We have what we call a soft opening, at the moment that means my daughter goes in and does her physio first rather than jumping straight in to schoolwork, it’s working so far.
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Sorry for late reply. In the end we had no electricity for 9 days! How are you?
I totally agree with you it's really hard to get your child to take medication when they absolutely refuse. Def push for a referral for CBT. It doesn't come across as awful at all as we also give our son medication if we have a day out at the weekend because it calms him down and keeps him level.
I know it's hard but don't feel guilty about having a career as you do need something for you. You're being a great role model for your children and gives you a break from the kids.
Sorry to hear you've been unwell for a number of years, hope you're ok now?
I've booked my son in at the barbers on Sat. This is monumental! He absolutely refuses to let me near his head now because I shaved his head a couple of years ago with clippers and he hated the feel of it against his scalp. My husband had to hold him down while I finished it off. Traumatic for him and me. His hair is long now and told me yesterday he wants a hair cut but not by me. I'll let you know how it goes.
Take care x
9 days without electricity! You poor things!!
Things have unravelled a bit here. He had two days in last week, with the new measures in place but the last day went very badly wrong, more class truanting, definance and rudeness etc. This meant that a mere 24 hours after being told the school would definitely not apply for an EHCP, they were on the phone telling us we may need to "re-visit" the idea. (Works for us!)
Unfortunately last weeks events have caused total and complete school refusal and has led us withdraw him from school for the rest of the term on medical grounds (with the support of his Dr). The anxiety is making him really very unwell. The CAT team are meant to come into school at some point soon and fingers crossed things might improve a bit from January if the break over Xmas helps reduce the anxiety.
However...we've aleady pretty much decided that if return to school doesn't go well then we are going to find a school that's better suited to his needs because this situation isn't sustainable long term. It's absolutely awful seeing him so distressed and the resulting behaviour difficulties (volatility, more meltdowns, attacking siblings etc) are seriously impacting us as a family. If the school are happy to apply for the EHCP then that's great but if not we will do a parental application.
Hope the hair cut goes well! x
My heart goes out to you and your family. The amount of worry and stress you are under is just awful. Sorry you are going through this, it is just relentless.
In my experience having an EHCP for my son gave us more of a voice for my sons needs to be met at school. I think going through the process of applying for your son is such a positive step and will benefit him so much.
I think it's the right decision to look for another school so your sons needs are met. Research schools when you get a chance and visit them in the new year and start the ball rolling, don't wait as it can take time. Hopefully the break over Christmas will reduce his anxiety.
If you don't mind me asking how old is your son?
My son is now 15, had the stress of primary schools (3 different ones) got the current stress of secondary school and I'll have stress next year for college.
Take care x
I've recently been recommended this book. It arrived today and genuinely after only reading the blurb on the back and the first few pages I think it's the best book I've ever found. I feel hope that I may be able to learn more ways to help my children (and I already recognise bits of myself).
It's written by someone who has all the right qualifications but crucially she also had ADHD.
Sorry, I think the picture might be a bit big bit I'm not sure how to sort it.
It's a bit pricey at £20 ish but I think it'll probably be worth it. I also really appreciate the title!
It's written by someone who has all the right qualifications but crucially she also had ADHD.
Sorry, I think the picture might be a bit big bit I'm not sure how to sort it.
It's a bit pricey at £20 ish but I think it'll probably be worth it. I also really appreciate the title!
Hello hope I can join.
Daughter is 10, PMLD. Non verbal, wheelchair user full time, doesn’t sign, needs 1:1 with everything. She has an incredibly rare genetic condition. She attends special school.
Her challenging behaviour has become more prevalent and we are now in the process of getting an autism and adhd assesment, it’s a bit trickier given the severity of her complex needs but we have a CAMHS appointment at the end of the month - what did it entail for you that have been through it? We already have an EHCP, tbh this is more just to get recognition and support, she’s always been autistic and adhd off paper, this is just getting the formal diagnosis.
Finally, she barely sleeps. A typical night will be 12.30-3.30/4am. We have tried everything non medical, other than melatonin and antihistamine, paediatrician and neurologist have a conflict of interest in prescribing her chloral hydrate, so therefore her paed is outright refusing to go that route (that’s okay for her - after 10 years no sleep were all at breaking point!) xxx
Daughter is 10, PMLD. Non verbal, wheelchair user full time, doesn’t sign, needs 1:1 with everything. She has an incredibly rare genetic condition. She attends special school.
Her challenging behaviour has become more prevalent and we are now in the process of getting an autism and adhd assesment, it’s a bit trickier given the severity of her complex needs but we have a CAMHS appointment at the end of the month - what did it entail for you that have been through it? We already have an EHCP, tbh this is more just to get recognition and support, she’s always been autistic and adhd off paper, this is just getting the formal diagnosis.
Finally, she barely sleeps. A typical night will be 12.30-3.30/4am. We have tried everything non medical, other than melatonin and antihistamine, paediatrician and neurologist have a conflict of interest in prescribing her chloral hydrate, so therefore her paed is outright refusing to go that route (that’s okay for her - after 10 years no sleep were all at breaking point!) xxx