Hi!
I first had endo aged 14 and finally a lap and excision surgery with an endometriosis specialist last year at 28.
My symptoms:
pelvic, lower back, and hip pain - it felt like my lower body was being crushed. The pain got so bad, I felt like I was going to pass out. It was debilitating.
Really painful thighs.
Needing to pee more.
I have been on Depo 10+ years. When I met with the specialist, I was having periods that were lasting 3 weeks+. He decided the depo was no longer enough and surgery was needed. Even though I was on Depo, I was now getting periods and having awful pain.
I had surgery in summer 2020, it was 4 hours long and he removed and confirmed endo. I have stayed on Depo to prevent any potential regrowth and have had zero pain. The surgeon said if I stay on Depo, I will likely have 11+ years of no pain. If I come off Depo (to have a baby), could be around 8-9 years pain free.
My recovery was really good and fast. By week 4 post surgery, I was exercising again - low impact and no weights. By week 6, I was exercising doing HIIT and light weights. My surgeon said my recovery was likely fast because I was fit and had a strong core prior to surgery. The slimmer you are, the less skin there is for them to cut through so less trauma.
My biggest piece of advice is a find an endo specialist. Not all gynes know what to look for in regards to endo while doing surgery. Make sure you have excision, not ablation as ablation can actually make people's endo worse. I recommend Nancy's Nook FB page which has a list of excision specialists on it.
I first had endo aged 14 and finally a lap and excision surgery with an endometriosis specialist last year at 28.
My symptoms:
pelvic, lower back, and hip pain - it felt like my lower body was being crushed. The pain got so bad, I felt like I was going to pass out. It was debilitating.
Really painful thighs.
Needing to pee more.
I have been on Depo 10+ years. When I met with the specialist, I was having periods that were lasting 3 weeks+. He decided the depo was no longer enough and surgery was needed. Even though I was on Depo, I was now getting periods and having awful pain.
I had surgery in summer 2020, it was 4 hours long and he removed and confirmed endo. I have stayed on Depo to prevent any potential regrowth and have had zero pain. The surgeon said if I stay on Depo, I will likely have 11+ years of no pain. If I come off Depo (to have a baby), could be around 8-9 years pain free.
My recovery was really good and fast. By week 4 post surgery, I was exercising again - low impact and no weights. By week 6, I was exercising doing HIIT and light weights. My surgeon said my recovery was likely fast because I was fit and had a strong core prior to surgery. The slimmer you are, the less skin there is for them to cut through so less trauma.
My biggest piece of advice is a find an endo specialist. Not all gynes know what to look for in regards to endo while doing surgery. Make sure you have excision, not ablation as ablation can actually make people's endo worse. I recommend Nancy's Nook FB page which has a list of excision specialists on it.