That and the “happiest here” makes me feel a bit ick. It’s your daughters Instagram page for her journey with epilepsy and you’ve posted a photo without her saying “happiest here”
Post it on your own page
Post it on your own page
Kalesmoothie
Chatty Member
If only all of us with seriously disabled children had access to seemingly unlimited financial wealth and go fund me’s. Most of us live week to week, unable to work in any capacity reliably, and our ndis funds barely cover our kids needs. Let alone overnight fucking nurses. Yet for someone with so much she’s a miserable sack of shit. Fuck off Erin.
influencerstalk
Well-known member
Can parent both children alone yet she obviously leaves the carer alone w both children when she goes for her 2 hour runs. Why would Dave need to quit work ? I am sure he earns 3 times the amount the care earns. So just pay for one from your own funds. As a widow raising 3 children actually solo she annoys the Fuck out of me
She has never been solo parenting one entire day in her life !
She has never been solo parenting one entire day in her life !
muchsmartmanybrain
VIP Member
Only likes the bath? Ah has she not been hanging in the grandparents pool looking beautifully happy???
I had the same thoughts. Plus blasting an ex employee on a public forum, where the ex employee can’t defend herself, is a MASSIVE red flag for further employees.
You catch more flies with honey than you do with vinegar.
Have you ever thought, Erin, that your behaviour is actually damaging to your daughter and her care? That perhaps if you weren’t so rude, people might be more willing to go out of their way to offer basic niceties? I don’t believe Luella’s medical care is compromised by Erin’s behaviour, but I am certain the response to Erin by doctors, nurses and hospital admin is definitely on the cold side due to her ridiculous behaviour.
I have a disabled child, and I need to advocate CONSTANTLY for him. However, I use the ‘positive sandwich’ approach whenever possible. Erin could do to research and apply it too.
Have you ever thought, Erin, that your behaviour is actually damaging to your daughter and her care? That perhaps if you weren’t so rude, people might be more willing to go out of their way to offer basic niceties? I don’t believe Luella’s medical care is compromised by Erin’s behaviour, but I am certain the response to Erin by doctors, nurses and hospital admin is definitely on the cold side due to her ridiculous behaviour.
I have a disabled child, and I need to advocate CONSTANTLY for him. However, I use the ‘positive sandwich’ approach whenever possible. Erin could do to research and apply it too.
MrsEyeroll
VIP Member
I have no idea what it would be like to have a child with such a debilitating condition but I could not imagine leaving that poor baby alone in the dark to seize while I run upstairs. She would be in a cot next to my bed. She acts as if there's no possible way to make things better for Lu when she's got options big and small to help. The surgery being the big one and hey maybe having her sleep closer to you so she's never alone during a seizure.
dulcielaroux
Active member
I don’t understand this mothers group thing - why didn’t she join a mothers group when Luella was born? Why does she want to be in a group with first time mothers? Why is she intent on acting like Luella is some aberration that doesn’t count?
Bellowingcow
Member
Oh fabulous! Erin and the question box! So far the suction cap at birth has caused the epilepsy. And now it’s the vaccinations. But it absolutely has nothing to do with genetics. We believe science sometimes. Only when it suits us.
Classic Erin, I'm not sure why anyone is actually surprised? Of course she'll be in a different country doing something completely selfish for herself on her daughter's fifth birthday.
She literally couldn't care less for Lu.
Like, what person builds a new house without consulting a home mods OT?
She's relying on her own knowledge of Lu's future, and her own knowledge of the needs of disabled adults (how many disabled friends does she have, again? How many disabled adults does she engage to help inform her 'advocacy'?) to build this house. & I wouldn't rely on Erin's knowledge of ANYTHING, let alone something as costly and permanent as a house.
I'm sure it will be the 'Devastatingly, Lu has no concept of her birthday and will not even notice that we celebrate her birthday on a different day before we leave for Berlin.' No, you're right, Erin, Lu probably won't realise. But we do. We allllll do. & we all think you're a self-centred, self-obsessed, narcissist who will always only see Lu as a burden and someone you can use to get things through (sympathy, fundraising money, accolades etc - none of which you deserve).
I can't with her. Like, each time you think she's reached her low, she keeps on digging.
She literally couldn't care less for Lu.
Like, what person builds a new house without consulting a home mods OT?
She's relying on her own knowledge of Lu's future, and her own knowledge of the needs of disabled adults (how many disabled friends does she have, again? How many disabled adults does she engage to help inform her 'advocacy'?) to build this house. & I wouldn't rely on Erin's knowledge of ANYTHING, let alone something as costly and permanent as a house.
I'm sure it will be the 'Devastatingly, Lu has no concept of her birthday and will not even notice that we celebrate her birthday on a different day before we leave for Berlin.' No, you're right, Erin, Lu probably won't realise. But we do. We allllll do. & we all think you're a self-centred, self-obsessed, narcissist who will always only see Lu as a burden and someone you can use to get things through (sympathy, fundraising money, accolades etc - none of which you deserve).
I can't with her. Like, each time you think she's reached her low, she keeps on digging.
muchsmartmanybrain
VIP Member
SHE booked this trip. She knew this environment would (allegedly) be terrible for Lu. WHY BOOK IT?!(! For a FAMILY holiday, wouldn’t you choose to go somewhere that would be inclusive for Lu???????? I am so so so sad
dulcielaroux
Active member
The final two lines of that post were so infuriating. About how she hasn’t listened to the universe and now she’s about to pay the ultimate price. No, Erin. The person paying the ultimate price for your decisions is Luella, the person who should be at the centre of all of this but isn’t because you put yourself in that position instead.The home CCTV is nuts to me !
Her long caption I just gave up on. Just word vomit and all I got was that she really is wishing Lu’s life away
kmartplate
VIP Member
The nerve of her to name Penelope like that as well and single her out, someone who I’m sure is normally very patient considering the nature of her work but was pushed to the limits today.
Funny how Erin constantly encounters all these rude and awful people. Couldn’t possibly have anything to do with her being a demanding and entitled bitch to everyone.
Funny how Erin constantly encounters all these rude and awful people. Couldn’t possibly have anything to do with her being a demanding and entitled bitch to everyone.
No just No
Active member
I found all her stories about the zoo really uncomfortable
She just keeps proving herself to be incredibly privileged and sheltered in her experiences with children
Outing are wild and unpredictable and loud and NEVER go to plan
The expectations she has on these things are so wild to me
She just keeps proving herself to be incredibly privileged and sheltered in her experiences with children
Outing are wild and unpredictable and loud and NEVER go to plan
The expectations she has on these things are so wild to me
Maisiemouse
Active member
I don't understand what it's like to have a child with severe disabilities. I also don't understand what it's like to lose a child. My parents have lost a child, however, and I have lost a sibling. It was tragic, it was unexpected and it has been life changing. I have lost many people in my life before so I thought I knew what grief was. I did not.
Not only did I lose a sibling, I also in turn lost my parents. I 'grieve' how my life is now because this is not how I imagined but it is a different kind of pain to the pain of losing someone I love so much.
So I want to say, having a friend projecting their grief all the time must be hard when they have a living, breathing child right in front of them. I understand the two cannot be compared but having suffered this loss I think I would make a deal with the devil to have my sibling back in most forms.
Not only did I lose a sibling, I also in turn lost my parents. I 'grieve' how my life is now because this is not how I imagined but it is a different kind of pain to the pain of losing someone I love so much.
So I want to say, having a friend projecting their grief all the time must be hard when they have a living, breathing child right in front of them. I understand the two cannot be compared but having suffered this loss I think I would make a deal with the devil to have my sibling back in most forms.
Swamp Life
Well-known member
Something hasn’t been sitting right with me, and I’ve just realised it’s Erin’s language in relation to Lu. It’s all about Erin. Examples in her recent post
- My non-verbal and disabled child
- I sat there with her privates exposed
- 2 catheters in my daughter
- without my consent
I feel like she very rarely touches on what it must be like for Lulu. It’s all about Erin.
Obviously, she is the parent and she is the one writing the posts. But it seems to me like her focus is wrong. Sometimes, it’s like she doesn’t see Lu as an independent person, but as an extension of herself. Even though Lu has a disability, she is still an individual.
I truly hope Luella recovers quickly
- My non-verbal and disabled child
- I sat there with her privates exposed
- 2 catheters in my daughter
- without my consent
I feel like she very rarely touches on what it must be like for Lulu. It’s all about Erin.
Obviously, she is the parent and she is the one writing the posts. But it seems to me like her focus is wrong. Sometimes, it’s like she doesn’t see Lu as an independent person, but as an extension of herself. Even though Lu has a disability, she is still an individual.
I truly hope Luella recovers quickly
dulcielaroux
Active member
The post about Luella’s immune system sent me spare. Literally everyone BUT Erin understands that with her anti-science, anti-vaccine, taking that poor sick baby out and about literally hours after posting about her having gastro, or saying she’s been to the doctor and being checked for a UTI (which landed her in hospital for a week the last time, where she contracted Covid). Jesus this woman.
RawlingsBlue
Chatty Member
Does she not realise the older Lu gets the harder it’s going to be. The bigger she gets the harder to get her around. She should be relishing the time she has with her daughter while she is still young.
Erin is a miserable c*nt and it sickens me the way she treats her daughter. No wonder she lost all her friends.
I know many people with disabled children who would never even think about going on holidays without their disabled child.
EAA should be ashamed of having someone like her representing their organisation.
Erin is a miserable c*nt and it sickens me the way she treats her daughter. No wonder she lost all her friends.
I know many people with disabled children who would never even think about going on holidays without their disabled child.
EAA should be ashamed of having someone like her representing their organisation.