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AlwaysScience

Chatty Member
Oh dear - 8 spots on the brain sounds terrible! Hope it works out ok for him.

Stanford's great but it's a 40 minute drive from San Francisco -- from Los Angeles, it's almost a six hour drive.

I'm sure it's rated pretty high - but from what I can find, not as high as UCLA Medical Center in Los Angeles, which 'verywell health' ranks as the 5th best cancer center in the US (after MD Anderson, Sloan Kettering, Mayo, and Dana Farber - City of Hope is #7). But it probably depends a lot on the type of cancer and which specialist you end up with.

I'm such a chatterbox today - sorry about that. This particular man and his situation has been so triggering for me - not sure why.
I think a lot of us on Tattle Life are in the same situation - we have felt triggered by some of the cancer YouTubers and we come here to share our mixed feelings and see if anyone else has similar feelings and concerns.

My personal ethical beliefs include that community is important - that we should all be aware of our positions in our communities and try to be supportive of others, and understanding of the challenges of others. For example, I would never skip my annual flu shot because I feel a responsibility to do this easy, cheap thing to reduce the chance that I get influenza and then transmit it to someone in my community who is medically vulnerable. I have a neighbor and friend who is 80 and who has been through two different types of cancer over the last 15 years.

So many people have compromised immune systems due to cancer treatment, medications they must take for things like ulcerative colitis or organ transplants, and diseases. There are a lot of people with disabilities/illnesses that are not obvious.

A woman I was following online died recently. She had cholangiocarcinoma but the type of chemo she had never made her hair fall out so she looked remarkably normal until the last few weeks of her life. My online life has taught me a lot about cancer and disabilities.
 
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riley123

Well-known member
A new vlog including driving to his next treatment. He did mention that he's very stubborn which might indicate why he's filming in the car even though so many people told him he shouldn't. His good news is that the cancer is EGFR positive. Was that Jenny's type also? His is also in his spine.

 
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riley123

Well-known member
Oh dear - 8 spots on the brain sounds terrible! Hope it works out ok for him.

Stanford's great but it's a 40 minute drive from San Francisco -- from Los Angeles, it's almost a six hour drive.

I'm sure it's rated pretty high - but from what I can find, not as high as UCLA Medical Center in Los Angeles, which 'verywell health' ranks as the 5th best cancer center in the US (after MD Anderson, Sloan Kettering, Mayo, and Dana Farber - City of Hope is #7). But it probably depends a lot on the type of cancer and which specialist you end up with.

I'm such a chatterbox today - sorry about that. This particular man and his situation has been so triggering for me - not sure why.
He's going to be treated at UCLA. The camera store is in LA so I imagine that's where they will live. He has many ideas about the film developing lab. He may have negative thoughts but he seems to be keeping them to himself and projecting a very upbeat attitude about his future.
 
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AlwaysScience

Chatty Member
I find it oddly satisfying that so many comments are calling out him driving in the video. There's something about this guy that just rubs me the wrong way. Not that I think he's faking his illness, just his manner. How he responds to comments, etc.
I’m glad that so many people realize that he is putting others at risk by driving given his condition, and the fact that he is medicated.

I have the same uncomfortable feeling. I keep thinking about his complaint that he might have to spend “hundreds” of dollars to get a definitive diagnosis. That wasn’t just a ridiculous estimate - his complaint about it struck me as evidence of an attitude of entitlement. A lot of Americans are spending hundreds of dollars every month just for medical insurance with high deductibles. He refused to enroll in and pay for medical insurance for himself until he got a cancer diagnosis.
 
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Make sense of it!

VIP Member
I think Christopher Sturm has more intelligent followers than TiffanyThinks. A number of them have expressed concern about him driving, and about him driving and recording video at the same time.

Also, one of them looked up survival statistics for people with non small cell lung cancer with EGFR mutation and commented about it, with a link. Chris Sturm hasn’t yet said anything about survival info for metastatic NSCLC in his YouTube videos other than a vague comment about feeling more optimistic after getting information on his gene mutation.

Can’t imagine one of the TiffanyThinks followers looking online at medical journal articles to see recent survival statistics for colorectal cancer.

Well, now that I think about it, I guess Tiffany might have had followers in the past who did bring up survival information, but she or someone in her family deleted those comments.
Tiffany will out live you, me and Chris and Amma combined!!! Tiffany is pulling everyone's middle leg.
 
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Elpis

Well-known member
Well, he adds one item to my frustrations. He's driving again! Very soon - like a week - after gamma knife.

And I still remember that first, he said he signed up for health insurance in the marketplace (i.e. Affordable Care Act). Second, he said the health insurance through his work would begin in April - that's this month!

I've really just had it with this person. I wish him well but won't waste any more time watching him. (But I'll keep checking here, so thanks to everybody willing to keep it up)
 
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AlwaysScience

Chatty Member
Ivory from Ivory's Diary was on Tagrisso, she was told it would work for about 19 months. In this video from Oct 2022 she had been on it for 20 months and her Stage 4 disease was stable. She looked so well at this time in the video ... but dammit the Tagrisso soon stopped working and she passed away in early May 2023. She was Mom to a teenage daughter and to a son who was around 6 years old when she passed. Her vlogs are very informative about her cancer and treatments. Unlike someone else ...
These stories are heartbreaking - patients who are lucky enough to find a drug that stabilizes them and they get back to something very close to their regular lives. Then thepie cancers find a way to evade the drugs and take their lives. I know it’s better than them not getting the extra months or years, but it is horrific for the patients and their loved ones and the doctors and nurses who care for them.
 
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Bassethoundmama

Active member
Curious....Chris hasn't posted anything on YouTube - I haven't seen anything cancer related on his insta. I'm glad he's not letting it consume his life but I definitely hope he's doing well.
 
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Elpis

Well-known member
I HATE how antivaxxers jump on everyone who got the vaccine and then happens to get cancer, have a heart attack or stroke, just anything - and they gleefully call them idiots for falling for the deep state or whatever their demented minds conjures up. I'm gonna start again with him and try to be less annoyed. It will help a LOT if I don't watch his videos! I think he's one of those people (hello Tiffany!) who like to make things up to sound a certain way but never really want to give you the whole unvarnished truth. Sometimes I think they don't even know what the truth is because they live in a confabulation... well, I was gonna start again. I'm upset with myself that I let him bother me so much initially.

Anyway, I looked it up and Wisconsin is one of the bonehead states that refused to expand Medicaid, even with the federal gov't picking up 100% of the cost! My state has lost a few rural hospitals that went under because of so many unpaid bills (because they don't want any freeloading minorities or some such crackpot reasoning - well, lack thereof). I lose a lot of sleep worrying about the vitriol in our polarized country but I need to let that go too.

Boring part so you can skip: They invented Obamacare thinking that everybody would get Medicaid (free) who didn't qualify by their income to get government help on the premium. So there's a bizarre lower cut off. Like if you make, say, $25,000 a year, the govt will pay 95% of your Obamacare premium for you. BUT if you make less than that, the gov't will pay ZERO of your premium for you (because they planned for you to get Medicaid which is free).

But then our rightwing Supreme Court threw out the requirement that states provide Medicaid up to the lower limit ($25k or whatever) [never mind that it would have been free!!!] -- so those very poor people are left with having to pay the huge premium with no help whatsoever!! And it's often $600 a month for one person - something like that. AND the Republicans won't let Congress close that loophole so a whole lot of very poor people have no healthcare coverage whatsoever! This is true for 10 states, almost all in the Deep South (because of rightwing/antivax stupidity) but Wisconsin is the midwestern outlier! The other 2 non-southern states are Wyoming (libertarian cowboys) and Kansas (almost southern and a rightwing stronghold).

Wherre's my ativan?!?!?

ETA: I wrote all that before I saw AlwaysScience's great post so sorry if it sounds like I ignored her.
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In Wisconsin since he lives with his girlfriend her income prevents him from qualifying for Wisconsin Medicaid. The monthly income cutoff there is $1,700.
Wow - that's shocking! I didn't think you even had to count a girlfriend's income (only your actual spouse).

Anyway, I live in Mississippi - and would you believe that no matter how poor you are, even ZERO income, you cannot get Medicaid - UNLESS you are under the age of 18 or you have children in your household under 18 that you are the primary caretaker of. Oh and one other exception: pregnant women.

I doubt any other state is as cruel as that. And bear in mind, by some measure, we're the poorest state in the union, 39% African American (and there's your reason, ladies and gents). I'm so disgusted with these people, my people I guess, but I don't think there's a remedy. I mean, I could move, but I have a lot of family and friends and I'm not poor. Miserable maybe, but not poor.
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Oh shit - I wasn't gonna do this, but yet another thing about Chris' story doesn't make sense to me:

"He doesn't know when they will move to CA but he'll be treated at UCLA."

Why stay and e-beg for 100s of thousands of dollars when he could just go ahead and move, stay with his dad, and get this wonderful Stanford treatment on California's Medicaid? when he doesn't qualify for Wisconsin's?

And he says he doesn't qualify because he lives with his girlfriend?? Does that mean that every person in his state who has any kind of roommate would have to count their roommate's income (and there not qualify for Medicaid)?

Damn, man, MOVE and visit her occasionally. It's your LIFE we're talking about.

OR - and this is very simple - say that you broke up with her and she's not your girlfriend any more but you're simply "roommates" -- or rent a frickin' room from someone and have that separate address and the medical expenses would outweigh the cost of that room many times over!!!

But no.... Instead of doing something logical, he wants people to dig into their savings and send him money to save him. Ughhhh. Someone tell me to go away. I've managed to quit watching him, but here I am, getting worked up, just reading about his flakey grifty decision making.
 
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AlwaysScience

Chatty Member
Thanks for this - glad he is getting treatment.

That medication he needs is about $18,000/month and with his type of cancer he needs to take it every month that he lives. Looks like his GoFundMe has stalled at under $60,000. I hope the drug company or a state program is covering the medication for him. If not I think he could move to California and thereby be entitled to buy insurance through the ACA right away under the exception for people who move. Otherwise he has to wait until ACA open enrollment starts sometime in November. Then he can buy insurance effective either Dec1 or January 1 - I don’t remember the earliest effective date available.
 
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Elpis

Well-known member
That's fascinating! I don't think of my property taxes as high - but houses are cheap here. I guess there's a silver lining to living in this crap state - nobody else wants to live here so houses are very cheap lol. I have a detached 2500 sq foot suburban brick type house on a half-acre lot that's assessed at about $250k but the taxes are just under $2000/year. (actually half that because I'm over 65) Sorry for the tmi. I just keep hearing about sky-high tax/insurance costs and wonder how it is elsewhere.

I get your point about Chris (and Mary Lou) not being a burden on taxpayers because they've decided to be beggars instead. Ha ha!! So I shouldn't be so annoyed with Chris I guess. He's got the begging thing down to a science. I know, he could sell online seminars in how to bilk millions from sweet little old ladies who are happy to give you half their pensions!

If you're reading here, Chris (and I wouldn't be surprised - if he's a narcissist like our Tiff, how could he resist??) Anyway That's a bit of financial advice for ya.
 
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Bassethoundmama

Active member
I find it oddly satisfying that so many comments are calling out him driving in the video. There's something about this guy that just rubs me the wrong way. Not that I think he's faking his illness, just his manner. How he responds to comments, etc.
 

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AlwaysScience

Chatty Member
He posted many comments on his IG yesterday. Apparently he told people to get the covid vaccine when it came out so these are responses to that.

Chris was interviewed on a photography podcast, Analog Talk. He doesn't know when they will move to CA but he'll be treated at UCLA. He's had a hard time getting on state insurance in Wisconsin but he'll qualify for MediCal easily so it's a good thing that he's unemployed. They had considered getting married to get on her insurance but it would cost them more. I assume whatever job he had that he hadn't worked long enough to get coverage is now gone.

He is very optimistic about his prognosis and what is being planned for the new film developing portion of Justin Lee's camera shop. They talk all the time planning it with Justin also interested in how he's doing. He thinks his treatments will allow him to continue to work on that.

All of his GFM money has been spent at the hospital. His bill so far, with treatments, is about $85,000 for his portion.
Well I have to give him credit for encouraging people to get the COVID vaccine.

If he is talking about getting on MediCal as being cheaper than getting married and then getting on his wife’s insurance, I can understand that. A lot of employers now make it very expensive for the employee to add a spouse or child to their medical insurance. But it does make me wonder if his experience being unable to get on Wisconsin Medicaid has resulted in him figuring out how to “game” the system once he moves to California.

Did he not say anything other than that about marrying his girlfriend? I’m leery of these guys who move in with women, leave the housekeeping, meal planning, grocery shopping and cooking to them and don’t marry them.
 
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AlwaysScience

Chatty Member
When my Dad had brain cancer, (glioblastoma) the oncologist painted a picture that my Dad could survive, that they could get rid of the tumor with radiation, and it wouldn’t grow back for 2 years. My Dad wound up bedbound. We were able to get him to his follow-up MRI. The oncologist said the tumor had shrunk drastically! But Dad was sitting in a wheelchair, could hardly speak, and in bad shape all around. That doctor never once said it was terminal. Dad passed away 5 months after that appointment. 😢
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It’s the same way in my state of Maryland.
I am so sorry for your dad and your family that you were not given a realistic idea of how much time he likely had left and the level,of disability he might have in that time. All of us deserve to know the odds we are up against.
 
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Bassethoundmama

Active member
I noticed this evening that the views on the last few videos have declined significantly. His initial, "I have cancer" video view count is roughly 170,000 while the latest two videos are at 5k and 7.5k respectively. His GFM collected almost $50k in less than 2 weeks, even it has seen a major decrease in donations. In no way am I saying $56k is little, I just mean the momentum has stalled.
 
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Elpis

Well-known member
Oops - but I was so relieved to see a reasonable post, though I'm confused about the Medicare reference. I found this on the gov't site:

"If you’re getting Social Security disability benefits, you’ll get Medicare automatically after getting disability benefits for 24 months. If you have ALS (also called Lou Gehrig’s disease) you’ll get Medicare automatically as soon as you start getting disability benefits."

I can't find anything that says you can get Medicare automatically if you have cancer - so I think it's just more confusion from Chris. Maybe 'he' doesn't even understand and some social worker is dealing with the details and he just has a vague idea of what's going on.
 
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BCrowl

VIP Member
I am so sorry for your dad and your family that you were not given a realistic idea of how much time he likely had left and the level,of disability he might have in that time. All of us deserve to know the odds we are up against.
Thank you so much. ❤ Yes, it was so confusing and heartbreaking. You are so right, we all deserve to know the truth. ❤
 
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AlwaysScience

Chatty Member
Well, he adds one item to my frustrations. He's driving again! Very soon - like a week - after gamma knife.

And I still remember that first, he said he signed up for health insurance in the marketplace (i.e. Affordable Care Act). Second, he said the health insurance through his work would begin in April - that's this month!

I've really just had it with this person. I wish him well but won't waste any more time watching him. (But I'll keep checking here, so thanks to everybody willing to keep it up)
Yeah I bet he tried to sign up for insurance under ACA and found out that he didn’t qualify for any exception that would let him sign up after the open enrollment period ended January 15. So then he probably reached out to the state of Wisconsin and his girlfriend’s income as a nurse was too high for him to get on Medicaid. I looked at the Wisconsin info and for 2 people the monthly income has to be under $1,700 to qualify for Medicaid.

Im guessing his only option for medical insurance is through his new job that doesnt allow him to get insurance at first. If they move to California to be near his dad then that move might allow him to sign up for insurance under ACA.
 
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Elpis

Well-known member
That's a really interesting point. He says he "bought" a policy from the marketplace - yeah, he has to mean the ACA. Anyway, I'm surprised at the list of "qualifying events"

You may qualify for a
Special Enrollment Period
to get coverage or change plans if:
  • Your income falls within a certain range
  • You had a qualifying life event, like losing health coverage, getting married, having or adopting a baby, or moving
But in any case, he said insurance through his work would start in April. And yet he's moving to California so what is the workplace he's getting insurance through. His photography shop in Wisconsin or whatever? But he's moving away??
 
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