Does any of you have "popping ears" alongside the tinnitus? I had some testing done already but nothing too extensive, I will have a new ENT appointment soon with my insurance and would love to know a list of tests that could be worth requesting.
I have pulsatile tinnitus too along with other symptoms. I had a mri, came back clear. They then diagnosed me with migraines from my other symptoms. The PT they don’t care about and it’s worrying me sick. I’m at the one year mark now and the anxiety it’s given me is crazyHi, I just get the pulsatile tinnitus 24/7, I've seen 3 ent consultants and had MRI and ultrasound, but both clear, which I expected. Have you got the heart beat in your ear? If so you need a vascular doctor or neurologist if you can get appointment, I've gone back to my doctors and told them about a fainting episode I had so my doc is looking into a vascular or neurologist but that's if I'm lucky, I'm in UK, I'm hoping for a ct angiogram to investigate my pulsatile tinnitus, I also have a lump under my ear which the ent cant find an answer for ( they weren't very good, one was awful, told me it was my nerves!) there's a Facebook page called Pulsatile Tinnitus Sufferers, they have info in the threads, wishing you luck![]()
ah this is what I have. I’ve had a CT scan too.Hi, I just get the pulsatile tinnitus 24/7, I've seen 3 ent consultants and had MRI and ultrasound, but both clear, which I expected. Have you got the heart beat in your ear? If so you need a vascular doctor or neurologist if you can get appointment, I've gone back to my doctors and told them about a fainting episode I had so my doc is looking into a vascular or neurologist but that's if I'm lucky, I'm in UK, I'm hoping for a ct angiogram to investigate my pulsatile tinnitus, I also have a lump under my ear which the ent cant find an answer for ( they weren't very good, one was awful, told me it was my nerves!) there's a Facebook page called Pulsatile Tinnitus Sufferers, they have info in the threads, wishing you luck![]()
Yes, been having this now for a few months, seems to be at night it's at its worst, I've tried white noise at night but being used to silence at night it's just keeping me up so I've had to try learn to copeDoes anyone get a deep humming sound in one ear only?
It’s so bad tonight and changing pitch, I cannot sleep and I’ve basically convinced myself I have a tumor at this point
Feel your pain MASSIVELY! I was diagnosed with cookie bite hearing loss last year and it causes a huge dip in mid-frequency sounds. I work in quite a noisy environment and was struggling for ages to decipher conversations over the racket! It’s so frustrating and then people just talk to you like you’re stupidI've got it on one side - the other ear is 100% perfect, but the one with the hssssssssssssssssssssssssssss has a huge dropoff from mid frequencies. So I'm getting a hearing aid first and eventually will get high enough up on the waiting list for an MRI to see if there's anything causing it.
They don't think it's age related because of how one side is perfect (and I'm still young for age related changes), it's not exposure related as I've always worn ear filters for gigs and recording, and I've got a family history of deafness/acoustic neuromas - the only difference is that I don't think a hearing aid is anything to be ashamed of (mats, the lot of them), so I'll be getting one of them fitted next month.
I usually have an earbud in with some inane Youtube video about skincare or history whilst I try to sleep.
My main irritation in life is how, despite people knowing about it, they still try to have conversations with me at the same time as three others are going on in the same room, call me from noisy environments (FFS, you're using a mobile, bleeping text me or take a photo of it and Whatsapp the thing!) or generally can't cope with the idea that actually, I'm not taking the piss in getting out of noisy situations, I genuinely cannot hear a bleeping thing in them.
Feel your pain MASSIVELY! I was diagnosed with cookie bite hearing loss last year and it causes a huge dip in mid-frequency sounds. I work in quite a noisy environment and was struggling for ages to decipher conversations over the racket! It’s so frustrating and then people just talk to you like you’re stupidApparently I was born with it so I’ve just been dealing with it for 34 years unaware
Hearing aids have completely changed my life! It doesn’t completely fix it as it’s such a difficult type of hearing loss to tune the aids to, but it has made my life so much more manageable! Let us know how you get onIt’s reassuring to see someone else with the same kind of hearing loss as myself!