So sorry I totally missed this. You okay?
I wanted to ask something that’s quite sensitive then delete it but I’ll just ask it in a different way. I’ll just reword it.
Yes. Absolutely. But honestly a bit like tooth brushing sometimes you have to literally hold them firm and do it.
Yes actually, I should say we try not to make hospital scary, but to say you’ll get really sick and have to go to hospital but mummy won’t be able to stay with you, which would scare them. We’ve tried bribing with toys, food treats which goes against me trying to avoid making food an issue, days out etc but sometimes they won’t budge. Positive reward and praise doesn’t do it.
It is SO hard to find that balance. The way I see it, if it has to be done for their wellbeing (which it does) then it’s necessary medical care.
Thank you, it’s so true that it’s probably equally as bad to leave them in pain, either way they’re suffering.
You aren’t getting it wrong. You are thinking about your LO’s body autonomy and trying not to cause more upset while trying to provide necessary care.
We haven’t, managed to clear impaction at home but honestly I’d have taken any option by that point although I think it would have felt a big thing. How do you feel about it?
Consultant thinks we are nearly at that stage as movicol and the like has been completely refused for a long time (to the point of them refusing to even drink plain water etc). We are now at the stage where water intake is fine so don’t want to risk it again, plus they have always been a medicine refuser (even hates Calpol etc) but we are managing to achieve a small dose of Sodium Picosulfate daily and have done so for almost 6 months now. Which is a huge huge breakthrough.
It’s so hard trying to know what to do. What the ‘right’ thing is.
will find out more info Monday as she wants to discuss with a colleague but sounds as though it would entail a couple of days in hospital including tubes etc. She said she thinks we are already at the point where a hospital admission would be the next stage (within the next few months) however due to my particular situation she thinks maybe rushing it through so it can be done before the babies arrive would be the best idea.
We’re doing of home disimpaction. 4 sachets today (adult movicol). They are not a total refuser but getting any liquids in is hard. So far OJ, lemonade or smoothies have disguised it but 4!? We’re getting a lot of distress, tummy pain, disturbed sleep. Trying to give them cuddles on the floor while on the potty, they uncharacteristically want carrying and cuddling, at 29 weeks preg it’s not easy, let alone with twins! Plus I hate being the baddie, especially when hormonal and we’ve got all the new baby coming emotional conflict & I just want to protect them from everything.
If she is going regularly-ish it could still be overflow. That’s what happened here. He was clearly in pain, hiding to try and withhold, tummy hard. We had explosive poo which is what I knew was overflow, and he told me (he was 2) “my poo is sad because it can’t come out”We've just been referred to Paeds Gastro for ongoing constipation.. praying it doesn't take too long.
What I really want is just to know if my daughter is impacted or not... ultrasound says no but then they followed up with 'ultrasound isn't reliable for poo' so who knows.
She goes fairly regularly but has constant tummy aches so they are saying to just keep pushing movicol and lactulose.
I hate poo. The last 18 months I have never obsessed over poo so much
Mine can’t have dairy so I used the chocolate Oatly a lot to hide it in!
4! My god you are wonder woman. It’s challenging enough getting 1.5ml of medicine in mine! They won’t drink squash, juice, fizzy, anything! Only water and soya milk
it’s great you’re managing to disguise it and of course you want to do as much as you possibly can to help your LO, but the at home disimpaction and maintenance really does feel like a huge commitment and big ask for everyone involved, doesn’t it?! There’s so much distress tied up in this kind of thing. We had bloods done at hospital, he remembers that but he also remembers the game he was allowed to play on the iPad with the play specialist. Sometimes, as parents, we have to (try to) trust the professionals to do the right thing. Because in the end, it will be for the best x4! My god you are wonder woman. It’s challenging enough getting 1.5ml of medicine in mine! They won’t drink squash, juice, fizzy, anything! Only water and soya milk
We’ve also got the huge distress and pain/upset and knock on effect of disturbed sleep, up and down appetite and behaviour. It’s really is making them miserable and it’s so upsetting to see. I just hate the thought of how traumatic a hospital admission could be, but it feels like we’ve tried everything and I am just so so desperate for a resolution now.
