Did anyone see a lady emailed a doctor in America to see how the process works. Do they have a valid visa too?
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…how would you not know how much has been raised
How on earth would you not be completely up to date with the earnings when that’s the sole purpose of the campaign? Eggy
Have anyone seen that bbygurl new post? Omg! Kelly was live trying to explain how much money had been raised. You can clearly see she’s lying. She says the money is going on daily and weekly to all different bank accounts 
I'd be wanting to know the total all the time so I can know how closer I am to reaching the target to save my child's life. This is why it doesnt add up at all and why the hell is she a top gifter, gifting other creators and apparently signed to an agency? This whole thing reeks of suspicion and I'm so glad I trusted my gut so didn't donate and glad I found this thread!
If they’re still on universal credit it makes sense, plus it seems that some people are collecting money on her behalf to then send to one of her bank accountsHave anyone seen that bbygurl new post? Omg! Kelly was live trying to explain how much money had been raised. You can clearly see she’s lying. She says the money is going on daily and weekly to all different bank accounts
Doesn’t make any of it better because it’s April and this surgery is meant to be happening asap yet no one knows if they can pay for it
Having money put in Harleys bank account will still effect her UC as she has access to the money. She reckons they need to go in to the bank to check the account, which is strange because child accounts get an app.
Yes i feel this , the way harley acts with his dad makes me feel uncomfortable, there is said it dont hate me
Thank you i find this too its very uncomfortable to watch its very strange
Her not knowing the exact amount is such a red flag! If it was me I’d have a spreadsheet and literally log every penny! I’d also just have one account for it all to go too. UC and HMRC will be aware as she’s so public. She can’t just hide it! Also any PIP or UC payments will stop when she’s out of the country after a certain time. Also I question if the whole family would get a visa. Only Harley and one parent realistically need to be there full time. The USA are so strict over visas. They would have to have firm evidence on how they would afford to support each family member plus Have named accommodation and health insurance. Also potentially a return flight on a flexible ticket.
I know it wouldn’t be ideal but the parents could swap over or the whole family could do one visit. How old are his other siblings, if he has them? What about schooling for siblings? Why does his dad not work?
Another question the NHS can do Halo here so why is he not eligible here but ok in US? The cynical side of me says the DRs in US will do whatever you ask as long as you pay.
anyway sorry for long post this has been bugging me for a while I’m glad I saw this thread!
I know it wouldn’t be ideal but the parents could swap over or the whole family could do one visit. How old are his other siblings, if he has them? What about schooling for siblings? Why does his dad not work?
Another question the NHS can do Halo here so why is he not eligible here but ok in US? The cynical side of me says the DRs in US will do whatever you ask as long as you pay.
anyway sorry for long post this has been bugging me for a while I’m glad I saw this thread!
Can anyone help me work out if dione lever is for or against Kelly? Her videos are confusing
Wouldn't be suprised if she can't claim any more with it being over 16k and she is using the money towards her bills
100%
none of this makes sense at all. How can she not know how much money they have raised. She wouldn’t of even mentioned it either if people didn’t call her out on it all.saying her mum gets some of the money then the GFM goes in to Harleys account then the gifts she needs to add them all up WTF! Why would she need to go in to a bank when it’s surely on the app and her mum would surely know how much is in her account. That video I have seen of her live is disgraceful. She’s got liar written all over her.I’m not sure either as she seems to say things and ask where the money is but then says that bbygurl is not stating facts. At first I thought she was agreeing with all of us but not sure now.has she posted anymore today? A lot of people will talk on Harley now to get clout. At least bbbygurl is speaking facts and showing evidence. I’m glad rentagob said he would go to the police if Rebecca don’t apologise. She did a video too even if she did put a filter on
she knows she’s in the wrong. Calling him a weirdo is disgusting.Of course Bridgey would get herself involved
See this to me is backing up KellyI’m not sure either as she seems to say things and ask where the money is but then says that bbygurl is not stating facts. At first I thought she was agreeing with all of us but not sure now.has she posted anymore today? A lot of people will talk on Harley now to get clout. At least bbbygurl is speaking facts and showing evidence. I’m glad rentagob said he would go to the police if Rebecca don’t apologise. She did a video too even if she did put a filter on
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And then this on rentagob video today
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She definitely seems to be siding with Kelly. I unfollowed her. I wonder how long it will take for Kelly to come back with receipts. There is no way she’s getting over stimulated in her live. She just knows she’s messed up.
The refunding bit sounds so dodgy frankly
I read somewhere early on that it all started as a fundraiser for his 16th then this??Spondylocarpotarsal synostosis (SCT) syndrome treatment is supportive and symptomatic, focusing on managing scoliosis, pain, and developmental challenges, as no causal therapy exists. Management typically involves a multidisciplinary team to address spinal, ophthalmologic, and audiological issues, with treatment including bracing or casting for spinal curves, and potential surgical interventions for complications.
Management and Treatment Strategies:
Key Considerations:
- Spinal Care: The primary concern is often severe scoliosis and kyphosis, which are managed with braces or casting to slow progression.
- Pain Management: Pain management is essential due to vertebral fusion.
- Orthopedic Interventions: Surgical procedures may be necessary for severe skeletal abnormalities, such as hip deformity or to treat strictures.
- Respiratory Care: Chest physiotherapy and careful monitoring are needed, especially in cases with severe kyphosis limiting chest expansion.
- Monitoring and Evaluation: Regular assessments are crucial, including evaluations for hearing loss and ophthalmic issues (like cataracts or retinal anomalies).
- Genetic Counseling: Since SCT is caused by mutations in the FLNB gene and inherited in an autosomal recessive manner, genetic counseling is recommended for families.
- Supportive Services: Physical therapy can help with range of motion and muscle treatment.
So this is the condition Harley has and according to Google, there isn't much treatment available
- Prognosis: While individuals with this disorder can live into adulthood, they often face ongoing physical challenges.
- Anesthesia Risk: A full assessment of the cervical spine is necessary before any surgery requiring anesthesia due to potential instability.
- Diagnosis: Diagnosis is confirmed via skeletal imaging revealing vertebral segmentation defects, as well as carpal and tarsal fusions.
I don't get why she keeps emphasising that he needs to be saved and to be around for his 16th birthday when he seems fine
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