Cancer survivor2020
New member
Ladies I been meaning to write here for a while now but I didn't. It sickness me and upsets me big c and me represents people like me.
She supposed to be a cancer ambassador but she's more like a blogger ambassador now.
I am 34 and had acute leukemia in 2016...i had a bone marrow transplant Oct 2016 and relapsed after 18 months I had another bone marrow transplant last march 2019 also two lung operations due to fungus on my lungs and was n a coma for 3 weeks, now a year and half later I am still struggling with graft v host on my liver and attend hosp 3 days a week. My problem is this..... Eveyone undergoing bone marrow and lives in distant city's from James are given an apartment in Kilmainham 5 min away from hospital with covid she would not be allowed bring anyone with her in, so means Barry and her daughter can't visit, that money is a disgrace should be given to bone marrow research or the ward, I have two kids myself and I know the struggle it put on my family when I spent 10.months in James last year, but we def didn't need hundreds of thousands, the baby grows I found that strange as she came off Instagram then a day later got more followers and then announced her diagnosis again. Now she is saying her donor didn't pass medical also before transplant she should be in for induction treatment for her bone marrow to be empty before new cells, so she says 6 weeks so what are the chances she doesn't need transplant after all who knows....
Also I made her a lovely frame last year and sent her a card and a lovely chain to her door in the ward as I was there at the time too and the nurses wanted me to go into her and she said she wasnt up for visitors but flat out on Instagram my 8 year old made her a lovely video she sees all. Messages and never replys I didn't even get a message to say thank u... was 3 days after she was on the late late I felt so sorry for her but now I'm angerd becuse someone that should represent us cancer patients it just seems like it's all a joke.
Sorry for the essay but I needed to say how i felt I really hope we are all so wrong but I been to death door and back I have had all infections possible and I know how bad I been after chemo and I know how bad other girls have been and they also get same treatment from big c she seems to only respond back to people that have a blue tick on their page I am angered at it all and to me it doesn't make sense. I had over 100 chemo therapys to get my marrow empty for transplant i also had an unknown donor too so did the other girls i can say I go to James every 2 weeks and never seen her there, but I also attend my own hospital here 3 days a week and I know people that are seriously struggling just don't get it also for transplant in Ireland funds are been approved on compasionate grounds especially if ur a young girl, and a mother a transplant is 350 k..... Alone so she doesn't have to pay for it she would also be entitled to a medical card because of no income, and a long term illness, also she said no one will insure her for a mortgage in that case no one should insure her to drive either..... I know a lot people that had cancer and got a mortgage.
She supposed to be a cancer ambassador but she's more like a blogger ambassador now.
I am 34 and had acute leukemia in 2016...i had a bone marrow transplant Oct 2016 and relapsed after 18 months I had another bone marrow transplant last march 2019 also two lung operations due to fungus on my lungs and was n a coma for 3 weeks, now a year and half later I am still struggling with graft v host on my liver and attend hosp 3 days a week. My problem is this..... Eveyone undergoing bone marrow and lives in distant city's from James are given an apartment in Kilmainham 5 min away from hospital with covid she would not be allowed bring anyone with her in, so means Barry and her daughter can't visit, that money is a disgrace should be given to bone marrow research or the ward, I have two kids myself and I know the struggle it put on my family when I spent 10.months in James last year, but we def didn't need hundreds of thousands, the baby grows I found that strange as she came off Instagram then a day later got more followers and then announced her diagnosis again. Now she is saying her donor didn't pass medical also before transplant she should be in for induction treatment for her bone marrow to be empty before new cells, so she says 6 weeks so what are the chances she doesn't need transplant after all who knows....
Also I made her a lovely frame last year and sent her a card and a lovely chain to her door in the ward as I was there at the time too and the nurses wanted me to go into her and she said she wasnt up for visitors but flat out on Instagram my 8 year old made her a lovely video she sees all. Messages and never replys I didn't even get a message to say thank u... was 3 days after she was on the late late I felt so sorry for her but now I'm angerd becuse someone that should represent us cancer patients it just seems like it's all a joke.
Sorry for the essay but I needed to say how i felt I really hope we are all so wrong but I been to death door and back I have had all infections possible and I know how bad I been after chemo and I know how bad other girls have been and they also get same treatment from big c she seems to only respond back to people that have a blue tick on their page I am angered at it all and to me it doesn't make sense. I had over 100 chemo therapys to get my marrow empty for transplant i also had an unknown donor too so did the other girls i can say I go to James every 2 weeks and never seen her there, but I also attend my own hospital here 3 days a week and I know people that are seriously struggling just don't get it also for transplant in Ireland funds are been approved on compasionate grounds especially if ur a young girl, and a mother a transplant is 350 k..... Alone so she doesn't have to pay for it she would also be entitled to a medical card because of no income, and a long term illness, also she said no one will insure her for a mortgage in that case no one should insure her to drive either..... I know a lot people that had cancer and got a mortgage.
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