So my symptoms have settled down which I'm massively relieved about. I am avoiding dairy which seems to help, but life without dairy is hard going. I've now developed a UTI. I don't know, it all feels connected. I think the trigger is stress.
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Did they take bloods for CRP etc too?
I worry so much about my partner, who probably has some form of undiagnosed IBD that really impacts his quality of life.
He had a parent with Crohns, which he has been tested for and doesn't have, but the lack of dietary adaptations caused them to have what must have been IBD of some kind - although dying young, of an unrelated cause, means we can't know for sure.
Only way my partner copes is because he has a different issue that means he is prescribed codeine (an opioid) painkiller, and a side effect of opoids is constipation. For him, that means moderate normality, otherwise he is going 10 times a day even with regular immodium.
More than once he was referred for a colonoscopy, but they have created a stupid system where you have to ring post-referral and book directly, but they don't answer the phone. So he has been rejected about three times in the last year, and has given up trying. It makes me so angry, because if he had bowel cancer (which I don't think is likely, but would result in the same referral pathway from what I can tell) he would probably have died by now. All because people don't answer the phone, which artificially reduces their waiting list numbers. It's scandalous.
We are moving abroad and I can only hope our new home actually takes an interest in this, and knows the value of preventative treatment.
He had a parent with Crohns, which he has been tested for and doesn't have, but the lack of dietary adaptations caused them to have what must have been IBD of some kind - although dying young, of an unrelated cause, means we can't know for sure.
Only way my partner copes is because he has a different issue that means he is prescribed codeine (an opioid) painkiller, and a side effect of opoids is constipation. For him, that means moderate normality, otherwise he is going 10 times a day even with regular immodium.
More than once he was referred for a colonoscopy, but they have created a stupid system where you have to ring post-referral and book directly, but they don't answer the phone. So he has been rejected about three times in the last year, and has given up trying. It makes me so angry, because if he had bowel cancer (which I don't think is likely, but would result in the same referral pathway from what I can tell) he would probably have died by now. All because people don't answer the phone, which artificially reduces their waiting list numbers. It's scandalous.
We are moving abroad and I can only hope our new home actually takes an interest in this, and knows the value of preventative treatment.
If he has ibd it would show up in inflammation markers. Get your gp to run crp blood and calprotectin. If high they put you straight on to cancer pathway. Which means a two week colonoscopy turnaround.
Does he have blood or mucus in his stool?
You can be referred to a hospital of your choosing. Ask to be sent to one that doesn't have that system. The usually just send you a date in the post/via text.
Where are you moving to? Different countries seem to have different views on treatment
Hey. No bloods. She’s doing an urgent referral to gastro and a colonoscopy. I’m so nervous.
Can anybody who’s had a colonoscopy talk me through it please? Do they cover you up? Do I need to take the whole day off work?
I'd take the whole day off yes.
Firstly, you will have to do a little diet they give you a sheet with what's allowed a few days before. Then this can vary but you drink this stuff the night before. About two litres. It tastes awful but a tip is to put in the fridge and drink with a straw. You can add lemonade too. You wouldn't be able to eat. This will make you run to the toilet a lot. Plenty of moist wipes. You get to the point where water is just coming out.
At the hospital you will have a canula put in. You get given some underwear with a flap in the back and two gowns. One on like a dressing gown keeps everything covered. Normally a bad or locker to keep your clothes in.
You lie on the bed on your side and they just open the little flap. Pop the tube in no one can see anything. You will be given sedation anyway by this point and everything feels fine. At points you have to lie on your back. You get to see your bowel in a massive TV
. Doesn't last long, some people fall asleep. I haven't because I want to see. They take you to recovery where you have tea, toast and biscuits. Then you on your way. Often I have a bloated tummy so windy the rest of the day.Honestly, the prep is the worst part. But take the sedation and if you need gas and air. They will be a nurse right next to you, often holding your hand if needed if you feel scared.
Hope this puts your mind at rest.
Good description. I'd add:I'd take the whole day off yes.
Firstly, you will have to do a little diet they give you a sheet with what's allowed a few days before. Then this can vary but you drink this stuff the night before. About two litres. It tastes awful but a tip is to put in the fridge and drink with a straw. You can add lemonade too. You wouldn't be able to eat. This will make you run to the toilet a lot. Plenty of moist wipes. You get to the point where water is just coming out.
At the hospital you will have a canula put in. You get given some underwear with a flap in the back and two gowns. One on like a dressing gown keeps everything covered. Normally a bad or locker to keep your clothes in.
You lie on the bed on your side and they just open the little flap. Pop the tube in no one can see anything. You will be given sedation anyway by this point and everything feels fine. At points you have to lie on your back. You get to see your bowel in a massive TV
Honestly, the prep is the worst part. But take the sedation and if you need gas and air. They will be a nurse right next to you, often holding your hand if needed if you feel scared.
Hope this puts your mind at rest.
- That the bloating feeling is beacuase they pump air in to make space for the camera to see.
- I felt the camera reaching the Terminal Illium end of the small bowel, it's a weird feeling, but not painful.
- The Endoscopy is about 1.5cm in Diameter, it's not painful, they'll examin with a finger first.
When I had one when flaring I ironically felt better just before it, as the bowel prep clears you out, and theres no food getting stuck in the inflamation causing pain.
Hi all, thought I'd join this thread 
I was diagnosed with Crohn's in 2015 which my specialist thought might have been triggered by an over reactive autoimmune response to gastroenteritis. Following diagnosis I was told I would need a low dose chemo for treatment. Fortunately I've been able to avoid this by making dietary changes. My key trigger now is stress which with a stroppy toddler and a unwell newborn is quite hard to manage. Currently doing okay though but am struggling to lose the baby weight.
I was diagnosed with Crohn's in 2015 which my specialist thought might have been triggered by an over reactive autoimmune response to gastroenteritis. Following diagnosis I was told I would need a low dose chemo for treatment. Fortunately I've been able to avoid this by making dietary changes. My key trigger now is stress which with a stroppy toddler and a unwell newborn is quite hard to manage. Currently doing okay though but am struggling to lose the baby weight.
Off the back of your comment, I hope people don’t mind me asking this but do those of you who have and IBD related diagnosis or something similar to me (Diverticular disease) find it difficult to lose weight?Hi all, thought I'd join this thread
I was diagnosed with Crohn's in 2015 which my specialist thought might have been triggered by an over reactive autoimmune response to gastroenteritis. Following diagnosis I was told I would need a low dose chemo for treatment. Fortunately I've been able to avoid this by making is dietary changes. My key trigger now is stress which with a stroppy toddler and a unwell newborn is quite hard to manage. Currently doing okay though but am struggling to lose the baby weight.
I’m really struggling lose weight unless I eat next to nothing, but then if I do drop calories significantly I find that it shows in my bloods (may sound dramatic but my readings for iron, b12 etc are lower).
Does anyone else find this? I’m not sure if it’s to do with absorption of nutrients into the intestine or not. It’s majorly getting me down as I really want to lose weight.
I really struggle to lose weight when my condition isn't active. I'm not able to do anything majorly aerobic, like running, or too strenuous, like weight lifting, because that can cause a flare. I've found dropping calories doesn't do anything to help with weight loss. Only time I've lost weight was when my condition was super active, I lost about 3st in the space of about 8 weeks 
not feeling great today - ! I’ve tried all different diets to ease bowel symptoms - but something always triggers it - it could be something I’ve eaten multiple times before - I’m just at my wits end now with what to eat! Some days I’m terrified to eat if at work or out in case it decides it’s going to cause diarrhoea/sickness. Feeling so fed up with it all!
Do you have ibs or ibd? If ibs check out monash university fodmap app.
I haven’t been diagnosed with either - Dr doesn’t believe it to be IBS because some of the symptoms and how quickly my body is reacting to whatever is triggering! I did look into FoodMap, but read it’s not to be long term!?
Yes cutting out high fodmap foods can be long term. What tests have they done? Sorry if I being nosey but I hate people getting overlooked especially ibs/ibd doctors never seem to test properly.
this was my original post with my symptoms.
New Reader Here... I've just been sent home from work this afternoon, as I have had sickness and diarrhoea - whilst this is happening I'm sweating profously and feel like as if I'm going to pass out... i have excruciating pain in my stomach just below my ribs... once the sickness and diarrhoea has stopped I need to lay on a cold floor to calm down... after a few hours I feel pretty normal - this has happened 4/5 times now - and Drs always put it down to Gastroenteritis!? Helppp!!!
I’ve been tested via bloods and stool samples for a Crohns, Coeliac and inflammatory issues (this was quite a while ago now) - these episodes I experience typically happen every few months and I go back to the Dr but he sits there rather dumbfounded!
Believe it’s may be an allergy, as it’s as if my body is going into shock… but unable to find the trigger as like I’ve previously said I could eat for instance pesto pasta for months and then on one occasion straight after eating it can cause an episode.edited to add: all results have come back normal!
The foodstuffs being fine then turning on you is quite common imo.this was my original post with my symptoms.
New Reader Here... I've just been sent home from work this afternoon, as I have had sickness and diarrhoea - whilst this is happening I'm sweating profously and feel like as if I'm going to pass out... i have excruciating pain in my stomach just below my ribs... once the sickness and diarrhoea has stopped I need to lay on a cold floor to calm down... after a few hours I feel pretty normal - this has happened 4/5 times now - and Drs always put it down to Gastroenteritis!? Helppp!!!
I’ve been tested via bloods and stool samples for a Crohns, Coeliac and inflammatory issues (this was quite a while ago now) - these episodes I experience typically happen every few months and I go back to the Dr but he sits there rather dumbfounded!
edited to add: all results have come back normal!
My big problem is bread of any sort which is frustrating as I love it. Your symptoms with the pain, diarrhoea and nausea sound horribly familiar (I'm diagnosed IBS).
I've avoided bread for months (had been fine for ages before that but then it had all kicked in again). Anyway two days ago I had caesar salad with a few croutons. And ate them thinking they wouldn't harm but omg. Basically a day in bed clutching my stomach. I felt so stupid. Oh and I can't eat pasta now either
But portion size in anything is also a trigger - have to have quite small meals.Other issues could be Gallstones or Bile Malabsorbtion.this was my original post with my symptoms.
New Reader Here... I've just been sent home from work this afternoon, as I have had sickness and diarrhoea - whilst this is happening I'm sweating profously and feel like as if I'm going to pass out... i have excruciating pain in my stomach just below my ribs... once the sickness and diarrhoea has stopped I need to lay on a cold floor to calm down... after a few hours I feel pretty normal - this has happened 4/5 times now - and Drs always put it down to Gastroenteritis!? Helppp!!!
I’ve been tested via bloods and stool samples for a Crohns, Coeliac and inflammatory issues (this was quite a while ago now) - these episodes I experience typically happen every few months and I go back to the Dr but he sits there rather dumbfounded!
edited to add: all results have come back normal!