I am type 1 since I was 7 years old. I got super sick, it slowly started and I was given out to by family bc I was so thirsty, too sick to eat, peeing lots & losing weight. When it got so bad I was almost comatoast (sp?) when I was rushed to hospital.
As a diabetic I had to weight my food & count carbs before ever meal. Check my bloods and if they were too high I had to exercise. If I didn't want to eat my dinner, my parents took the orange syringe out of the fridge and threatened me with it. It was such a big deal if I wanted chocolate or anything sweet. In my teens I major reduced my insulin so I could lose weight. If I had of had the freedom to not eat if I wasn't hungry, or not be forced & threatened to eat, then I don't think it would of happened.
I find it so bleeping ironic that I had to do obsessives things like weight & count my food & not eat sugar but OMG how dare I fall into an eating disorder!
In my teens, I tried to kill myself by taking overdoses of insulin. Obvi it didn't work. I have tried multiple times.
Recently (since getting the CGM), I got my bloods to be very good but I also gained a lot of weight, I was at my highest ever. I felt so uncomfortable in my body and I still do. Recently I've just cut my insulin again bc I had cut my cals down to under 600 a day and was still gaining while my blood sugars were good. I just can't deal with it anymore and so I have no choice but to cut the insulin. It has been only few weeks but I've already lost close to a stone. I am dreading my next diabetes appointment but I can't cope with feeling like this and I want to be a weight that makes me happy.
So many times I've had to face ignorant people including doctors & nurses.
One time a co-worker told me (very argumentatively) that I couldn't drink a diet coke bc it had sugar in it.
Another co-worker told me her friend had diabetes and took injections but she was fat so the injections didn't hurt.
A manager said to me after I had requested a day off bc I had a hospital appointment for diabetes, that I never said this in the interview & she was looking down on me while she said this. I told her that I am under no legal obligation to tell them anything and am protected by employment equality law as it is a disability and discrimination is against the law. *Although this law is a good thing, the bad part is most employers will make up other stupid reasons to get rid of you instead of saying it is bc of a disability.
I was telling a nurse who was taking blood about my CGM (she saw it in my arm), just general chit chat. I told her how I have been diabetic since I was 7 and how awesome the CGM is. She said oh yeah you are type 2. I was so hurt, I was & still am (it was only a few months ago) going through a rough time with my weight, diabetes, health in general & depression tbh. I told her what she said is very ignorant and she should know better, not just bc she is a nurse but bc she should have common sense.
Once I was in hospital (MS relapse), and I went hypo, I drink some juice for the hypo, a nurse who knew I was hypo & had gotten me the juice then asked how much insulin I was going to take for the juice. I flipped and told her she was an idiot and explained in detail how diabetes and hypos work. I told her she needs to learn more bc she is a nurse who should know such basic info and I do not trust her with any patients now as she doesn't even know a simple thing. I told her I feared for any patient of hers who would be so sick that they are dependent on her for their insulin and other meds.
In the past I have asked for help but have been fobbed off and told "I have real patients outside" "you'll be fine if you get a boyfriend", these comments are from phycologists & psychiatrists.
There are so many more stories but these are just a few that spring to mind. It is so hurtful and infuriating to deal with ignorant gobshites!
I might sound very angry but it is bc I am.
I am the only 1 in my family that has diabetes. I am also the only 1 in my family who has MS. I don't understand how these genetics work.