Finally got my fibro diagnosis this afternoon. Thinking back to how my Gran was, I believe she had it too. I'm unsurprised by the diagnosis but still so upset.
Love to all.
Love to all.
Im surprised this is able to continue tbh . . I recently ( by accident) requested a medication and I was text back telling me exactly when it was last issued and when I was able to request it again.Hi, I don’t have chronic pain but looking for advice. My friend has chronic pain. He is on a lot of different pain relief for it. But he takes over what is prescribed a lot of the time for example taking 5 times over on one medication, three times of another (known to take 4 times as well). I’m not with him everyday so not sure if it’s a daily thing but I’d say every time I am he takes extra. The pharmacy also gave him quite a lot of extra medication twice by accident without knowing and he still used all this medication before the new medications were due. this medication he admitted to another friend he is addicted to in the past. I find him hard to be around the majority of the time as often he is in a bad mood, argumentative and complains most of the time. I feel his mood changes easily. I also feel I’m walking on egg shells trying not to annoy him or say something where he’ll argue with me about it. I think this could be a sign of addiction? But not sure if it’s just due to the pain? Not sure what I can do about it anyway.
We usually do everything together but I also want to do things that he would not be able to do due to his condition and the things he wants to do a lot of the time I don’t enjoy as I want to be doing other things. I feel bad and just go along with what he wants most of the time. He makes me feel bad if I do something alone and I even invite him sometimes, he doesn’t come then gets annoyed at me for doing it. Would you be mad if I just booked it? Should I just book and do what I want? I know it sounds bad but I think I’d enjoy it more alone anyway.
He still works so gets out for that. He blames me for being hard to make plans with but won’t do anything on the a singular day off, yet I give him 14 days off a month I can do. There’s been times I’ve got on on a bus on the way to see him and then he decides he doesn’t want to come out. Being around him the majority of the time I’m bored or just secretly annoyed as I am just not enjoying myself. I cater to his needs most of the time just every now and then he pushes through to do what we have planned. I want to go on a physical activity holiday which I know he can’t do, he’ll want me to change my plans so he can go but I just don’t want to spend my money on something I don’t want to do, I want to spend it on what I want. He’d get annoyed if I went with someone else (although I want to go alone) whereas I wouldn’t care if he did it.I know for me Fibro had taken the fun out of days out or planning activities with my friends and family. I was always on edge waiting for a flare and stopped doing things I loved out of the fear. I spoke with a counsellor earlier this year and it really has helped me, I spent so much time worried about "what if" instead of thinking ok I might need a few days to recover but I can plan for this now, or I might be ok, but I'll still prepare to be nicer to myself anyway.
Chronic illness can be very lonely, you can be in a room full of people but still feel alone, its also often dismissed as an "invisible illness" for some. I think your friend would benefit from speaking to a doctor or counsellor, pain medication addiction is real and they could be feeling shame about this so are very defensive about it. If they are not getting out much as well the medication will be almost like their hobby and the day will revolve around it since they have nothing else to keep their mind stimulated.
Your friend needs help, is there a family member of theirs you could talk to? Unfortunately for you its those that try help that end up in the firing line, you want to help your friend but you also need to look after yourself and you are more than entitled to do that, hopefully your friend might understand that.
It’s definitely high strength pain killers - multiple of them. Does take sleeping pills but not prescription onesIm surprised this is able to continue tbh . . I recently ( by accident) requested a medication and I was text back telling me exactly when it was last issued and when I was able to request it again.
Im wondering if its high strength pain killers or sleeping tablets your friend is over using?
All of which are known to have a addiction side to them?
You poor thing. Naproxen can be nasty. I hope you get a better alternative soon without resorting to morphine so you can properly rest.Ive had my naproxen stopped as it has caused an ulcer, which then bleeds, causes me aneamia and a whole vicious circle of other things.
Fast forward 4 weeks without it ( the alternative, celecoxib is rubbish) and I literally CANNOT move.
I know I need steroids, I've contacted the GP but have a feeling they are going to want my rheumatologist involved. .
Im so fed up . . Ive had to resort to morphine these last 2 nights, just so I can relax and hopefully get some sleep.
Thankyou @patsy_stoneYou poor thing. Naproxen can be nasty. I hope you get a better alternative soon without resorting to morphine so you can properly rest.
Ive never heard of that, and I've been on plenty.Hi all, anyone take Orencia for RA?
I think it's the brand name for enterecept? Probably spelling it wrong! Humira and Benepali have stopped working for my relative and they've now been put on this (with continuing methotrexate and a cocktail of other drugs) two weeks in no improvementIve never heard of that, and I've been on plenty.
Is it a new thing?
Ahhhh ok, I think most of those "Biologics" have various different names dont they?I think it's the brand name for enterecept? Probably spelling it wrong! Humira and Benepali have stopped working for my relative and they've now been put on this (with continuing methotrexate and a cocktail of other drugs) two weeks in no improvement
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