Tinnitus

[flutternutter]

Posting this for anyone else who suffers from this awful affliction!

I've not been very well over the last couple of days with a migraine and that seems to have flared up a loud bout of tinnitus.

Mine is like a high pitched static/electrical noise in both ears (I think but who even knows?)

Its there all the time but illness, stress etc seem to turn the volume up.

I listen to a lot of those binaural tones videos which help me to tune it out.

 

[disneys]

Finally a tinnitus thread !!

ive had it for about 5 years now . I got an ear infection on a holiday to Majorca from pool water which is how it started . The doctor told me it would go when I had my ears cleaned as she thought it was just ringing from excess wax but it’s never gone away . It gets worse when I’m unwell or run down and I struggled really badly during pregnancy with it . I’ve tried lots of home remedies over the years and a white noise machine which I use to sleep has really help . I find it’s worse at night so this has given me something else to focus on while I try to sleep

I’m lucky as most days it’s really mild and I can only hear it or notice it if I’m concentrating on it , but when it’s bad it hugely impacts my mental health .

 

[Dooley Doo]

My Stepdad had tinnitus and he was at the doctors for something else and mentioned it.
The doctor said to get one of those little personal radios with earplugs attached and listen to it while you are in bed and sleep.

Not sure it will work if the tinnitus is severe.

 

[TheDragonWithAFlagon]

Aaaaaaaaaaaaaaaaaaaaaaahhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh.

Compulsory training course.


300 people in an echoing hall doing 'fun' activities.

Facilitator running the show bellowing through the PA over the noise.

299 people clapping as loudly as possible at every opportunity.

Four breakout sessions requiring 100 people to all talk at once.

Followed by diversity training where chief bellower gravely informs us that we must check ourselves for unconscious biases that lead us to discriminate against and exclude others because 'they're not like Us'.

AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH


AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH


I have never, ever used this phrase before because it's so stark and usually used totally flippantly and histrionically.

I wanted to die.

 

[Bumblebee999]

Im on antidepressants but my tinnitus predates that. A lot of tablets have a side effect of tinnitus, its really strange? I thought mine had got worse with another medication for my bowel but i stopped taking that and it never improved.

It does quite often let up to an unnoticeable noise but yep at the minute it's pretty brutal
---


It does help me to listen to something.

Mine started a few days after taking them but I was previously on them for 10 years with no tinnitus, I'm booked into for 4th doctors appointment and hopefully be referred to ear, nose and throat hospital but not sure what they will do, until you have it you don't realise how bloody awful it is I think alot of meds can cause ALOT of other side effects that they don't warn us about xx

 

[ThirdWorldGlam]

Does any of you have "popping ears" alongside the tinnitus? I had some testing done already but nothing too extensive, I will have a new ENT appointment soon with my insurance and would love to know a list of tests that could be worth requesting.

 

[Lico]

I got tinnitus from sertraline. 3 days on it and the ringing started. I stopped the sertraline, but the tinnitus stayed. Just over 3 years. Went through some really bad times where I seriously contemplated ending it all. But I have family to consider, so I get on with it. It's horrible. I'm always worried that it'll get louder. For now it's tolerable.

 

[Bumblebee999]

Posting this for anyone else who suffers from this awful affliction!

I've not been very well over the last couple of days with a migraine and that seems to have flared up a loud bout of tinnitus.

Mine is like a high pitched static/electrical noise in both ears (I think but who even knows?)

Its there all the time but illness, stress etc seem to turn the volume up.

I listen to a lot of those binaural tones videos which help me to tune it out.

I've had pulsatile tinnitus for 11 weeks now and I believe it's from starting escitaloprám turns out it's a rare side effect. It's only in one ear, at first I thought infection so got prescribed antibiotic spray then strong oral antibiotics but doc said zero infection, anyone else experienced this as a side effect of antidepressants? I've stopped taking the meds but it's nit stopped. So sorry you're suffering, it's awful

 

[leon19]

I've had tinnitus for 8 years now in one ear and sometimes it feels like it echos round my head. I normally manage very well with it and forget its even there unless I have spikes. The past few weeks I've been having a bad spike, it hasn't increased the volume but the loudest mine sometimes gets is there alot of the time when before it was occasionally. I've been finding this hard my anxiety is through the roof I feel like crying most days. The gp said my eardrums are retracted I've never had this before and that I need to be taking antihistamines and nasal sprays but its just not working. Tinnitus can make you feel alone sometimes no one really talks about it and I don't know anyone personally with it

 

[Bumblebee999]

I went to an ENT, cost me 250 euros. Just to be told there is nothing they can do about it. He referred me to counselling.

Saw my 3rd one today, ended up walking out in tears, he was absolutely useless, didn't want me to have more test, (because they're expensive!) he knew nothing about pulsatile tinnitus. I'm paying for private ct angiogram, I'm not living with this so sorry you've had bad experience too, we need a cardiologist or neurologist, it's a vascular problem not ear, nose and thoat. That's why they dismiss it so quickly
---

Saw my 3rd one today, ended up walking out in tears, he was absolutely useless, didn't want me to have more test, (because they're expensive!) he knew nothing about pulsatile tinnitus. I'm paying for private ct angiogram, I'm not living with this so sorry you've had bad experience too, we need a cardiologist or neurologist, it's a vascular problem not ear, nose and thoat. That's why they dismiss it so quickly

Ask to be referred to a cardiologist or neurologist. It won't hurt to try, hope it goes ok, x

 

[flutternutter]

I've had pulsatile tinnitus for 11 weeks now and I believe it's from starting escitaloprám turns out it's a rare side effect. It's only in one ear, at first I thought infection so got prescribed antibiotic spray then strong oral antibiotics but doc said zero infection, anyone else experienced this as a side effect of antidepressants? I've stopped taking the meds but it's nit stopped. So sorry you're suffering, it's awful

Im on antidepressants but my tinnitus predates that. A lot of tablets have a side effect of tinnitus, its really strange? I thought mine had got worse with another medication for my bowel but i stopped taking that and it never improved.

It does quite often let up to an unnoticeable noise but yep at the minute it's pretty brutal
---

My Stepdad had tinnitus and he was at the doctors for something else and mentioned it.
The doctor said to get one of those little personal radios with earplugs attached and listen to it while you are in bed and sleep.

Not sure it will work if the tinnitus is severe.

It does help me to listen to something.

 

[sistersofpercy]

You probably should speak to a GP in the first instance, occasionally tinnitus can be caused by a small, benign tumour behind the ear and they will usually want to do an MRI just to check.

I suffer with tinnitus and hearing loss. I wear bilateral hearing aids now which do go some way to improving it. My loss is from loud music and standing close to speaker stacks through concerts etc. It doesn't especially bother me but I'm rarely in silence. It helps to keep some background noise all the time.
At night I try and tune in to the whistle and use it as a sort of white noise, if my brain is tuned in to the tinnitus im not running through the shopping lists etc. It does work for me, but appreciate it might not for everyone.

Hearing aids can help tinnitus by playing a white noise, so please don't just suffer, things can be done.

 

[TheDragonWithAFlagon]

I've got it on one side - the other ear is 100% perfect, but the one with the hssssssssssssssssssssssssssss has a huge dropoff from mid frequencies. So I'm getting a hearing aid first and eventually will get high enough up on the waiting list for an MRI to see if there's anything causing it.


They don't think it's age related because of how one side is perfect (and I'm still young for age related changes), it's not exposure related as I've always worn ear filters for gigs and recording, and I've got a family history of deafness/acoustic neuromas - the only difference is that I don't think a hearing aid is anything to be ashamed of (twats, the lot of them), so I'll be getting one of them fitted next month.

I usually have an earbud in with some inane Youtube video about skincare or history whilst I try to sleep.


My main irritation in life is how, despite people knowing about it, they still try to have conversations with me at the same time as three others are going on in the same room, call me from noisy environments (FFS, you're using a mobile, fucking text me or take a photo of it and Whatsapp the thing!) or generally can't cope with the idea that actually, I'm not taking the piss in getting out of noisy situations, I genuinely cannot hear a fucking thing in them.

 

[aidil]

I’ve been struggling with tinnitus since my early 20s (I’m 33 now) and there are some nights where it keeps me awake It’s constant high pitched ringing but gets worse when I’m stressed out. I’ve recently been diagnosed with ‘cookie bite’ hearing loss which is a genetic condition and I’m hoping my hearing aids will tune it out a bit?

 

[Lico]

I went to an ENT, cost me 250 euros. Just to be told there is nothing they can do about it. He referred me to counselling.

 

[Bumblebee999]

I have a question does anyone else get weird feelings in their head sometimes with their tinnitus like buzzing, vibrating like feelings. Sometimes bad headaches or just headaches in random spots and when this happens tinnitus is always louder. Is this normal? Because it always worrys me something else is going on

I get the buzzing, zapping sensation, I don't get the headaches, seeing third ENT tomorrow but I'm asking for ct angiogram, it's a vascular problem not a ear problem and needs a cardiologist or a angiologist, I've researched it to death, have you seen anyone about it ?

 

[conrea37]

I’ve had it on and off for ages. Concussion last year and since a virus this year

 

[flutternutter]

Mine started a few days after taking them but I was previously on them for 10 years with no tinnitus, I'm booked into for 4th doctors appointment and hopefully be referred to ear, nose and throat hospital but not sure what they will do, until you have it you don't realise how bloody awful it is I think alot of meds can cause ALOT of other side effects that they don't warn us about xx

Yep its something i cant really describe. Like this morning its the same volume as yesterday. But yesterday i was filled with rage because of it. Every other noise like tv was driving me insane!

This morning im just watching tv like

 

[TheDragonWithAFlagon]

My head is in a big wooden box, lined with tin.


Why is everything SO BLOODY LOUD?


And why does my voice sound so weird?

I got fitted for the HA this afternoon and the world is very strange and lopsided now.

 

[ThirdWorldGlam]

After several private ENTs with no solutions (tinnitus, wax, popping, all at once is terrible) I got an NHS referral, GP looked and inspected all neck last week and did not like it!

I always joke if NHS takes something seriously enough to get the urgent referral thing it must look pretty bad for real why is that ENTs are the less caring doctors on earth though, is draining