world he's only got til now to raise 2.5M, or he can't be saved, that his life depends on it, with all the discrepancies that are coming to light. Pushing it on news channels, to the media, all with the same narrative that his death is imminent and will be painful and undignified while he mobilises well, up and down the stairs, has a fluctuating need for oxygen but largely isn't on it and plays on his computer consoles happily singing, all the things that would put his body under exertion but doesn't seem to? No. Not ok.

I follow a little girl who isn't expected to make her 2nd birthday, her condition is grave, her parents are facing what would be everyone's nightmare. Yet they only seek to raise awareness. They Meet her needs financially themselves via working, ask for nothing for them or even her. The only thing that they have asked for was an Amazon wishlist that benefit the hospice and hospital their baby attends and all the gifts were reasonably priced, carefully chosen, for the benefit of other children so they each could have a nice Christmas. That's what it's about
I think another issue is you do just get desensitised to stuff like this. Especially recently on Tik Tok there's always someone doing a go fund me, an amazon wishlist, fund raisers etc. You do sympathise with what people are going through but without sounding like a complete bleep, charity starts at home and things are really tough for most at the moment. But you especially don't want to part with money when the mother is rude, dictating to people who they can and can't donate to or else they'll get blocked and dictating to what cause they should support and also not being clear on what the money being raised will be used for with breakdown costs. It probably also doesn't help that he's 14, sounds harsh but Ollie was just a baby and actually needed life saving surgery.
 
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Yes and there eye opening I follow Dionne and just added bbygurl very interesting what they have uncovered! I’m new to the thread just and caught up, but myself and my daughter from the start had bad vibes off Kelly she’s about as genuine as a gold plated Rolex and the dad he can barely look at the camera or string a sentence together maybe he’s not as good a actor as Kelly aye? Anyway it all just stinks and I’m so glad I’ve found this thread. The comment he made again on a video yesterday I think it was about him bypassing mummy to cuddle daddy and he said “lick daddy” ?! Kelly laughed and said nooo not lick daddy like wtf is that about it’s very all strange
 
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Yes and there eye opening I follow Dionne and just added bbygurl very interesting what they have uncovered! I’m new to the thread just and caught up, but myself and my daughter from the start had bad vibes off Kelly she’s about as genuine as a gold plated Rolex and the dad he can barely look at the camera or string a sentence together maybe he’s not as good a actor as Kelly aye? Anyway it all just stinks and I’m so glad I’ve found this thread. The comment he made again on a video yesterday I think it was about him bypassing mummy to cuddle daddy and he said “lick daddy” ?! Kelly laughed and said nooo not lick daddy like wtf is that about it’s very all strange

Like yourself I'm new to this thread and not only am I happy I found it, I'm relieved I'm not the only one that gets bad vibes from Kelly & the husband. I usually try to donate to as many GFM as I can, however on this occasion I got a very strong gut feeling from the first video that was sent to me. I'm glad I never donated from the video shared to me and actually trusted me gut for once. I've sat for almost two weeks now watching Kelly's videos, read the GFM, seen multiple videos on the FYP, read comment sections and so many things aren't adding up. I think she's made things sound worse than what they are, she doesn't come across well whatsoever, the husbands behaviour on camera & tv seem very odd, she seems extra sensitive to fair comments asking about the funds and what ifs and Kelly doesn't explain things clearly only leaving people with more questions than answers.

I do hope Harley is OK and gets all the help in life and medically that he needs. I'd never wish bad on a child but Kelly hasn't done Harley any favours by the way she conducts herself especially with the rotten attitude she has. I find her very manipulative and controlling and think Harley's GFM would of done better if she wasn't involved. The tiktok battles and her gifting other creator's doesn't sit well with me at all. The way she speaks about GOSH I think the hospital need to conduct their own investigations into Kelly & the husband. GOSH is a world famous hospital for treating the most sick and vulnerable children so I believe everything including the risks would of been explained to them in great detail before Kelly consented on Harley's operation and she's not happy it hasn't turned out the way she wanted it too even though she was aware of the risks.

Also I don't believe GFM should allow people to withdraw any money out until the target has reached 90% complete maybe or the amount that's been raised should be highlighted even if funds have been withdrawn. It's public money people kindly donated so we should have a clear understanding in the funds.
 
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run down on the posts please til can watch?
Basically bbygurl has gone through all the hospital bill lists with chat gpt and 2 other sources and it doesn't add up. Certain numbers are for cancer not spine issues hard to explain but they do not look legitimate.
 
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Now she knows there's a lot being said against the situation so why if shes that desperate not cleared up the accusations and changes her approach and attitude. Shes done nothing to help convince those questioning things or prove any of it wrong.
 
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Has anyone seen roadman2realmans most recent post? I swear he’s referring to Kelly. Especially how he words himself, emphasis on how he understands how desperate people can be for their child, but he will not bend to rudeness or no manners whatsoever in his inbox, and how it doesn’t sit right with him how said individuals try and force\ pick and choose how fundraising takes place and who does it, and quite telling how he speaks that he understands that “they are trying to save their child”, but it’s also important how they come across to others on social media and how it is a key part of asking for help. Also big emphasis on if he doesn’t like the vibe, he’s not getting involved full stop.… and he doesn’t like the vibe one bit.

kelly the vibe is right off. Nothing adds up. The house of cards is falling
 
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She's donated too, have you seen rentagobUNLEASHED videos in response to rebecca? I honestly think rebecca needs to seriously look at the videos on his account.
She has seen it, she done a clap back video yesterday and he hasn't responded.
 
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Yes and there eye opening I follow Dionne and just added bbygurl very interesting what they have uncovered! I’m new to the thread just and caught up, but myself and my daughter from the start had bad vibes off Kelly she’s about as genuine as a gold plated Rolex and the dad he can barely look at the camera or string a sentence together maybe he’s not as good a actor as Kelly aye? Anyway it all just stinks and I’m so glad I’ve found this thread. The comment he made again on a video yesterday I think it was about him bypassing mummy to cuddle daddy and he said “lick daddy” ?! Kelly laughed and said nooo not lick daddy like wtf is that about it’s very all strange
I watched a video saying the dad is autistic and some of the others.
Has anyone seen roadman2realmans most recent post? I swear he’s referring to Kelly. Especially how he words himself, emphasis on how he understands how desperate people can be for their child, but he will not bend to rudeness or no manners whatsoever in his inbox, and how it doesn’t sit right with him how said individuals try and force\ pick and choose how fundraising takes place and who does it, and quite telling how he speaks that he understands that “they are trying to save their child”, but it’s also important how they come across to others on social media and how it is a key part of asking for help. Also big emphasis on if he doesn’t like the vibe, he’s not getting involved full stop.… and he doesn’t like the vibe one bit.

kelly the vibe is right off. Nothing adds up. The house of cards is falling
He is a campaigner for Harley on the videos Im looking at now. It looks like he has helped with awareness. I cant see why he would be an issue raising money.
I think maybe the mum is thinking people not giving every penny raised to Harley so she might be getting upset but if she is mistrusting of genuine help that backfires. Anyone should be able to help. She may not get 100% of their fundraisers but I dont think she should say no to any money someones grafted for.
I hope she rectifies the situation as April is here and she can ask for followers and viewers to help her through cake sales, car boots and auctions to pay direct after.
Anyone watching is potentially 1$ so she needs them to be active and accept any donation however small.
 
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Seems a lot of people don’t agree with Rebecca calling rent a gob out.
I have just been catching up and ran straight to TikTok after seeing the thread this morning. So glad more people are speaking up. I have followed that bbbygal and Dione. I hope they come out with more receipts as this is just ridiculous now. Surely the police should go see Kelly as it’s stealing. She’s taking money of people and not saying what she’s spending it on.
 

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to me it seems dione isn't in agreement in bbygurls findings about the records. She said she cant see them being false but only said about Harley being able to walk downstairs .
 
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People should google what are the implications of posting a child saying anything sexual, it is child exploitation. Whether is innocent or not and especially a vulnerable child the law is the law and what she posted was weird. If I joked to my child about that they would call me out themselves and call me sick as they should. If my child spoke like that I certainly wouldn't be posting them saying it on the Internet and there would be a serious talk how its inappropriate Its not normal, in all the kids in my family literally dozens ive never heard any of them speak like that even as a a joke
 
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People should google what are the implications of posting a child saying anything sexual, it is child exploitation. Whether is innocent or not and especially a vulnerable child the law is the law and what she posted was weird. If I joked to my child about that they would call me out themselves and call me sick as they should. If my child spoke like that I certainly wouldn't be posting them saying it on the Internet and there would be a serious talk how its inappropriate Its not normal, in all the kids in my family literally dozens ive never heard any of them speak like that even as a a joke
Exactly this. He’s 15 or 16 isn’t he. People are saying they’re toddler sats bum. There is a difference
 
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I watched a video saying the dad is autistic and some of the others.
He is a campaigner for Harley on the videos Im looking at now. It looks like he has helped with awareness. I cant see why he would be an issue raising money.
I think maybe the mum is thinking people not giving every penny raised to Harley so she might be getting upset but if she is mistrusting of genuine help that backfires. Anyone should be able to help. She may not get 100% of their fundraisers but I dont think she should say no to any money someones grafted for.
I hope she rectifies the situation as April is here and she can ask for followers and viewers to help her through cake sales, car boots and auctions to pay direct after.
Anyone watching is potentially 1$ so she needs them to be active and accept any donation however small.
I haven’t seen anywhere that the dad has Autism. I have seen Kelly say she has it but undiagnosed.
It looks like road mad have pulled out of helping all charities from what I have just seen he’s put a post up asking can everyone go and follow one lovely mum I took a look at her page and she’s trying to raise awareness for her son but she also posts other sick children and tries to help them.You can see the genuine ones on that app. Kelly is not one of them.
 
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