has anyone had an endometriosis polyp?
I didn't know what Adenomysis was until reading this thread. can you have both? and pcos?
I didn't know what Adenomysis was until reading this thread. can you have both? and pcos?
New to Tattle Life? Click "Order Thread by Most Liked Posts" button below to get an idea of what the site is about:
I had endo removed last year after 2 disastrous IVF rounds. My pelvis was “frozen” with all my pelvic organs glued together, and endo was wrapped around my ureters and on my diaphragm as well as all the usual places.
I’m someone who didn’t really suffer a lot of symptoms & only found out because I’m infertile however I didn’t know it wasn’t normal to need Naproxen for my periods. I’ve taken Naproxen monthly for nearly 20 years without even thinking twice. Apparently most women’s periods don’t hurt at all!
There’s an excellent Facebook group “Endometriosis Guidance and Information Resource UK” which is very helpful for navigating the NHS. There’s specialist centres within the NHS for treating endo & a prescribed NICE pathway, but hardly any GPs know about them/it.
I’m someone who didn’t really suffer a lot of symptoms & only found out because I’m infertile however I didn’t know it wasn’t normal to need Naproxen for my periods. I’ve taken Naproxen monthly for nearly 20 years without even thinking twice. Apparently most women’s periods don’t hurt at all!
There’s an excellent Facebook group “Endometriosis Guidance and Information Resource UK” which is very helpful for navigating the NHS. There’s specialist centres within the NHS for treating endo & a prescribed NICE pathway, but hardly any GPs know about them/it.
Hi, I'm sure you can have them both together however I'm not sure. Maybe someone else knows?
Yes you can have all unfortunately
Hi all! And thank you for starting this thread
I’ve been referred to the gynaecologist to investigate if I have endo. I’m 99% sure I’ve had it since being a teen.
I’m 27 and have been going to the GP’s and A&E since I was 14 with my symptoms.
My symptoms are: incredibly heavy and irregular periods, a mix of constipation and diarrhoea, pain in abdomen, lower back and thighs, painful sex, bleeding after sex, spotting, nausea and vomiting for hours on end whilst on my period, low moods, fatigue, hair on my lower back and constant uti’s.
I was referred back when I was 18 but it was an awful experience. It was my first time going and in the room was 2 male medical students which immediately made me uncomfortable. (I’d be totally fine with that now but at 18 it was very off putting) I told the gynaeo my symptoms and she just shook her head and accused me of making myself sick to lose weight. She then made me undress behind a curtain and told me to lay on the bed. She didn’t tell me what she was going to do and pulled out a huge metal speculum and said “I need to swab you for sexually transmitted infections”. The speculum was the most excruciating pain I’ve ever felt and burst into tears and couldn’t go through with it any longer. She shook her head and said “you really need your swabs doing”. She sent me for an MRI which came back clear and didn’t hear anything else again.
I later researched and read MRI scans can’t even pick up endo.
I’ve since managed my symptoms with the mini pill (continuous) and mentioned my symptoms in passing when I had my last pill check. A couple of appointments later and I’ve finally been referred back. I feel confident enough now that I’m almost 30 I won’t cry and I will demand a laparoscopy until I am blue in the face.
I am sorry for the essay and thank you if you are still reading, but my main questions are:
- Has anyone else had an experience like mine at 18?
- Will my next appointment be similar? Will they just want to swab me for sti’s?
- How long did it take you from initial referral to diagnosis?
Thank you and sending lots of love to you guys x
I’ve been referred to the gynaecologist to investigate if I have endo. I’m 99% sure I’ve had it since being a teen.
I’m 27 and have been going to the GP’s and A&E since I was 14 with my symptoms.
My symptoms are: incredibly heavy and irregular periods, a mix of constipation and diarrhoea, pain in abdomen, lower back and thighs, painful sex, bleeding after sex, spotting, nausea and vomiting for hours on end whilst on my period, low moods, fatigue, hair on my lower back and constant uti’s.
I was referred back when I was 18 but it was an awful experience. It was my first time going and in the room was 2 male medical students which immediately made me uncomfortable. (I’d be totally fine with that now but at 18 it was very off putting) I told the gynaeo my symptoms and she just shook her head and accused me of making myself sick to lose weight. She then made me undress behind a curtain and told me to lay on the bed. She didn’t tell me what she was going to do and pulled out a huge metal speculum and said “I need to swab you for sexually transmitted infections”. The speculum was the most excruciating pain I’ve ever felt and burst into tears and couldn’t go through with it any longer. She shook her head and said “you really need your swabs doing”. She sent me for an MRI which came back clear and didn’t hear anything else again.
I later researched and read MRI scans can’t even pick up endo.
I’ve since managed my symptoms with the mini pill (continuous) and mentioned my symptoms in passing when I had my last pill check. A couple of appointments later and I’ve finally been referred back. I feel confident enough now that I’m almost 30 I won’t cry and I will demand a laparoscopy until I am blue in the face.
I am sorry for the essay and thank you if you are still reading, but my main questions are:
- Has anyone else had an experience like mine at 18?
- Will my next appointment be similar? Will they just want to swab me for sti’s?
- How long did it take you from initial referral to diagnosis?
Thank you and sending lots of love to you guys x
Hi! I can relate a lot to your story - especially the symptoms, at one point I was having 4/5 uti's a year!Hi all! And thank you for starting this thread
I’ve been referred to the gynaecologist to investigate if I have endo. I’m 99% sure I’ve had it since being a teen.
I’m 27 and have been going to the GP’s and A&E since I was 14 with my symptoms.
My symptoms are: incredibly heavy and irregular periods, a mix of constipation and diarrhoea, pain in abdomen, lower back and thighs, painful sex, bleeding after sex, spotting, nausea and vomiting for hours on end whilst on my period, low moods, fatigue, hair on my lower back and constant uti’s.
I was referred back when I was 18 but it was an awful experience. It was my first time going and in the room was 2 male medical students which immediately made me uncomfortable. (I’d be totally fine with that now but at 18 it was very off putting) I told the gynaeo my symptoms and she just shook her head and accused me of making myself sick to lose weight. She then made me undress behind a curtain and told me to lay on the bed. She didn’t tell me what she was going to do and pulled out a huge metal speculum and said “I need to swab you for sexually transmitted infections”. The speculum was the most excruciating pain I’ve ever felt and burst into tears and couldn’t go through with it any longer. She shook her head and said “you really need your swabs doing”. She sent me for an MRI which came back clear and didn’t hear anything else again.
I later researched and read MRI scans can’t even pick up endo.
I’ve since managed my symptoms with the mini pill (continuous) and mentioned my symptoms in passing when I had my last pill check. A couple of appointments later and I’ve finally been referred back. I feel confident enough now that I’m almost 30 I won’t cry and I will demand a laparoscopy until I am blue in the face.
I am sorry for the essay and thank you if you are still reading, but my main questions are:
- Has anyone else had an experience like mine at 18?
- Will my next appointment be similar? Will they just want to swab me for sti’s?
- How long did it take you from initial referral to diagnosis?
Thank you and sending lots of love to you guys x
For me, I've had almost every test imaginable done so I would expect that they may swab you, they may do an ultrasound, they may physically exam you but as all of us who suffer from endo know; that's not the way to be correctly diagnosed. Be persistent and know that your pain and discomfort is valid. Until you've had your official diagnosis, feel free to come here and vent!
Hi all! And thank you for starting this thread
I’ve been referred to the gynaecologist to investigate if I have endo. I’m 99% sure I’ve had it since being a teen.
I’m 27 and have been going to the GP’s and A&E since I was 14 with my symptoms.
My symptoms are: incredibly heavy and irregular periods, a mix of constipation and diarrhoea, pain in abdomen, lower back and thighs, painful sex, bleeding after sex, spotting, nausea and vomiting for hours on end whilst on my period, low moods, fatigue, hair on my lower back and constant uti’s.
I was referred back when I was 18 but it was an awful experience. It was my first time going and in the room was 2 male medical students which immediately made me uncomfortable. (I’d be totally fine with that now but at 18 it was very off putting) I told the gynaeo my symptoms and she just shook her head and accused me of making myself sick to lose weight. She then made me undress behind a curtain and told me to lay on the bed. She didn’t tell me what she was going to do and pulled out a huge metal speculum and said “I need to swab you for sexually transmitted infections”. The speculum was the most excruciating pain I’ve ever felt and burst into tears and couldn’t go through with it any longer. She shook her head and said “you really need your swabs doing”. She sent me for an MRI which came back clear and didn’t hear anything else again.
I later researched and read MRI scans can’t even pick up endo.
I’ve since managed my symptoms with the mini pill (continuous) and mentioned my symptoms in passing when I had my last pill check. A couple of appointments later and I’ve finally been referred back. I feel confident enough now that I’m almost 30 I won’t cry and I will demand a laparoscopy until I am blue in the face.
I am sorry for the essay and thank you if you are still reading, but my main questions are:
- Has anyone else had an experience like mine at 18?
- Will my next appointment be similar? Will they just want to swab me for sti’s?
- How long did it take you from initial referral to diagnosis?
Thank you and sending lots of love to you guys x
Sorry you’re going through this. My symptoms sound very similar to yours. I had a horrible experience trying to have to smear at uni and there was no way I could tolerate the exam. The nurse was horrible and basically told me that I was being ridiculous!
It took 18 months for me to get diagnosed. A lot of that was me waiting for surgery. They also did a smear while I was under anaesthetic having the key hole surgery for the endometriosis.
I have found that having the diagnosis has given me the strength to be firm with the doctors and nurses. There are smaller instruments available for giving women an internal examination/smear but most doctors need to be told specifically that that’s what you need them to use.
I’m so sorry you went through that. A number of years ago I had bleeding between periods, went to the gyno who insinuated that my husband of 7 years was probably cheating and it was an STI (it wasn’t). I was distraught and should have complained.Hi all! And thank you for starting this thread
I’ve been referred to the gynaecologist to investigate if I have endo. I’m 99% sure I’ve had it since being a teen.
I’m 27 and have been going to the GP’s and A&E since I was 14 with my symptoms.
My symptoms are: incredibly heavy and irregular periods, a mix of constipation and diarrhoea, pain in abdomen, lower back and thighs, painful sex, bleeding after sex, spotting, nausea and vomiting for hours on end whilst on my period, low moods, fatigue, hair on my lower back and constant uti’s.
I was referred back when I was 18 but it was an awful experience. It was my first time going and in the room was 2 male medical students which immediately made me uncomfortable. (I’d be totally fine with that now but at 18 it was very off putting) I told the gynaeo my symptoms and she just shook her head and accused me of making myself sick to lose weight. She then made me undress behind a curtain and told me to lay on the bed. She didn’t tell me what she was going to do and pulled out a huge metal speculum and said “I need to swab you for sexually transmitted infections”. The speculum was the most excruciating pain I’ve ever felt and burst into tears and couldn’t go through with it any longer. She shook her head and said “you really need your swabs doing”. She sent me for an MRI which came back clear and didn’t hear anything else again.
I later researched and read MRI scans can’t even pick up endo.
I’ve since managed my symptoms with the mini pill (continuous) and mentioned my symptoms in passing when I had my last pill check. A couple of appointments later and I’ve finally been referred back. I feel confident enough now that I’m almost 30 I won’t cry and I will demand a laparoscopy until I am blue in the face.
I am sorry for the essay and thank you if you are still reading, but my main questions are:
- Has anyone else had an experience like mine at 18?
- Will my next appointment be similar? Will they just want to swab me for sti’s?
- How long did it take you from initial referral to diagnosis?
Thank you and sending lots of love to you guys x
Wow. That is shocking.
Hi all. Im 29, 30 in November.
Been suffering like you all since I was a teenager, years of fighting with doctors and consultants for a diagnosis to be told at 21 it was all in my head. Fast forward 2 years and my current partner brought me to a&e after passing out due to pain 3 times and a cyst was found.
I was diagnosed through surgery 3 weeks later with stage 2. I have had 2 surgeries total needing another currently.
I had a missed miscarriage last may and currently ttc.
I have been in agony the past 2 days but today I am dying I have tried every painkiller in the house and hot water bottles and nothing is easing it. Im at my a&e trip point but due to covid I'm scared to attend..
XOXO
Been suffering like you all since I was a teenager, years of fighting with doctors and consultants for a diagnosis to be told at 21 it was all in my head. Fast forward 2 years and my current partner brought me to a&e after passing out due to pain 3 times and a cyst was found.
I was diagnosed through surgery 3 weeks later with stage 2. I have had 2 surgeries total needing another currently.
I had a missed miscarriage last may and currently ttc.
I have been in agony the past 2 days but today I am dying I have tried every painkiller in the house and hot water bottles and nothing is easing it. Im at my a&e trip point but due to covid I'm scared to attend..
XOXO
Thank you for your replies all
But oh my goodness @JoeBloggs what a horrendous thing for a medical professional to say. I’m so sorry.
It’s so disappointing to hear that specialists in this subject can lack such empathy. It needs to change.
I’m sorry, that sounds awful
have you got a midnight pharmacy nearby? Have you tried codine (edit might be co-codimal not sure of spelling !) as you can get that over the counter.
Last edited:
Don't be scared to attend. Mask up and you will likely be okay. I had a surgery last summer for Endo and was in the hosp for 10+ hours - maskless during surgery and after and was fine. Sorry you aren't feeling well. Xxxxx
Also meant to add in my previous post. One of my most frequent symptoms of endometriosis is shoulder pain. Apparently something to do with the nerves being connected. Several GPs didn’t make the connection and it was only the Consultant who finally tied all my symptoms together.
Just thought I’d mention it in case any of you ladies have the same symptom and wouldn’t make the connection as it isn’t exactly very obvious
Just thought I’d mention it in case any of you ladies have the same symptom and wouldn’t make the connection as it isn’t exactly very obvious
No unfortunately we don't. The joys of the countryside.I’m sorry, that sounds awful
I've decided if I can make it through tonight but still the same in the morning ill go. Im so exhausted I don't even think I could drive.
Oh hope your doing well now xx
Thank you. It was a female doctor as well.Thank you for your replies all
But oh my goodness @JoeBloggs what a horrendous thing for a medical professional to say. I’m so sorry.
It’s so disappointing to hear that specialists in this subject can lack such empathy. It needs to change.
I just got the notes from my first appointment at the endometriosis clinic, and apparently I have an endometrium which is 4 x 3 cm. 
(1.5 x 1.2 inches) on my right ovary. I know it’s probably nothing compared to others but I’m just so surprised by the size of it?!
(1.5 x 1.2 inches) on my right ovary. I know it’s probably nothing compared to others but I’m just so surprised by the size of it?!Im like you, some of my endo is on my ureters. (and every bloody where else.) And I need bilateral ureterolysis. Did you have that? I feel for all of you on this thread. It feels like it's ruining my life at the min
Yes, I had bilateral uterolysis. I couldn’t tell you much about it though! I know it’s important to keep an eye on things as you can lose kidney function. My endo isn’t particularly painful but I’d constantly have traces of blood in my urine whenever tested & it stumped my doctors as my kidneys were fine - we now know why.Im like you, some of my endo is on my ureters. (and every bloody where else.) And I need bilateral ureterolysis. Did you have that? I feel for all of you on this thread. It feels like it's ruining my life at the min
3x4cm is medium sizedI just got the notes from my first appointment at the endometriosis clinic, and apparently I have an endometrium which is 4 x 3 cm.
Under 3cm are considered small and 7cm+ is large. I had a 7cm one removed & I’ve heard of 10cm+ 
God yeah was the same with me! Had ultrasounds and everything and then with my laparoscopy they found out why. I've asked loads if people have had it, just wondered if it was painfulYes, I had bilateral uterolysis. I couldn’t tell you much about it though! I know it’s important to keep an eye on things as you can lose kidney function. My endo isn’t particularly painful but I’d constantly have traces of blood in my urine whenever tested & it stumped my doctors as my kidneys were fine - we now know why.
3x4cm is medium sized
