Hello hope I can join.
Daughter is 10, PMLD. Non verbal, wheelchair user full time, doesn’t sign, needs 1:1 with everything. She has an incredibly rare genetic condition. She attends special school.
Her challenging behaviour has become more prevalent and we are now in the process of getting an autism and adhd assesment, it’s a bit trickier given the severity of her complex needs but we have a CAMHS appointment at the end of the month - what did it entail for you that have been through it? We already have an EHCP, tbh this is more just to get recognition and support, she’s always been autistic and adhd off paper, this is just getting the formal diagnosis.
Finally, she barely sleeps. A typical night will be 12.30-3.30/4am. We have tried everything non medical, other than melatonin and antihistamine, paediatrician and neurologist have a conflict of interest in prescribing her chloral hydrate, so therefore her paed is outright refusing to go that route (that’s okay for her - after 10 years no sleep were all at breaking point!) xxx