Not feeling much like a warrior today. Rough chemo session. Trying to switch off but brain won't allow
I've read that blacking out can sometimes be linked to mental health. I've had a few instances of syncope-type blackouts where its been brought on by me seeing something distressing (for me its usually been a fear - like when that gymnast broke their leg during the Olympics a few years ago) that has then made me feel really sick/anxious. I can usually spot the signs now and will make sure I lie down before it happens.So sorry to those of you going through difficult health issues. It's not fair at all.
I'm trying to figure out what's wrong with me; constant fatigue, depression, awful drawn-out PMS and periods, itching all over, sometimes randomly blacking out for seemingly no reason. Pretty sure it's my thyroid but the doctor tested for it last year and the results were normal. I'm going for another blood test tomorrow to see if my thyroid has changed and finally have found a doctor who is being helpful. She also told me to have an ECG to track my heart, which I can't believe no doctor has ever suggested before considering I've had chest pains and blacking out for years! Results looked normal, though.
Reading this thread is kind of disheartening because I currently feel a lot of guilt and like I'm lazy (and worry a lot about other people thinking I'm lazy or exaggerating how bad I feel) and can't tell them I'm struggling with a certain illness because I haven't been diagnosed, but it sounds like people still don't take it seriously when it has a name, so I guess a thicker skin is needed! Any tips on how to stop worrying whether or not people believe you?
Take care everyone.x
Thank you for the link. A doctor once told me they were probably panic attacks but I feel a bit like that was just brushing them off (not that panic attacks aren't serious) because I didn't feel particularly anxious before some of them and the first time it happened I was a child/early teen and I've felt much more panicky other times and not blacked out! Bodies are confusing.I've read that blacking out can sometimes be linked to mental health. I've had a few instances of syncope-type blackouts where its been brought on by me seeing something distressing (for me its usually been a fear - like when that gymnast broke their leg during the Olympics a few years ago) that has then made me feel really sick/anxious. I can usually spot the signs now and will make sure I lie down before it happens.
It sounds like it could be psychogenic type blackouts though? http://www.heartrhythmalliance.org/stars/uk/psychogenic-blackouts It says it can be brought on by chronic fatigue, IBS, fibro and similar conditions.
I have Fibromyalgia. I agree with you it is a horrible condition and more needs to be done to help people who are suffering.Anyone else suffer? I've got Fibromyalgia/ME and a whole host of things that come with it. It's painful and lonely (which is why I spend alot of time on here!)
I took myself for a walk today which I don't normally do and I pushed myself, probably a little bit to much and I'm now in agony head to foot. I just want to sit and cry because of the pain and I guess the point in this thread is that I'm hoping I'm not alone.
It enrages me because so many professionals are like to and have no empathy for you. I feel like saying try being for a day and then tell me it is not real.Out of interest, How do you feel when people say fibromyalgia isn’t actually an illness, especially if it’s the medical profession saying that?
Have you experienced that much? I’ve had hospital admissions with patients who find they’re not taken “seriously” when they present with this.
Hope I don’t offend anyone saying this I just wondered if it’s the norm.
My anxiety got a whole lot worse after becoming ill. Especially my social anxiety. I'm currently in therapy for it.Just out of interest have any of you who have spent lengths of time mostly housebound ended up with social anxiety and agoraphobia? Even if you were extremely sociable before.
Hope it helps.My anxiety got a whole lot worse after becoming ill. Especially my social anxiety. I'm currently in therapy for it.
Thank youHope it helps.
You are definitely not alone.x I also have Fibromyalgia/fArthritis/degenerative disc disease.All are painful ,but fibro is so debilitating ,so i truly understand how you feel.It`s not just the chronic pain ,which i can experience day and night ,but the dreadful exhaustion and nausea.I come here to take my mind off the nagging pain etc ,i can always find a post or more which make me smile.I`m glad you`ve started this thread.It`s not wanting to bemoan our lot ,just to feel (as you say) less alone.I found out who my true friends were when i was diagnosed ,and ,as time`s gone on ,been unable to keep up with certain people.However ,i`ve also made some new friends who are there in good times and bad..Hope today has been a little kinder to you?XxAnyone else suffer? I've got Fibromyalgia/ME and a whole host of things that come with it. It's painful and lonely (which is why I spend alot of time on here!)
I took myself for a walk today which I don't normally do and I pushed myself, probably a little bit to much and I'm now in agony head to foot. I just want to sit and cry because of the pain and I guess the point in this thread is that I'm hoping I'm not alone.
At the beginning yes.Especially the pain clinic specialists ,who seemed to lack any compassion!They gradually ruled out various conditions ,and i saw a wonderful gp who knew exactly what my symptoms were (and this was 20 years ago).It was such a relief to finally feel vindicated ,as they can make you feel such a fraud.I had a sick husband at the time ,and 3 very small children.I kept saying i didn`t have time to feel so lousy ,and why couldn`t they just explain why my joints were swelling ,why i felt abnormally tired ,and constantly hurt ,everywhere.I guess because ,unlike my joint and back problems ,there wasn`t a scan/xray to verify the condition.Out of interest, How do you feel when people say fibromyalgia isn’t actually an illness, especially if it’s the medical profession saying that?
Have you experienced that much? I’ve had hospital admissions with patients who find they’re not taken “seriously” when they present with this.
Hope I don’t offend anyone saying this I just wondered if it’s the norm.
I have PMDD which it may be worth you looking in to if your PMS symptoms are really severe and affect your day to day life when they occurSo sorry to those of you going through difficult health issues. It's not fair at all.
I'm trying to figure out what's wrong with me; constant fatigue, depression, awful drawn-out PMS and periods, itching all over, sometimes randomly blacking out for seemingly no reason. Pretty sure it's my thyroid but the doctor tested for it last year and the results were normal. I'm going for another blood test tomorrow to see if my thyroid has changed and finally have found a doctor who is being helpful. She also told me to have an ECG to track my heart, which I can't believe no doctor has ever suggested before considering I've had chest pains and blacking out for years! Results looked normal, though.
Reading this thread is kind of disheartening because I currently feel a lot of guilt and like I'm lazy (and worry a lot about other people thinking I'm lazy or exaggerating how bad I feel) and can't tell them I'm struggling with a certain illness because I haven't been diagnosed, but it sounds like people still don't take it seriously when it has a name, so I guess a thicker skin is needed! Any tips on how to stop worrying whether or not people believe you?
Take care everyone.x