Eating disorders- Advice & support

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Maybe "full recovery" isn't realistic when an ED has been an ever present in your life? Any improvement is such an achievement and a huge bonus.
Aren't we just setting ourselves up to "fail" if we forever crave that "final bit" and put so much pressure and importance on that ultimate "success"?
That’s a really good point. I’m just tired of forever having those thoughts at the back of my mind.

A few of my wife’s friends have recently admitted to being on MJ and my head is on overdrive to wanting to be on it too.
 
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Thank you for your kind posts. I'm lost, as you put it, and I am so angry with myself. I was good for so long, and then I slipped and the worst thing is I don't care. I know the peri-menopause may have something to do with it, but I'm eating and eating like Pac-man and stopping seems pointless. I have booked an appointment with my doctor to talk about Jabs, not for a weight loss thing so much as to see if anything can dull this voice in my head. Not working doesn't help. I don't know if it might be worth asking your doctor about it from a psychological viewpoint?

It is recoverable. At school I used to watch other people eating chocolate or crisps without caring and envied them their freedom. I'm just so disappointed in myself for putting on this much weight and seeming incapable of stopping. My nutritionist friend is busy getting married (I'm her maid of honour, God help her) but I know following her advice worked beautifully before, and I should be able to do it again - I just feel apathetic in so many ways!
 
In my view this is not about weight loss jabs being the "answer" to what is causing this voice in your head to be so powerful and all-encompassing.

These jabs are very new and no one knows the long term effects despite all the current positive hype.

i would have thought that psychological support and intervention would be what you need if you can access it? Sharing the burden you carry with a professional who knows how to help you manage the intrusive thoughts which fuel the ED?
 
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Urrrggh, I need to vent. I’m feeling so disheartened and just “what’s the point” with this whole recovery thing. I feel so vulnerable and alone and sad and numb. Just over it all.
 
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In my view this is not about weight loss jabs being the "answer" to what is causing this voice in your head to be so powerful and all-encompassing.

These jabs are very new and no one knows the long term effects despite all the current positive hype.

i would have thought that psychological support and intervention would be what you need if you can access it? Sharing the burden you carry with a professional who knows how to help you manage the intrusive thoughts which fuel the ED?
Yes, having read the latest reports on them I'm not convinced they are a long term solution. I do think if I could stop myself it would help but truly it's like I've pressed a self destruct button. I used to have PMI through work, and got therapy that way, but I'm unemployed now. I did ring the GP and ask for help. 3 months later I had a mental health assessment and the nurse told me she'd send me some details of agencies which might help "in a few weeks when she's back from leave". There's an ED group but it has "extensive waiting lists".

It's like I have stopped caring about anything anymore. If I could just flick that switch...
 
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Urrrggh, I need to vent. I’m feeling so disheartened and just “what’s the point” with this whole recovery thing. I feel so vulnerable and alone and sad and numb. Just over it all.
Sending hugs your way. Gentle ones. Do you genuinely see a point to recovery? Anything at all?
 
Yes, having read the latest reports on them I'm not convinced they are a long term solution. I do think if I could stop myself it would help but truly it's like I've pressed a self destruct button. I used to have PMI through work, and got therapy that way, but I'm unemployed now. I did ring the GP and ask for help. 3 months later I had a mental health assessment and the nurse told me she'd send me some details of agencies which might help "in a few weeks when she's back from leave". There's an ED group but it has "extensive waiting lists".

It's like I have stopped caring about anything anymore. If I could just flick that switch...
I think the problem is that we care too much but feel powerless to resist which causes mood to drop even lower and anger and frustration make things worse.

Maybe caring less is what we should aim for? Taking that awful pressure off even just a bit?
 
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Urrrggh, I need to vent. I’m feeling so disheartened and just “what’s the point” with this whole recovery thing. I feel so vulnerable and alone and sad and numb. Just over it all.
"Recovery" doesn't have to mean the "complete works" (whatever that means anyway). Anything that makes you like yourself a bit better is an achievement in my book. I'm sure you can see a point to wanting to make your life happier? Just allowing yourself to lightly loosen those ED shackles without feeling guilty?
 
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Urrrggh, I need to vent. I’m feeling so disheartened and just “what’s the point” with this whole recovery thing. I feel so vulnerable and alone and sad and numb. Just over it all.
It is without a doubt the hardest thing most of us will ever have to do. It’s not an illness that can go away with medication or a plaster (yes I know some antidepressants etc can help but not cure you instantly). It requires constant work and is a continuous battle with ourselves. If you’re a drug addict, yes recovery is very hard but in simple terms and theoretically you never have to see those drugs again. With EDs recovery requires facing your ‘fear’ every single day for the rest of your life so what you’re feeling is totally relatable. I’ve felt the way you describe so many times. It’s hard to give much advice without knowing your circumstances but try to go easy on yourself. It’s hard, really really hard and the fact you’ve even attempted recovery is a massive achievement. Take care of yourself x
 
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It is without a doubt the hardest thing most of us will ever have to do. It’s not an illness that can go away with medication or a plaster (yes I know some antidepressants etc can help but not cure you instantly). It requires constant work and is a continuous battle with ourselves. If you’re a drug addict, yes recovery is very hard but in simple terms and theoretically you never have to see those drugs again. With EDs recovery requires facing your ‘fear’ every single day for the rest of your life so what you’re feeling is totally relatable. I’ve felt the way you describe so many times. It’s hard to give much advice without knowing your circumstances but try to go easy on yourself. It’s hard, really really hard and the fact you’ve even attempted recovery is a massive achievement. Take care of yourself x
You couldn’t sum it up better 💔.
 
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Thanks everyone. I had a couple of days with big crys about some clinician changes (back to a waitlist) but I’m feeling better this week. Felt like I opened up and got the ball rolling to recovery and now I’m back to square one. One day at a time, hey
 
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Hi all, first time poster on this thread, looking for some advice.

Me & my husband believe our 5yr old is showing strong symptoms of ARFID. Do any of you have experience with this, particularily in childhood? I've made the steps to see our GP, however wasn't sure what their process would be like.

Thanks in advance from a worried Mum ❤
 
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Hi all, first time poster on this thread, looking for some advice.

Me & my husband believe our 5yr old is showing strong symptoms of ARFID. Do any of you have experience with this, particularily in childhood? I've made the steps to see our GP, however wasn't sure what their process would be like.

Thanks in advance from a worried Mum ❤
I don't have much advice, I'm sorry, but I was wondering if you know why your child avoids certain foods, as in, is it always sensory aversion? Could it be an allergic reaction to some things that they can't put to words properly, which they want to avoid? It is certain foods that makes them nauseous? If you can have a better picture of what might be the driving force, the GP or a referral might be able to help better as well.

Wishing you the best, I hope the situation improves.
 
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I don't have much advice, I'm sorry, but I was wondering if you know why your child avoids certain foods, as in, is it always sensory aversion? Could it be an allergic reaction to some things that they can't put to words properly, which they want to avoid? It is certain foods that makes them nauseous? If you can have a better picture of what might be the driving force, the GP or a referral might be able to help better as well.

Wishing you the best, I hope the situation improves.
Thanks for replying. We're not 100% sure, but we think it's a texture aversion. Most of the food he will eat are dry e.g. dry cereal (no milk), chips, crackers (plain no butter). If we sit down together for tea and the rest of us are eating something strong smelling, he does tend to cover his nose or gag at the smell. I'm not sure if its almost becoming a phobia at this point for him. He will eat the same warm meal for tea every day, however how much he eats does totally depend. He could eat it all with no issues, or the day after eat 2 mouthfuls and be 'full'. We're just so worried he's not getting enough calories and vitamins. I'm really hoping our GP can help and point us in the right direction.

Thank you, I appreciate it x
 
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Hi all, first time poster on this thread, looking for some advice.

Me & my husband believe our 5yr old is showing strong symptoms of ARFID. Do any of you have experience with this, particularily in childhood? I've made the steps to see our GP, however wasn't sure what their process would be like.

Thanks in advance from a worried Mum ❤
Hiya :) Not sure how much help I can be - but I'm an adult sufferer of ARFID and I've had it all my life - though was only diagnosed about 10 years ago.

So, what you've described with your son DOES sound as though it could be ARFID. I know you don't need my life story (will keep it brief) I developed emetophobia when I was a toddler and that was what brought on my eating disorder.

This manifested as me constantly gagging/choking and fearing food. Couldn't eat what my parents did and I was restricted to the same small group of foods (often dry/crunchy) every day. I'd have the same thing for breakfast/lunch/tea every day and the amounts I ate would vary depending on how anxious I felt...

The single most important thing I'd say to you is - whatever he's eating, however he's eating it - just let him for now. With ARFID any nutrition, from any source, is better than nothing. Completely understand your concerns around calories and vitamins, though, as it can be an issue (it is still for me now). There are tasteless/odourless vitamin powders you can buy that can be sprinkled and dissolved into drinks - I've seen a brand called Nutrigen that some parents of kids with ARFID recommend.

https://www.arfidawarenessuk.org/ is a good source of info and support - and a good place to start before you see the GP, then you can be armed. with info.

Are you on instagram or anything? There is an account called eff_and_arfid, and it's a mum who posts about her young daughter who has the condition - she runs a support account with two other mums, who have ARFID kids who are about your son's age, too - they post loads of useful info and support.

I'll stop rambling, but just to say you and your son are not alone. If nothing else, I completely understand...
 
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Hiya :) Not sure how much help I can be - but I'm an adult sufferer of ARFID and I've had it all my life - though was only diagnosed about 10 years ago.

So, what you've described with your son DOES sound as though it could be ARFID. I know you don't need my life story (will keep it brief) I developed emetophobia when I was a toddler and that was what brought on my eating disorder.

This manifested as me constantly gagging/choking and fearing food. Couldn't eat what my parents did and I was restricted to the same small group of foods (often dry/crunchy) every day. I'd have the same thing for breakfast/lunch/tea every day and the amounts I ate would vary depending on how anxious I felt...

The single most important thing I'd say to you is - whatever he's eating, however he's eating it - just let him for now. With ARFID any nutrition, from any source, is better than nothing. Completely understand your concerns around calories and vitamins, though, as it can be an issue (it is still for me now). There are tasteless/odourless vitamin powders you can buy that can be sprinkled and dissolved into drinks - I've seen a brand called Nutrigen that some parents of kids with ARFID recommend.

https://www.arfidawarenessuk.org/ is a good source of info and support - and a good place to start before you see the GP, then you can be armed. with info.

Are you on instagram or anything? There is an account called eff_and_arfid, and it's a mum who posts about her young daughter who has the condition - she runs a support account with two other mums, who have ARFID kids who are about your son's age, too - they post loads of useful info and support.

I'll stop rambling, but just to say you and your son are not alone. If nothing else, I completely understand... <3
Thank you so much for your response. I really appreciate it.

I do have instagram so i will certainly look on there, and at the link you sent too.

He had a bowl of dry cereal for tea the other day after refusing what would usually be a ‘safe tea’ for him. But as you said, as long as he is eating something, its better than nothing at all.

Hope you are doing ok too ❤
 
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It may be worth taking an NHS printout of what ARFID actually is as some GPs may not have heard of it? (The older ones, probably)

Wishing you the very best of luck with the GP visit and please keep us posted. Your little boy is lucky to have you b.oth as caring parents
 
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It may be worth taking an NHS printout of what ARFID actually is as some GPs may not have heard of it? (The older ones, probably)

Wishing you the very best of luck with the GP visit and please keep us posted. Your little boy is lucky to have you b.oth as caring parents
thank you so much, thats very kind ❤
 
Just sending warmest thoughts to everyone on here..So many triggers out there for us to manage.
 
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Just sending warmest thoughts to everyone on here..So many triggers out there for us to manage.
It’s the Wild West out there (and on here) at the moment. You can’t move for mention of the jabs and when Joe Wicks is demonising sugar and fruit, it feels like the world has lost its head.

I feel like I’m back in the 90s being told to eat Ryvita and cottage cheese.