I had to cut out cheese, cheese spread and lactose free cheese spread. Could have everything else lactose free but not cheese spread. Bizarre
I have managed to reintroduce them. But I can't have too much.
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I have managed to reintroduce them. But I can't have too much.
It’s because they’re so specialised and trained in medicine snd medicine only that they don’t look at things like diet as much, as you would someone with gallstones, colitis, or diverticulitis. There isn’t enough research on migraine yet. I had a difficult time with two neurologists before finding a headache clinic. One literally said to me, “most of my patients have brain disorders like Parkinson’s”. Gluten definitely makes my pain levels worse. I can’t tolerate it at all now. It’s surprising because when I was first diagnosed I felt like all the research was pointing to food triggers like chocolate and cured meats etc. I became obsessed trying to find the trigger and upset when I couldn’t. Certain things will aggravate it, but everyone’s migraine is so unique. My biggest trigger is weather. I did not get migraines in Ireland and I got diagnosed upon moving to the US. The food here makes me ill a lot of the time but it’s hard to cook from scratch
I do find when I have an attack (minus vomiting and a case of the 
) tayto salt and vinegar crisps or smiths bacon fries help. I think it’s the salt content in them.
) tayto salt and vinegar crisps or smiths bacon fries help. I think it’s the salt content in them.
I see a lot of people on tiktok recommending salty chips and full large coke, I'll need to try it next time (hopefully not anytime soonI do find when I have an attack (minus vomiting and a case of the
)It works! Mc Donald’s fries and a Coke from a fountain like they have there. The Mc Migraine meal, I didn’t believe it at first but it works. I sometimes have 3 cans of a Coke a day, it helps relieve the pain. I need to stop thoughI see a lot of people on tiktok recommending salty chips and full large coke, I'll need to try it next time (hopefully not anytime soon
Wow I didn’t know there was a migraine board here. I’ve had the bleep things since I was 10. I was diagnosed with having tons of migraines in 1998 all different including weather related ones too hot or too cold migraine, much prefer the seasons of spring and autumn when I didn’t see much of one.
I’ve finally got a neurologist who I see next March after having a doctor say I do not have migraines just run of the mill headaches. This doctor I’ve never seen before in local practice. And she cancelled all 10 of my migraine appts from 2020 which I had no clue about until I had to see the MAXFAX consultant about constant jaw ache. Been at MAXFAX for 2 years and didn’t know anything about the cancelled appts and he told me we have been on at the neurologist for the past 3 years asking for a appt and they get cancelled told him it’s one of the female drs at my local surgery.
also he told me that the numbness I’m feeling on the left side of my head is something called a hemiplegic migraine aka stroke migraine.
I’ve finally got a neurologist who I see next March after having a doctor say I do not have migraines just run of the mill headaches. This doctor I’ve never seen before in local practice. And she cancelled all 10 of my migraine appts from 2020 which I had no clue about until I had to see the MAXFAX consultant about constant jaw ache. Been at MAXFAX for 2 years and didn’t know anything about the cancelled appts and he told me we have been on at the neurologist for the past 3 years asking for a appt and they get cancelled told him it’s one of the female drs at my local surgery.
also he told me that the numbness I’m feeling on the left side of my head is something called a hemiplegic migraine aka stroke migraine.
I started propranolol almost 4 weeks ago and I've only had one migraine since then which was about 4 days after starting them. I was having one a week before then so I'm quite chuffed with that
I'm hoping for the Botox injections when I see my neuro in August. Anyone else had them?
I’m 2 and a half years into having them and it’s changed my life. I’ve gone from every day pain scale 8 to 10 down to still daily but average pain scale 4. Much more manageable. I am also now taking candesartan to try get even better results but I wouldn’t go back now. I have very severe chronic migraine as a comorbid brain condition I have
Great news - are you getting any side effects from it ? I tried it years ago but it made me feel like a zombie but wondering if I should try it again now ?
I'm not getting any side effects, thankfully. I take it just before bed and wake up feeling groggy but that goes as soon as I eat something
My ex colleague has the hemiplegic migraines and has had Botox for years. She had to give up her main career (like me) but is able to do other stuff still. The Botox has enabled her to live rather than exist.
I love my propranolol! Started it a couple of years ago and have only had three or four since, whereas I was having at least one a month before.
That's fantastic!
That is great and makes me think I should give it another go. Mine have no pattern but definitely getting more as I move towards the menopause (although have never seemed hormonal before). I need to get them sorted as had 2 in a week a few weeks ago and I don't have time to be laid up with them.
Oh no that's awful, 1 in a week is bad enough. I think it's worth a go!
I e been put on propranolol 5 times and still it doesn’t work for me
I e hemiplegic migraine awful things diagnosed by a stroke doctor and a opthamologist and then diagnosed by my own doctor has having it. But what I got off a neurologist if the hospital doesn’t cancel for the 6th time he thinks trig neuralgia and migraine